Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 90
Latest Activity: Jan 12, 2020

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

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Comment by Jana on January 17, 2012 at 5:06pm

I would like to throw out a question for consideration. I have been thinking about isolation and alopecia. Setting aside the idea that regardless of life experience - we have to come to our own sense of self in our own time - is there something about alopecia as a "social disease" that particularly isolates us, such that there is greater difficulty in building community? AW and CANAAF and Bald Girls Do Lunch . . . . These are all so revolutionary in taking us outside of ourselves, to begin to lean on not just others, but other alopecians, which I see as significant. : )

Comment by Jana on January 17, 2012 at 4:47pm

Silkhead and I have been sidebarring a lot about self-awareness and acceptance, and now critical this is in terms of supporting our community. Perhaps it is having had alopecia for most of my life, but I just don't see myself as sick or ill. If my hair were to miraculously start growing, to be honest, I would have to address that as a "problem" because I have come to accept myself most wholly as a bald woman. Yoga and good diet, those are just things I do for me, well beyond my lack of hair. I focused a lot of time and energy in my teen years on growing hair . . .Nights laying very still on my pillow so that the Rogain would not absorb into my cheeks . . . Now I want to live, and a core part of that - for me - is living joyously, as a bald woman. Love all this sharing of perspective!! We are building a great community.

Comment by Deeann on January 17, 2012 at 4:40pm

How awesome. I think we could all probably open our own self-help clinic with all that we know and have learned from this.

Comment by Chris Jeffer on January 17, 2012 at 4:37pm

Wow, Cat....... you have done it again - opened that glorious can of worms! I love it!!!!!!
Cat got me on to hypnosis, which I have been doing and had great success with. I am going to yoga regularly, I meditate, get regular acupuncture and massage treatments, and I don't eat wheat, eggs or dairy - and my hair is growing. I am also starting another type of therapy, which I will fill you in on when I see everyone in February. I have always believed, just as Louise Hays averts, that we can cure ourselves of anything. It means we have to do a lot of work and soul searching to figure out where the root of the illness exists and go from there. For some this is very very painful and for people like me, it takes a long time before you open up to what the source of the illness is. I think I am getting closer, but whatever the outcome, I completely accept myself now with or without hair and that in itelf is huge for me.

Comment by SilkHead on January 17, 2012 at 2:57am

@ Cati. I started seeing a life coach awhile back. The most influential thing that's created such a change in my life was reading Louise Hay you can heal your life. I also have a meditation cd of hers I use when i'm driving. It's amazing what the affirmations can do. I tried just starting with 3, everyday, everytime I looked in the mirror, I looked deeply inside and said them. The tears came, much like you said, but it's soo healing. So now, throughout my day, I say the affirmations. I've also done other work. I just keep doing the affirmations. I feel like a new person and I believe more than ever. I am hoppy you shared that. I am looking forward to meet you!
I will make a copy of the Louise Hay meditation cd I have for you.

Devan :)

Comment by Jana on January 17, 2012 at 2:41am

Look at us nightowls! : ) For me, it's yoga. The focus that comes with the practice, is something that I can tap into at almost any time. And it also that look in my daughter's eye when we communicate, as I want her to see that I feel whole, so her presence stands as a challenge to define what that means to me. Cheers.

Comment by Deeann on January 17, 2012 at 2:37am

Thanks for sharing Cat. I look forward to talking more about it soon. I saw a hypnotist a few weeks back, and they shared a technique called EFT (can't remember what it stands for now), but it's positive affirmations with tapping on pressure points on the body at the same time. I felt really good after doing it. I'll try to look it up on you tube to make sure I have it right before I share it with you all. I thought it was a bit hokey, but really did feel better.

Comment by cati on January 17, 2012 at 2:32am

Sorry, here's a link to the video "Louis Hay You Can heal your life" http://www.youtube.com/watch?v=SpOGpqZVb4I

Comment by Jana on January 17, 2012 at 2:31am

Cati. Wow. Thank you so much for sharing of yourself with us in this way. : )

First off. Urinary tract infections. When they are bad, they need to be treated, as they can sneak into your kidneys and be very dangerous. But yes, we do often carry small amounts of bacteria with no symptoms. Drinking lots of water to flush is one of the most effective approaches, as it pure cranberry juice or capsules.

But beyond our physical health, you have touched on the core of what Silkhead and I have been side-barring about, and candidly, I think it is something we - as alopecians - often avoid as intensely as we possibly can. Why? Because something is going on in our bodies that we do not control, but confusingly, it is not "hurting" us. At least this is my view. I think there are so many things we can do to support each other in our individual journeys to however we might define self-awareness when we look in the mirror. Alopecia is just one part of who we are, but in how overt it is, it can almost personify all that poses a challenge to liking who we see each day. For me, there is one affirmation - and only one - that relates to "having" alopecia: I am beautiful because I am bald, not despite that fact. All the other affirmations I hold, well they are influenced by my alopecia, but I am so much more than a bald woman, in the sacredness and wounds that I carry with me.

Blessings Cati!

Comment by cati on January 17, 2012 at 2:19am

Hellooooooooooooo,,

So, I have an interesting story.. I had a urinary test as part of my physical exam and tested positive for Urinary Tract infection however I did not have any symptoms. The doc advised me to take antibiotics which I did not want to take.. As, I have mentioned to some of you that I had chronic ear infections, strep throat and Tonil infections and each time the doc would give me another round of antibiotics.

I was taking 2-3 rounds of antibiotics each winter. It got so bad that the doc advised I should remove my Tonsils and that I may start to lose hearing in one ear.
I decided to do my own research, self-diagnosed myself as having leaky gut syndrome. I decided to do a three month candida, parasite and colonic clease. It has been 6 years since I've had an ear ,strep throat or tonsil infection.. You can understand why I was so resistant to taking antibiotics especially since I did not have any symptoms.

Against by gut feeling (no pun intended:) I decided to take it. The first day I started getting pain in my ear and throat then went away, the second day my stomach started to hurt then I went to work and randomly read an article on the 24h paper. The article was titled "Doctors tend to over-treat urine bacteria:study" I continued to read the article.. "in a study of patients with bacteria in their urine, doctors prescribed antibiotics to one in three who had no symptoms and no evidence of urinary tract infection. In those, the bacteria probably would have disappeared on their own without causing any problems,researchers said, and treating those patients would increase risk of antibiotics resistance without any real benefit".... So, I decided this was a sign and stopped taking it.

Just to add to that I have been tested positive for bacteria in the Urine since Sept and to this day I still don't have any symptoms.

I strongly believe in overall health, in the way we live, eat and think. I found this video on Utube, I really think that its important to feel good inside in order to help the body begin to heal itself. Please, watch "Louis Hay Can Heal your life". At first I thought it was flaky and cheesy but for some reason I decided to try it... I stood in front of the mirror and read positive affirmations.." I love myself, therefore, I behave in a loving way to all people for I know that which I give out returns to me multiplied, "I love myself, therefore I forgive and totally release the past and all past experiences and I am free".I read only two of the affirmations out of 9, I couldn't finished reading.. I started crying so bad that my eye lids were swollen. I realized that myself worth was very low. I decided to keep reading affirmations till I could read all the affirmation without crying..It took me three months.

I would like you to be open and stand in front of the mirror and read the affirmations to yourself and see what happens. http://www.aplacefortheheart.co.uk/frame.php?sp=/louise_hay/affirma...

I hope you guys are doing well:)

 

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