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Comment by Jana on March 1, 2012 at 12:53pm

Anyone else getting this advert on Facebook?

http://www.thehealthchain.com/index.php?adcondition=ALOPE&refer...

Comment by Dana on February 28, 2012 at 9:52pm

@tanya..no need to bring the body shop eyebrow stuff for me I bought it today :) the packaging is different but they promised the product is the same will try it out thanks for the tip!

Comment by Jana on February 28, 2012 at 8:26pm

http://video.today.msnbc.msn.com/today/46556440#46556440

For those who missed Olivia Rusk on Today, today.

I had meant to simply share this, but feel I should note that I was really struck by this interview, as Olivia gives words to why I have never felt able to wear a wig. She says - I felt like I was hiding myself. I am sure many wig wearers do not feel that they are hiding, but for me, this statement pretty much sums up my own feelings in a way I have never been able to articulate. So simply . . .

Comment by Jana on February 27, 2012 at 9:05pm

Such great feedback Dana! Thank you for sharing!!!!

I think what is key - from within the group - is that not everyone is able to do what Tanya did - amazing, btw! - and so we need to know who those people are, and make sure they have the information they need in order to support someone in such a phone call. We also don't want Tanya to burn out! : )

I have wondered about (a) a list of names that can be used to provide someone with "first contact" and (b) a buddy system, in which those who may not be ready - or want/like - a group setting, can meet with someone individually and gain support. These were both ideas on the "map" I created, which is in Google Documents, if anyone would like me to share it with them (message me on here privately).

It is going to be so incredible, when we can circulate contact information to doctor's offices!!!

Comment by Dana on February 27, 2012 at 8:58pm

Hi ladies I can only speak from a newbie perspective but my derm had no info for support groups she said to call shapiros office and they would provide info when I did those answering the phone said I would have to wait till I see him (in 6 months what a joke)....very bad I felt very isolated until the receptionist at my first derm office said to check the Internet then I found AW and the NAAF but the best was my first conversation with Tanya I was not alone!!! And she talked on the phone with me for at least 45 minutes it was like someone threw me a life ring and then of course the meet ups this has helped me immensely!

Comment by elenore ahlsten on February 27, 2012 at 6:16pm

sorry girls, no beach walk for me!

Comment by Jana on February 27, 2012 at 6:16pm

Hmmm, I feel a discussion coming on. ; ) I will start a discreet discussion for the beachwalk. Those interested in helping organize, please add your names.

Might be a bit too early to put names forward for the walk itself - take time to think about it? - but if you are decided, then please do put your name down. I think we could approach this as the Calgary group has done, something that respects the privacy of the group.

Comment by Jana on February 27, 2012 at 6:06pm

That is so fabulous Sandra! Congrats to your group and to Vanessa on her nomination!!

Vancouver Alopecians, we need to talk further about our beach walk. Perhaps in September, for alopecia awareness month? We could do something similar to Calgary in terms of privacy, and also identify only those willing to speak to the media . . . .

Comment by Sandra Fournier on February 27, 2012 at 6:02pm

Just wanted to share with everyone....might give you an idea to spread the word about your Vancouver group. My friend Vanessa who is helping with the Calgary Support Group has been honoured with a nomination for Women of Vision Award...as she also has a unique Mobile Wig Service in Calgary. Anyway, they are sending a CTV News Team to our Support Group this Thursday to talk about the group and bring awareness to Calgarians. They have promised to keep the news footage very private, by only showing hands, back of heads, voices etc., but this awareness will hopefully reach others.

Comment by Jana on February 27, 2012 at 5:10pm

I will put this in "art and words" discussion for easier access in the future, but also wanted to post here in case not everyone checks the discussions.

http://today.msnbc.msn.com/id/46545453/ns/today-books/t/teen-who-ha...

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