Comment

Comment by dannii on December 6, 2010 at 1:25pm

Hi all. Anyone out there who bonds their hairpiece and does it really work? Also, where in the UK do you get your hairpiece made? Thanks guys :-)

Comment by Kathryn Michael on December 6, 2010 at 3:58am

GP's and dermatologists generally don't know what to do with us, whether we have one small patch (used to be me) or total loss (me now). You need to make sure that when you get referred you end up seeing someone that is going to be of use. Investigate your local authority to find who is a dermatologist that has either an interest in or specialises in trichology. We now have a say in who we get referred to you - Use that choice.
It is also really important to get meet others with alopecia, nobody else really understands what we are going through. Alopecia UK has a list of support groups around the country www.alopeciaonline.org.uk or message me for more info.

Comment by susan williams on December 5, 2010 at 9:31pm

hello all, recently been diagnosed with alopecia, no idea what type till i see dermatologist next week, are there any members in the pontypridd area who i could meet for advice?

susz

Comment by Paul dann on November 24, 2010 at 3:41pm

best of luck at the hospital. sorry to hear about the kids at school. @&*%@####

must be really tough on you all.

Comment by Lesa M - Jess's mummy on November 23, 2010 at 4:55pm

Hi I'm Lesa, Jessica's mummy. Jessica is 8 & began losing her hair on the 4th october it has now all gone after 6 weeksOnly seen the derm on the 15th November. she has been started on dermovate lotion, blood tests were also done, no results as yet? She got fitted for her wig today, bless... We feel that after an awful 5 weeks we have turned a corner & are feeling more positive. I'm not crying as much & Jess's temper has settled slightly... Kids at school though can be cruel, one tried taking jess's hat off her which did upset her..it infuriated me!! we go back the hospital in 4 weeks.

Comment by Ellie V on November 15, 2010 at 2:23am

Hi Caroline, same for me, the dermatologists have been very dissmissive, one actually said to me "well how should I know how to treat you, I'm not a hair loss specialist!" I found they had no interest in treating me after I said I dont want a wig.

Comment by caroline knight on November 14, 2010 at 6:46pm

hi im in n.wales does any1 know were the nearest group is 2 me? i think aw is so gud it has really helped me cope i have been loosing my hair for a year its almost all gone now:| im gettin a perscription for a wig on the nhs wich i have practicly had to beg for months! and have found the derm at the hospital very dismisive has any1 els had a perscription wig or a similar experence this has really upset me

Comment by Helen Wallwork on November 1, 2010 at 3:46pm

Alopecia Support Group meeting in Cambridge (UK) on 17th Nov - see Alopecia online site under support groups for mor info

Helen

Comment by shirley carole douglas on November 1, 2010 at 3:33pm

for a uk based social network website for all people with alopecia you can go to alopeciachat.com

Comment by The Be Bold Team on August 16, 2010 at 6:02pm

On Friday 30th July 2010 Cowboys and Indians from across the UK decided it was time to meet together at the first ever Childrens’ Alopecia Camp. Some travelling day and night to get there, everybody was pleased to return home to our roots in Scarborough’s Wild West, Pinewood Holiday Park.

The view was wonderful and it was amazing to see how life has changed with a lovely camp site now filled with Cowboy Shacks and Indian Tipis living side by side.

A warm welcome was available on hand from our wonderful hosts Kerry and Dave from Pinewood. Their shop stocked to the brim of new cowboy hats and feathers for our weary travellers.

After a lovely nights sleep in the splendid accommodation dawn broke where the sounds of Yee Ha were replaced by the sound of music. The Break Dancers had arrived! Two hours of twisting, bopping and popping proved to be amazing fun for the children. Watch out we certainly have a few stars in the making!

Lunchtime, we were treated to Sherriff David Dorward’s culinary delights, now that man sure can make a hot dog!


No cowboy weekend would be complete without a visit by a trusty horse and Jess was just that, fresh and ready on hand to treat our youngsters to a ride around Pinewood enjoying the spectacular views.


Just as Jess was getting a little tired a rumour spread around the camp their was a magician in town, so there was! Not just a normal magician but one who was prepared to share his secrets to our trusty kids! Two hours of learning new tricks proved to be so much fun, our magicians skilled to take their talents out into the yonder.


“What is that noise?” The magician asked. A strange sound had started echoing around the camp. Nothing to be alarmed about it was our incredibly talented Jazz Band “Jelly Roll Jazz Band”.


The sun was now out and sparkling on the camp, the atmosphere was electric. The band started to play and everybody started to gather outside the sheriffs office. Something big was happening in town.


After two hours of sensational music by Jelly Roll, the party started. Cowboys, Indians and Break Dancers all doing their thing. Little Cowboys, little cowgirls and little indians safe and secure in Pinewood now could enjoy the party!

The smell of BBQ’s suddenly was replaced by the smell of roasted marshmallows, dusk began to fall and the pit fire had been started. What an amazing experience children and adults all treated to a wonderful camp fire!

As night fell on Pinewood a wonderful day was remembered by all. Something happened on that day which was more than just luck, everybody went to bed knowing they had new friends for life but everybody could go to sleep knowing our scout Darren was to get up at dawn to book next year!

And so it happened smoke signals littered the sky, the Alopecia Camp would indeed be coming to town again but this time for three nights!

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