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Comment by Mary on January 22, 2009 at 11:14pm

Welcome to the group, Kate. You said it!!! "I know that most people see me as incredibly brave and strong, but I don't really feel like I am either. I just chose to not hide anymore."

When people tell me I'm "brave", I feel funny because I just think that I'm doing the only thing I can do...be myself.

Comment by Late K8 on January 22, 2009 at 10:55pm

Hi all. I was lucky because my alopecia was recognized by a dermatologist and I was sent to Dr. Vera Price at UCSF in San Fran. She is a leading researcher in alopecia and a founder of NAAF. She is also spearheading the registry. If you haven't registered I would recommend going to naaf.org and seeing where you can provide a blood sample that will be used to help find a cure. That might be a good way to meet a dermatologist that has better knowledge too.

I know I haven't posted with this group before. I have been lurking for a couple of days. I am 29 and have had alopecia for 10 years. I shaved my head about my second year when I got tired of wearing a wig over hair. I used to wear bandanas to bed and never left the house without a wig. But thanks to great friends, family and especially a supportive hubby I have gone bald. Instead of covering my head with wigs I have chosen to cover my head with tattoos. It gives me confidence and a lot of compliments. I know that most people see me as incredibly brave and strong, but I don't really feel like I am either. I just chose to not hide anymore.

Comment by Nicole on January 22, 2009 at 9:56pm

It seems like Alopecia is brand new to doctors and they are all trying to jump onboard to find a cure for it. I no longer want to be a lab rat. I am just ready to take the steps to except and love my baldness. :-)

Comment by Mary on January 22, 2009 at 9:34pm

Thea, No offense intended to the medical profession! I'd love to meet a doctor who knew something about alopecia areata. I know they must exist, but I haven't been fortunate enough to find one. I asked my primary doctor and dermatologist if they know any specialists I should see....they don't. I made a few calls around town myself trying to find someone who had specialized experience. No luck. What kind of specialist would someone with AA go to...an immunologist?

Comment by Mary on January 22, 2009 at 8:41pm

My alopecia first appeared when I was about 48, and I lost it all at 55.

Doctors haven't done anything for me except the dermatologist injecting cortisone in my bald spots for 7 years. I've basically felt on my own medically with this, and it doesn't seem that any medical professionals know anything about alopecia.

Comment by Lori M on January 22, 2009 at 8:30pm

Ohhhhhh my age.....45 in June...Some days feel a hell of a lot older especially when my two year old is tearing up a streak in the house.....That is when I feel my "mother's" age....... The Alopecia thing turned up about a month before I turned 44.....

Comment by Lori M on January 22, 2009 at 8:28pm

Ohhhhh yeah I have asthma and a "low normal" thryroid for which my dingbat endocrinologist put me on Synthroid for.....Hmmmnmmm "low normal" doesn't that sound like it is low but in the "normal" range?

Is it me or have any of you noticed the more education a doctor gets like becoming a specialist the less time they spend listenning to you and they dumber them seem? Serioulsy "stupid' people become specialists. It is no wonder none of them know anything and we waste our time going to them......

Comment by Lori M on January 22, 2009 at 8:24pm

I know of someone who used to go to my church and has had Alopecial Universalis ever since she was a child. She is in her mid 70's now. No doctor has ever told me that it would develop into a really bad immune system problem ever. Heck I already live with an immunity disease and it is Chron's Disease. It hasn't killed me yet...:+)

Comment by Nicole on January 22, 2009 at 6:28pm

All I have is just alopecia and asmtha. Of course my doctors are trying to still test me for everything under the sun. I have not notice any other health concerns. I promised my doctor yesterday that I will do one more test next Thursday and after that I give up on all of this testing! I am ready to embrace alopecia and live with it.

Comment by Mary on January 22, 2009 at 6:27pm

Okay, I think I'M the oldest...I'll be 56 in June (born in 1953). I always tell people how old I am, and it's never been an issue for me. Maybe there's a connection between that, and the fact that I don't care if people see me bald.

I met a woman in her late '70s who has had AU her whole life. She seemed pretty healthy. I guess all we can do is take care of our bodies and minds, exercise them, and hope for the best!

Thank you for your kind words about my quote, Galena. Sharing my feelings on AW and in this forum has been a great help to ME, and I'm so happy to be able to inspire other women.

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