Comment

Comment by tommy on April 14, 2011 at 2:08pm

oh my god, i have bells palsey! haff my face doesnt work lol

feel like little nicky 'get in the flask!' hehe

Comment by tommy on April 13, 2011 at 5:02pm

i wish instead of paying tax or national insurance (what ever covers our nhs) that we had the choice to use that money to go private!

Comment by Vicsta on April 13, 2011 at 1:29pm

That sounds about right Tommy - the animal hospital that I have to take my dog to (she's blind) is better than the human hospital and the vets are more compassionate and helpful. I think it's a disgrace our health care system... we live in a supposed 1st world country, but our hospitals and surgeries are not 1st world at all. If I had the money I would go privately.

Comment by tommy on April 13, 2011 at 6:30am

hey alice sorry to hear that has happened to your family, touch wood i haven't lost a sibling or a parent. I have had quite a few deaths in the family like last year my grandad and 2 uncles (different sides) died in the same week! my grandad boxer's son died xmas then he went on boxing day and my mum's half brother died from an over dose on newyears eve! what are the charces!

Oh yes the doctors waking you up all the time, that pissed me right off. And more so when they used to turn the bight light on above me bed lol it was awful i couldn't even move and they wouldn't even help my to the loo.

I was in a teaching hospital, i find it really rude when they are all staring at you, i had a group of 10 standing there that did not help me feeling consus about the pecia lol

After watching the nurses and doctors i noticed that most view you as cattle, it was as if they was working in a animal hotel! they have no compassion for anybody, in fact i think people who do look after animals give more of a dam!
I also found that the dinner ladies and the care staff where more helpful to people.

Comment by tommy on April 12, 2011 at 11:36am

I had my thyroid blood tested when it first started 9 I think i may have had overall blood test check when they did this. It didn't show anything

I also had about a gazillions blood tests when i was in hospital for pneumonia for 2 weeks and nothing come up in them. I swear i was going to have a stroke with all those horrible lights!

i don't know why they see it as cosmetic, as clearly for most men and every woman it is a big thing. The way 'beauty' is shoved down our necks, and when you watch shows and it says you need the right hair cut or your look bad.

I do feel bad because of course there are people worse off, but this makes me feel so much worse!

Its like when people say that and i think 'Yes I'm not dieing but I'm not exactly living'

oh i could go on all day! lol

Comment by Vicsta on April 11, 2011 at 6:47pm

Yes where is George?!?

Oooh I meant to say, have you had your thyroid tested recently? How is your overall health? TE can be a result of thyroid problems and so can the memory and speech issues.

It is definitely easier to write stuff in public if you feel that other people are going to be receptive and empathetic. I have not really met many people outside of online who have hair loss - only a couple. Most people can't understand how it feels and imagine that it's easily fixed (especially for women) with a wig or hair piece. But even if a person sorts out the cosmetic issue (which is never "that" easy to resolve) that doesn't get rid of the emotional and mental issues as the hair loss is still there, just it's covered up. It is definitely different talking to people who have the same type/pattern as me... before I have always hung out with women online who have AGA (usually female pattern).

Comment by tommy on April 11, 2011 at 6:31pm

Yes at the moment very, but i sorta started writing because my speech has gone AWOL and i can never seem to talk well or even probability and i forget almost everything. I think this is due to the stress and can be related to M/H stuff. So writing has helped me alot, its funny as i refused to even put pen to paper at school! well when i say 'writing' its on a computer so im not braking my school code lol.

Yes the Internet is a great tool, at first i was killing my self searching for answers because of the information overload but have calmed down with it all! I have started really getting in to this site once i saw that a few people had joined my group as i felt kind of alone before. by that i mean somebody/s with the same type of problem to relate to even though alopecia's leave nice comments on your wall etc, you still need somebody/s that relate to the type of motions your dealing with. The same way i don't know what its like to be completely hairless and for it not grow back! well maybe not yet.

Real life support sucks! not that i have really asked anybody for help but its all 'its not happening to me so i don't care', but on a site like this people have put themselves on here to help and to get help so its much more of a nurturing environment. I wouldn't say its easier to post a personal post on here but once one person does then the cards fall!

like us! but George is missing and she got the ball rolling for us, if she didn't post i probably would not have.

Comment by Vicsta on April 11, 2011 at 5:54pm

Hahaha - I would fall off me perch if you said "a lot" LOL. I know, it's very therapeutic to get the feelings out. I don't think it's even "moaning" really because we actually have something to have these feelings about.

I noticed you have mentioned writing a few times. I think that can also be a really useful tool for expressing how we feel about our hair loss and our self-image etc. I should do it more I think. I am kinda lazy about it and get completely absorbed with looking at stuff on hair loss websites... does anyone else feel that they get very obsessive with the Internet and stuff to do with hair loss/alopecia. I find I go through phases of wanting to immerse myself in this "world", perhaps because I am unable to get the support from people in my real life at the moment.

Comment by tommy on April 11, 2011 at 4:55pm

i hate to say it but i think us moaning to one another has made me feel alittle better! well when i say alittle i do mean alittle lol

long live moaning! hehe :)

Comment by Vicsta on April 11, 2011 at 4:13pm

Tommy - I am sure that if you were to explain to a "nice" (if we could find one!) doctor about your emotional/psychological issues surrounding your hair loss, they would not think it is was weird or invalid... I think it's completely understandable. I think that CBT can be helpful to dealing with the thoughts surrounding hair loss or perhaps neuro-linguistic programming.

Alice - yes, over the past 11 years I have had a few occasions of patches of regrowth, if I didn't I would be completely bald by now as I shed massive amounts when I am having a shedding period. The regrowth I have had has been very random and there are areas about the size of a pencil eraser that never grow back... they are completely smooth and you cannot see any hair follicles. So I might have 18 months CTE followed by 2 months where I get a little regrowth and then the CTE starts again. I think the longest "break" I had was 4 months where I had normal amounts falling out and some growing back, Like Tommy said, I do wonder if I have a mixture of CTE and perhaps AGA. In the past, I was excited by the regrowth, but not anymore.

• ‹ Previous
• 1
• 2
• 3
• 4
• Next ›
• Page