Alopecia World
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Vancouver Alopecia Areata Support Group
Information
Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)
Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.
If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)
Location: Vancouver
Members: 90
Latest Activity: Jan 12, 2020
Upcoming Meetups
This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.
Join us here and we'll send next meeting details to you in a group email!
You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com
We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).
Next meet up: We meet about once a month. Please email Tanya at the emil address above!
Discussion Forum
Tips: Best Places for Hair Piece (Available to Vancouver)
Started by Tanya. Last reply by Sher Nov 6, 2015. 20 Replies 0 Likes
Tips: What works well for me emotionally
Started by Tanya. Last reply by Tanya Aug 15, 2015. 6 Replies 0 Likes
Tips: What works well for me physically (health, hair growth)
Started by Tanya. Last reply by lookswow Oct 18, 2014. 3 Replies 0 Likes
Comment Wall
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Comment by Tanya on January 15, 2012 at 6:01pm
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I do think it's just because they are starting up, and are in the process of expanding.
btflbaldgrrl you're right, they are lacking at the moment in listing more support groups to cover all of Canada. It's something we can definitely push them towards, and help them with. They are all volunteers with day jobs after all (whereas NAAF has paid staff). From talking to Alison, they are supportive of ideas such as CANAAF Vancouver. It's great timing for us, to be able to aid them in their expansion for all Canadians :)
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Comment by Jana on January 15, 2012 at 5:49pm
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PS I stared up on Twitter last year, and did not really enjoy it much, until I happened upon all these alopecian tweeters. It seems to be a really interesting way to make connections, beyond websites and groups.
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For all: I have been sidebarring with Devan, and have also mentioned this to Tanya . . . I think it is a bit misleading to call themselves CANAAF when they are so Toronto-focused. Perhaps it is just because they are starting up . . . I noticed an Edmonton support group is listed . . I wonder how they would feel about CANAAF Toronto, CANAAF Edmonton, CANAAF Vancouver . . . In a social media world - and with an illness like alopecia, which can be so isolating - precision is key, in terms of information sharing . . . My two cents in this moment. : )
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Thanks Deeann! I just got back this morning! Had a great trip, amd met with Alison, a board member of CANAAF. She was fantastic. Can't wait to share what I learned about CANAAF at our next meetup! In one sentence, CANAAF is volunteer based, originated out of Toronto, and the vision is to give more localized support and resources to Canadians with Alopecia (more so than NAAF that is, as their resources are US focused).
ps. the Toronto alopecial support group has over 100 members, and they have sub-groups for parents of children with alopecia, kids with alopecia, teenagers with alopecia, adults with alopecia, etc.
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Comment by Deeann on January 12, 2012 at 11:04am
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Have a good trip Tanya. See you soon.
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Hey everyone! I happen to be in Toronto, and will likely get to meet a board member from CANAAF tomorrow (Friday), since they are based in Toronto! If you have questions that are easier to ask in person, let me know and I'll bring them up. Cheers!
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Elenore, can't wait to catch up! And sounds like you have a lot of news and info to share too!
The 600 is an estimate based on 0.1% of the population at any given time to be experiencing alopecia (since it comes and goes for some) :)
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Love the energy we are building. It is very honest, active, and open. : )
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Comment by elenore ahlsten on January 8, 2012 at 1:22pm
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Those 600 must be hiding somewhere. We'll find them if they want to be found. I've been to Enzina's group. She's a sweetie but I'll tell more later.
By the way, Tanya, Chris, I'm not with PKS anymore. Again, more later.
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Comment by SilkHead on January 8, 2012 at 1:04pm
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Oh excellent. Yes. I have been going back into my past lately when my hair began to fall out. It's brought about all these problems I went through with doctors, finding wigs, bad experiences with dematologists and I was sent to UBC to be a test subject with their immunotherapy or whatever it was project. It was so hard to find wigs, everything for me. I hated the world. I like many others here it seems want to help others make their experiences easier and raise awareness. Tanya I love your thinking! Excellent. I cannot believe there are 600 alopecians in Vancouver! In BC there should be alot more and many from the interior and north have to come to Vancouver to get wigs if they choose to wear them. Ah, i'm so excited February 2! It's my dream to meet a bunch of people with alopecia. I'm crying already.
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