Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 90
Latest Activity: Jan 12, 2020

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

Comment

You need to be a member of Vancouver Alopecia Areata Support Group to add comments!

Comment by Tanya on July 6, 2012 at 1:30am

Whaaat! JLo, host doesn't need to prep anything!

Can't wait to see you all! Aw and the weather is going to be smashing! :)

Comment by JLo on July 6, 2012 at 1:10am

Hi all, on Saturday bring what you like, I've got organic fizzy juice, chips, gluten free, and salsa, gluten free crackers and a bit of cheese. When everyone gets here maybe we could take the chips and salsa to the beach. I usually go to a quieter area that I call the "Grassy Knoll". Look forward to seeing everyone!

Comment by Jana on July 5, 2012 at 8:27pm

I found an interesting page on Facebook - SCD Lifestyle. Check them out. They sponsor an on-line "Real Food Summit."

Comment by Chris Jeffer on July 5, 2012 at 8:24pm

I am eating non starchy fruits and vegetables and some chicken and fish - no carbs and a little wine every now and then ;) and feel great. I think baby steps are good - I have taken a lot of those to get to where I am today without feeling too deprived. I see this as a lifestyle now for me. Obviously I will eat carbs every once in a while (non gluten of course) but I feel better without them.

The problem we are faced with with our western diet is that carbs and sugars are the norm. So you are right we need to de-sensitize ourselves by weaning off of those processed foods. Sometimes I am envious of people I see eating hamburgers or lasagna, but really I am the lucky one - alopecia has forced me to make big changes and may have prevented a heart attack or cancer - who knows, eh? (always a silver lining :)

Comment by Jana on July 5, 2012 at 7:48pm

Well its the psycho-emotional element that is the biggest challenge, right? Identifying just HOW many things have gluten, and altering your diet so that you still enjoy eating but also begin to shift to seeing food is really about nourishing the body. Then stir in no processed sugar and LOOK OUT! No beer OR wine. ;)

Fuzz is definitely curious. ; )

Comment by Chris Jeffer on July 5, 2012 at 7:45pm

Wow - I would be interested to see what would happen if you gave up gluten (beer was another surprise) for several months - fuzz is good :)

Comment by Jana on July 5, 2012 at 7:40pm

Very true Chris. I have seen many alopecians post about being gluten free for years, with no hair regrowth.

I have been heading down the gluten-free path for a few months now, but am not fully there. The result I am seeing is the first bit of slight fuzz on my head in years.

Comment by Chris Jeffer on July 5, 2012 at 7:38pm

Sorry.... one more thing.... I don't want to imply that everyone who has alopecia has celiac's disease. It is just one thing that causes alopecia, and there are many more. The thing to note is that alopecia is a symptom of some imbalance in the body - for me gluten is a contributor, but it may not be so for everyone. Keep experimenting to find out what triggers your hair losss.

Comment by Jana on July 5, 2012 at 7:37pm

I was mostly curious as to those foods that surprised you, such as soya sauce. : )

From what you are saying then, it was mainstream testing that did not serve you well (re: celiac's). Thanks for the info Chris. : )

Comment by Chris Jeffer on July 5, 2012 at 7:36pm

I don't have a list of foods with gluten in them, but I am sure there are lots of web sites that can provide that. :)

 

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