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Comment by tommy on April 11, 2011 at 3:59pm

sorry alice i just made your post look so small! Yes the slow route is the hard route! i think its where the hair falls out all the time and slowly killing the follicle.

Abit like when somebody has plucked thier eyebrows for years and it stops growing.

if only it was the future, we would probaly all be wearing space clothes that would cover our heads!

Comment by tommy on April 11, 2011 at 3:36pm

its strange the way my hair is, at the sides its little holes and on top its bigger holes 2 really big and even some lines or long holes. and my beard holes in which are starting to join it sorta looks like leopard print or army camouflage or so i think! And my eye brows/lashes are as i said just sorta falling out.

maybe its a mixture of TE and other alopecias!? but it started out at TE when it feel out in 2weeks.

yea i have been to a hypno but he was bald which didn't help haha it could only happen to me! its only since i started studying for my nvq 2 in youth work that i realised that i wasn't mad! because we have to learn how to notice if a young person isn't ok and active listening and all that stuff. I can just about go to work! which i have found so hard to do, but now it summer the lights don't need to be on and i can relax a little. its only the walk from the car i have to stress about lol! What was i saying? oh yea and i started reading more about mental health and realised that i could be suffering from some-form. i haven't be diagnosed or anything because i couldn't say to my doctor that its because my hair! I was thinking about it today, and that all the stuff that's happened to me and this affects me, but then other people may lose thier hair then have something bad happen to them where its sorta the other way round for me lol! :/ one day i may write about it if i can remember it all.

I also am best man/pageboy (please don't smurk) at my best friends wedding! Which i am dreading, what the hell am i going to do!? arrgh....

wonder if she will let me wear a paper bag :)


p.s i just noticed i didnt spell check my last post, oh the shame! that reminds me when is shameless back on? lol

Comment by Vicsta on April 11, 2011 at 7:12am

I can't have extensions because my loss is very visible on the top so the bonds would show and I would be paranoid about traction alopecia. You know that thing of exchanging one problem for another. When my loss was more diffuse (the first 3-4 years of losing my hair) I could definitely have gotten away with extensions for adding more volume. Thing is, at the time they were less popular and so were MEGA expensive (like some ridiculous £1000 or something).

Is your loss diffuse or do you have balding patches?

I love lamp lighting - kinder to the eyes too... I always hated harsh, bright lights and now even more so!

Have you thought about going to see a hypnotherapist or a counsellor to help with your feelings about your hair loss? You shouldn't have to suffer a loss of going out/social life because of this, although I understand why you feel that way. I don't really relish going out socially either. I tend to go for more low-key activities when I do go out, such as going for a coffee with a friend or some lunch rather than a proper evening out. The thought of having to go to a massive social function like a wedding or something makes me feel - ARGH!! I know my first thought would be: what will I do about my hair.

Comment by tommy on April 11, 2011 at 5:16am

I was think that if a transplant if there was enouth hair left to just cover the top like a mo hawk style then get a hair tatto just to shade in the sides! Dont know if it would work as it abandon ships all the time lol. has anybody tryed hair extentions? and had thier hair in an up style? maybe that would work for women?

v - i only like lamp lighting now! also the mirror thing is so true, i used to duck sometimes to aviod! I cant really handle going out much anymore as its so stressful doing so. I also have dreams in which i suffer for my hairloss. Even in my bloody dreams i cant get away from it! lol agghhh!

i wish it would just go away, miss who i used to be :(

on a lighter note i like turtles lol

Comment by Vicsta on April 10, 2011 at 7:53pm

OMG Tommy you made me laugh with bring back the negativity hahaha. I can do a good line in it... when I am in "that" mood LOL.

Alice - that's interesting about the transplant, the only thing I feel about it (have thought about it before in a random/fleeting way) is that if I grew out all the hair I had now to an acceptable (to me) length, it would not be enough hair to make a nice hairstyle. Does that make sense? So if I could have a transplant, it might fill my balding patches, but it would not be enough hair for me as a "whole head".

Tommy - gosh yes, fluorescent lights do bring out the shine and so do those halogen spotlights. Recently I got to the point where if I went out with my head as it is (not wearing a hat/scarf/wig or anything) then when I went into the bathroom/toilets in a public place like a restaurant, I would not dare look in the mirror because I just found it too disappointing/upsetting and horrible because the lighting makes it look worse than in my house.

