Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 90
Latest Activity: Jan 12, 2020

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

Comment

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Comment by SilkHead on March 7, 2012 at 3:29pm

I can't make it, I have other commitments on thursday evenings between 7 and 9. Too bad. No thanks for the autograph.

Comment by Jana on March 7, 2012 at 2:40pm

I cannot make it, as my daughter has her last private swimming lesson. Await the deets!

Comment by Tanya on March 7, 2012 at 2:36pm

Just a quick reminder about Enzina's meetup tomorrow. I'll be there. While I'm there...Who wants a Shapiro autograph? :)

Comment by Tanya on March 7, 2012 at 2:11pm

@btflbaldgrrl Luv it! Can't wait to see it :)

@Plumeria I haven't heard of them / used their service. There are members in the group who have been to good naturalpaths, which could be a good direction too! :) Statistically people with alopecia are more likely to also have other autoimmune conditions. I think when they look for cures for MS and RA and other autoimmune conditions, it's expected that alopecians will benefit too :)

Comment by Jana on March 7, 2012 at 2:03pm

http://womenbehavingbaldly.com/

Looks like I will be interviewed for this multimedia project, for which there is a discussion here on AW. : ) Just setting up a skype time . . . .

Comment by Plumeria on March 2, 2012 at 11:47pm

www.ashleyrd.com

I was given this link today - I am inquiring about the correlation of alopecia and other immunology diseases. Has anyone seen this website before? Used their services?

Comment by Jana on March 2, 2012 at 9:29pm

http://www.youtube.com/watch?v=0kzCEmVHPxA

This Is Me campaign. Great video. Had to laugh when the young girl spoke of being lucky she can sleep in . . . When children at my daughter's daycare used to ask about my hair, I would explain, and then lighten things up by telling them I was lucky I could sleep in. : )

Comment by Jana on March 2, 2012 at 1:20am

I am happy to try tweeting with AAVan. I think it might be worth it to try at first without linking to FB. @Chris - How does that sound to you? I think in order to try to reach more Vancouverites, I might have to look to tweeting certain addresses, such as perhaps CBCRadio, etc. Following and being followed by British alopecians or other Canadians is not necessarily going to promote our support locally . . . Let me ponder, And if others have any ideas, please throw them out. I have not been tweeting for that long . . .

The Walk. My sense - from our discussions - is that the walk does not hold general appeal, even as a support activity. Let me offer this then . . . If there are any individuals in the group who have not gone out without hair/hat/or scarf and want to try, I would be happy and interested to meet you for a walk or cofffee, etc. It is not something I myself have done very often! Message me separately if this is of interest. : )

In terms of the Beach Walk discussion for September Alopecia Awareness Month, it is something I would like to propose to CANAAF. Given that we are in the process of extending the CANAAF reach westward, I would like to invite CANAAF to have their September meeting here in Vancouver. As part of their visit, they could meet our larger community, but we could also hold the beach walk as an awareness event. This is just an idea for now, but it might be a better approach in terms of awareness, if CANAAF is interested. If any members of our local group are interested in helping organize such an event, please post in the related discussion.

Happy Thursday night all! : )

Comment by Tanya on March 1, 2012 at 10:58pm

@Dana Wow, thanks for your post about the phone chat! It totally brightened my day! I had no idea, and thought I wasn't being the best first person to talk too :)

@Sandra That's so great about the CTV coverage! Make sure to share the link with us when it's up! How was the Calgary group meetup today?

@btflbaldgrrl Appreciate the enthusiasm! Would like to see more members join us. Do you think you can use some of your twitter savvy to reach more Vancouverites with alopecia? Via @AA_Vancouver if you can. I like the beach walk idea (and I have another cool idea too). Though personally I think it's too early to do this type of outing, simply because we don't have enough members who are in the awareness-raising frame of mind. However everything starts somewhere, even if it's just a small group of friends hanging at the beach the first time :)

xoxo

Comment by Dana on March 1, 2012 at 4:35pm
Not me but I only use Facebook for keeping in touch with family and some friends and because my son uses it also I have only told my immediate family so that would be awkward for me still figuring out how to do that:)
 

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