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Comment by Galena on January 22, 2009 at 5:33pm

Good. And by the way, 51 is NOT elderly. I'm 45. I was considering someone in their 70's or so. I guess the character of autoimmune diseases is so complex and individual; it's hard to predict what could happen to the body in the future. I don't hold any fatalistic views; I'm just trying to be informed.

Thanks sisters for sharing your ages. Some believe that a woman should be vain and never share her age. Your admissions shows that we evolved Alopecians are way beyond that...

Comment by Linda on January 22, 2009 at 1:20pm

LOL, Lois, I'm the oldest, I'm 52~like refined wine, LOL! Galena, I don't have any life threatening autoimmune diseases, I've had Alopecia for over 44 years.

Comment by Galena on January 22, 2009 at 12:38pm

"Once I accepted this fact, the hair loss just didn't matter so much. I keep reminding myself how many serious, disabling, and life-threatening illnesses I could have. For me, life is too short to be stressed about CONCEALING my bald head. I have better things to do. ( ;-) "
Mary has given us sisters the true definition of Alopecian freedom- Thank you Mary-those words inspired me.
But I have asked this question to a medical professional and did not get an answer so I'll ask this astute forum. What is our prognosis? Does alopecia morph into a life threatening auto-immune condition? Do any of you sisters know an elderly Alopecian?

Comment by Linda on January 21, 2009 at 10:43pm

Mary, I'm sure we are spiritual sisters, you say what I'm thinking in most of your posts. Since I've had the same spots for over 40 years, I know in my heart of hearts that my hair will not be back. But like you said, I don't have any life threatening diseases, so I feel truly blessed. For the most part, I live life to it's fullest, we all have our bad days, but stressing about my hair just isn't an issue when I'm having a bad day. Now that I've shaved my head, I only think about my hair when I need to shave again, lol. And...my hairdo or hairdon't, goes with any event, occasion or outfit!
Nicole, be inspired, you are beautiful!
Thank you BaldGirlsDoLunch for more info on the book, I don't think I'll be reading it, I'm so not into covering my head ever unless I want to!
We are all spiritual sisters, this is good...

Comment by Lori M on January 21, 2009 at 8:41pm

I myself am gving the steroid shots a three month trial and if at the point the shedding still continues and not much regrowth then off it comes....the hair. I am not going to buy into false hopes only to put off the inevitable. Guess three months is my deadline and then we shave. I myself am not comfortable being bald and especially in Public but that is me. I think it is amazing the women that say to heck with "wig head" and go au natural.....To heck with doctors too!

Comment by Mary on January 21, 2009 at 5:24pm

Nicole, assuming that my hair is NEVER going to grow back has been the best attitude for me. This is me, for the rest of my life...and it's okay. I'm healthy and active, but I will never look the way I did.

Once I accepted this fact, the hair loss just didn't matter so much. I keep reminding myself how many serious, disabling, and life-threatening illnesses I could have. For me, life is too short to be stressed about CONCEALING my bald head. I have better things to do. ( ;-)

Comment by Nicole on January 21, 2009 at 3:01pm

I am interested in reading that book "If Your Hair Falls Out... Keep Dancing", but I do want to read a book that will encourage me to go bald instead of covering my head. Laurie it is extremely stressful to cover hair loss. I need for Linda & Mary to rub some their courage on me so I can face having AU and understand that there is a chance my hair may never grow back :-)

Comment by Laurie on January 21, 2009 at 1:52pm

Thanks Linda. Unless my situation reverses soon, I'm sure I will shave. I'm giving myself a deadline - the end of the school year. That way, my kids have the summer to get used to such a big change without their school friends teasing them (if they even do). I read your profile and I completely agree. It is emotionally draining trying to cover hairloss. For some, I guess they are more comfortable trying to fit in. For me, it is becoming a hassle to the rest of my life. Thanks again.

Comment by Linda on January 21, 2009 at 12:28pm

Mary, I will read the book and let you know my thoughts, I had leafed through it, I will take the time to read it now that you've posted about it.
Laurie, my hairloss was not apparent, although family and close friends knew about my Alopecia and my spot in the back (4x3 inches) was a little hard to conceal, I did it. My sister and daughters did my hair when I wore weaves, they would intergrate my hair and it looked soooo natural. So when I decided to shave, it was a shock to some, they thought I had cancer. Some I explained my situation to and others I just politely said "no, I don't have cancer".
I will put up picks of my hair when it was weaved and when it was "wigged", and other styles, I've worn. I did wear the huge Afro wig to events sometimes, blows folks away, lol!

Comment by Mary on January 21, 2009 at 11:51am

Hi Laurie - I can understand that it's a harder decision if there aren't obvious bald areas like I had. You'll know when the time is right. One thing I suggest is that right before you shave your head, you have someone take some photos like the ones of me, without any Dermmatch. There were times after I shaved that I doubted myself and wondered whether I'd acted too soon. There were a couple of friends, and my brother, who questioned my decision to shave. Having those pictures to look at and to share helped me KNOW that I had made the right decision at the right time.

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