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Comment by DebbieT on October 25, 2014 at 12:35pm

Hi Raquel.  I have yet to meet anyone with Alopecia in South Africa.  I was diagnosed in 2012 and have the Frontal Fibrosing Alopecia.  I still have quite a lot of my hair, but it is falling fast.  I have searched the net far and wide for people with this condition in SA, but to no avail. The general Alopecia World blog is mainly ladies from the UK and USA.  I live in a little town outside of Port Elizabeth.  I will definitely look for your facebook page and join.  

Comment by Raquel on October 25, 2014 at 11:43am

Hi there. I also came to the conclusion that SA does not have any idea abo t Alopecia. After my journey to come to terms with my Alopecia -Androgenica i am starting awareness in Pretoria. I also opened an open group for Alopecia South Africa on facebook and writing a blog ( in afrikaans) about living with it. Come and join! The more the merrier! I am doing a photoshoot this week. My primary message will be..to have Alopecia is ok! Also that to loose your hair takes you through the same emotions than someone loosing hair because of cancer. The second part of my awareness will focus on the fact that every women can( and is)be beautiful, despite hairloss. There will be a few surprises aswell. This Alopecia road can be a long and loney journey! I know! ..

I also wear wigs. I know all about wigs and i know how bad it is to go see someone to buy a wig from a person having their own hair. The experienes was bad and not handled with the respect i deserved. 

Also look for me on facebook by my name Raquel Lewis. 

Comment by Ursula Hay on July 14, 2013 at 10:41am

HI Janine, great news..........look forward to meeting you on Saturday :)
Hi Kim, yes SA does not seem as open to Alopecia to the rest of the world, I also found it very difficult to find anyone to chat to. Well I have now met a couple of ladies(of all ages).
Anyone who would like to chat can get in touch via email dcu.hay@gmail.com. Would love to start a support group.

Comment by Ursula Hay on July 14, 2013 at 10:38am

Comment by Janine on July 13, 2013 at 11:45am

Hi Guys -- and Ursula, who has been such a support to me. I shaved my head today and it was scary, but you know what, I don't look too bad! In fact, I like myself a lot better with no hair than with the itty bit I had before! I decided to forgo the expensive treatments and accept that my hair is falling out. I've been wearing wigs for a long time, but as my hair situation became worse, clipping the wigs in became painful. I decided to save up and get a Freedom Vacuum piece, so today was the big shave and next week I meet Ursula for my Freedom fitting. Then a long wait before I get my piece, but I'm totally okay with that. Any advice from fellow SA alopecians on how to keep your wig on your hairless head would be welcome as it seems most of the good products are only found in the United States. Especially you guys from Cape Town -- where do you go and what do you do? Hope to hear from you all soon.

Comment by Kim on July 12, 2013 at 7:57am

Hi all! I cant tell you how relieved I am to have found this site! I have been searching for a support group in South Africa for ages but nothing local comes up. Well, here I am....and hope to get to know you all better. I am 32yrs old Capetonian & have had Alopecia Areata for +-10yrs. Past 2 yrs its gotten dramatically worse & currently, I have lost 50%+ of my hair. In March I underwent cortisone injection therapy with Dr Kevin Alexander in JNB, however I have only lost more hair. I am now at the point where I have to start considering a wig or some sort of cover-up & the thought of it terrifies me! Would love to hear what all you have tried & if had any sucesses.

Comment by Ursula Hay on May 5, 2011 at 2:04pm

Hello everyone, and welcome Clif from across the border :)
I have had alopecia for 22 years and like Jan, would also like to help others out there who are dealing with Alopecia.
Gideon, I've also had my eyebrows tatooed, and still use a brown 'eye pencil' to soften it a little. I met a lady the other day, who has AA, and she uses a specific eye brow 'eye shadow' which I think is made by Clarens. I when I chat to her again I will let you know.

Comment by Gideon Naude Bakkes on April 27, 2011 at 1:53pm

Hi,
This is now my 2nd year with AA (universal). I have tattooed eyebrows, but no eyelashes. Does anyone of you make use of normal make-up (for men) in order to achieve a more natural eye shadow/ eyelash appearance?
Gideon

Comment by Clifford Ferreira on December 6, 2010 at 1:20pm

Hi Everyone. I am a South African living just North of the Border in Botswana so I guess ok to join your SA group?
Dont know a whole lot about A, just lost all my hair a few years back and no sign of it returning.
Clif

Comment by Jan Streicher on August 29, 2010 at 4:57am

Hi Saskia
bly om te sien dat jy hierdie weblad begin het. Ek het alopecia vir 28 jaar en ek wil baie graag 'n verskil maak in die lewens van ander mense met alopecia. Veral die kinders en jongmense wat pas gediagnoseer is. Dit is maar nie 'n lekker pad as jy dit alleen moet loop nie,maar hulle moet weet jy hoef nie alleen te staan nie. Ek het so baie om te deel in my 28 jaar ,want ek self het baie foute en onnodig verkeerde besluite gemaak.
Ek sal seker in vervolg in my gebroke engels moet skryf !!!!
Groete Jan

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