Every time I get significant re-growth - I get those "saluting" hairs (as I call them) - it falls out before it gets beyond 2 inches. So yes, our bodies are clearly comedians! I agree with you Tommy, I have those feelings that it would be easier if it just all went, but like you say... grass is greener and all that. I just find the having some hair to be so unattractive... it just looks horrible and because I have some hair, people think I should be happy! They think I should "make do" with what I have. LOL! Well, I don't want to make do...

Okay I told you I could do a good line in negativity hahaha.

Comment by tommy on April 10, 2011 at 5:45pm

now that's one thing i couldn't do, wear a wig. I tried hats last year and cant stand them! i do wear a hat sometimes if the fluorescent lights are on in work because ive developed a fear of bright lights lol brings out the shine!

I get ya when you say comic trick, its also tormenting when it sheds grows back rubbish then sheds. Its like oh dear here have some more to replace it, got ya hahaha. stupid hair lol

sometimes i think it would have been easier if it just all feel out and didn't grow back when it first started! but then suppose everybody thinks the grass is greener on the other side.

cool glad you got it, the last chapter or two might be poorly written as i started to get really depressed when i started writing those!

Comment by tommy on April 10, 2011 at 1:45pm

vicsta, nooooO! bring back the negativity lol

Comment by Vicsta on April 10, 2011 at 12:58pm

Prepare to hate me - I do have acceptance *most of the time*, but that doesn't mean I don't still struggle with it. I really dislike how unattractive hair loss makes me feel... it seems to make the things I do not like about my appearance/looks be highlighted... if that makes any sense. My hair used to be my "crowning glory" and made up for other less attractive features... *sigh*. The thing is, I realised after a long time, how unhealthy and unhelpful feeling angry and negative all the time was... it won't make my hair come back and makes me feel even worse/more miserable. So I try my best to get on with life - although I seem to have times when I achieve this and times when I fail. However, that being said, I would not take it upon myself to tell someone else to just get over it or on with it or whatever... we all deal with this differently and no one person experiences it the same as another person, so saying such things to someone else is really unhelpful IMO. The fact people do say it, just goes to show how little they understand about it!

You know about the hair transplant, as far as I have heard, it is not suitable for people with TE because if it is true TE, the hair can fall from anywhere on the head... so in fact no area is actually stable enough to be a donor area. This is clearly different from male and female pattern baldness, where the area from half way down the back of the head to the nape of the neck does not fall out and should never fall out, so they use hair from there.

Comment by tommy on April 9, 2011 at 8:38pm

Vicsta - alice - try baby powder, can help a little! If you ever see somebody with a talc head, you know it is I. I was thinking about a head tattoo or a hair transplant, even a combo of them both, maybe that would look good? But I'm unsure of the results coz of TE. Plus i would need a loan/credit but if it works i would happy get in debit!

Did you read Dear deidre in the sun on the 8th? Some poor boy, well man who is 21 is losing his hair and she is like accept it and move on, here's a leaflet! That pissed me off so i wrote them a e-mail explaining how much of a shitty reply that was and why. I may post it on a blog on here but don't know yet as it is a little personal and people may think I'm a fruit loop! But most likely i will as it may help someone who is mental/not got the same happy attitude of some on here, how i envy them lol

It winds me up so much when my mum or even mates say it, i feel like headbutting them with the power of the shine lol

Comment by Vicsta on April 9, 2011 at 3:00pm

LOL@ I actually PAY to hear this stuff - I hear ya. I think these people think we are mindless twits or something. Here in the UK it is super expensive, so I spend the money I do have on things like wigs and hats and scarves and stuff like that! I don't think that Rogaine is proven to work with CTE is it? Normally CTE is caused by something underlying and they should be seeking that out and addressing it, but of course they are not. :o(

Tommy - my mum says the same thing too... she doesn't understand that if a hair is going to come out, it's coming out no matter whether I rub or touch or not! I think she is paranoid that I make it worse, but sometimes the itching or weird sensations are too much to not touch it and scratch or rub.

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