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Comment by elenore ahlsten on January 8, 2012 at 12:05pm

I have been to derms, doctors, and wig shops, so I can give you some ideas of of how to go about this as I didn't have great success, but I think it's a great way to go. Will share more when we meet.

Comment by Tanya on January 8, 2012 at 2:10am

Hi SilkHead! Very cool ideas and works in progress! I can't wait to meet you!

I share a lot of your vision, and I think many members do too! :)
I'd like to see us reaching to dermatologists, doctors, schools, wig shops, so that people without alopecia will know what it is, and people with alopecia will know where to get support. There are at least 600 alopecians in Vancouver. I know together we can do a lot!

Enzina is a lady who also has alopecia, and is currently running the Vancouver NAAF affiliated support group. She's been running it for over 20 years. She goes to school to educate kids about alopecia, which, I'd love to do too. I'll send you her contact to your email address.

Comment by SilkHead on January 8, 2012 at 1:58am

My goal in all of this is to go to schools with Kids with Alopecia and educate and inspire them. I would like to work with local wig shops to provide a safe place for people to go. Many people don't even know where to start when their hair falls out. I would list places and information on the website. We could have support groups and activities for alopecians to connect. I am hoping later on down the road to have summer camps for children with alopecia as well. Theres lots of ideas. So much to do. I am excited about all this. I didn't want to say anything til I had a chance to meet all of you. I am really looking forward to that and hearing others stories.

Comment by SilkHead on January 8, 2012 at 1:54am

Actually, I don't know about this Enzina, what is it?
I was going to come to the group with information and work I have been doing with CANAAF to create a support network in BC. I am hoping to get some help. I have almost finished creating a web page. I also am nearing the completion of a document for creating a foundation in BC as a resource for Alopecians. I have a really good connection for Community Investment and fundraising and he is willing to help when everything is set and a board has been created. I know some of you have been meeting for awhile. What do you think? I have lots of ideas, and well I am at the stage where I am able to dedicate my life to this.
That is why I was hoping we would meet in January. But February is good as well. I will have more to share then. Any one who wants more information please contact me, I could use some help moving towards a BC Alopecia Foundation.
email: devan.ritchie1@gmail.com

Comment by Tanya on January 7, 2012 at 8:54pm

I think Enzina's group is under NAAF. I don't think NAAF and CANAAF are related at the moment.

I sent them an email today to ask about their goals and their relationship with NAAF :)

Speaking of Enzina's group, we should let them know about the upcoming gathering!

Comment by Jana on January 7, 2012 at 8:43pm

OMG. Wig and Wine. Love it! But what about Enzina's group? Will they become the Vancouver CANNAAF?

Comment by Tanya on January 7, 2012 at 8:39pm

Yes, CANAAF. See the link in my prev post!

Also, Sandra in Calgary contacted me recently. She started an informal group there! Yay! (They had a formal one before, but it dissolved). So if anyone is going to Calgary, check them out ;) They call the group Wig and Wine - hahaha.

Comment by Jana on January 7, 2012 at 8:33pm

Canadian NAAF?

Comment by Tanya on January 7, 2012 at 8:04pm

Just learned about the Canadian NAAF!

http://canaaf.org

Comment by Tanya on January 7, 2012 at 2:37am

Perfect! I will post the date on Craigslist and heralopecia.com too.

In the next few weeks, spread the word about this upcoming get-together! If you come across any alopecians in the street, go to a hair piece shop, visit a hair stylist, or visit a family doctor / dermatologist - let them know about the meetup!

I know sometimes it's awkward to talk to stranger, let alone telling them that they there's a support group for their alopecia. I always imagine that if I were the lone person who never met anyone else with alopecia, I'd love to hear about the group - this helps me go ahead and talk to the person. When I saw Connie in the mall I wasn't exactly subtle, haha. I was like, "Do you have alopecia?" *wide eyed with a big smile* lol. I think in the future I'd start with: "I have alopecia and there is a bunch of us with alopecia that meet and eat every month,.. "

:)

Looking forward to seeing y'all!
xoxo
T

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