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Alopecia Ontario

Searching for fellow Ontarians with Alopecia. I have been dealing with alopecia for the last 20 years, and I'm finally done dealing with it alone. Is there anyone out there?

Members: 51
Latest Activity: Aug 25, 2018

Discussion Forum

Frontal Fibrosing Alopecia

Started by Rita - Canada. Last reply by Jade Hawkins Jan 2, 2014. 2 Replies

Hello, recently joined this group which appears to have all types of Alopecia. I wondered if anyone has been helped with this affliction. I had been diagnosed at Sunnybrook in the fall of 2012 and…Continue

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Comment by Jennifer Krahn on October 13, 2013 at 9:27am

Freedom Wig consultations in Ottawa October 18th and Toronto October 19th. Please get in touch if you or someone you know is interested in more information. www.imageevolutionhair.ca. Happy Thanksgiving!

Comment by Casey on October 11, 2013 at 10:56am

Oh and I should add that reaction to DCP is different for everything and the AU regrowth success rate isnt very high, but SOME people are lucky enough to have it work. Plus they start you off at a super low dose and work up higher and higher

Comment by Casey on October 11, 2013 at 10:54am

Im in DCP right now. I dont react that much to it (not much itching) and once and awhile I break out in some blisters, but they actually arent that bad. Ive been on it for a year with only minimal regrowth that isnt steady so Im probably going to stop treatments next month.

I wear my wig just fine! it dries in seconds so you can throw your hair back on right after

If you are in Toronto, there is a clinic at Sunnybrook Hospital. My regular doc got me a referral.

Comment by Jennifer Krahn on October 4, 2013 at 7:22am

I know one of my clients has had some success with DPCP. She uses it for her brows and they have been staying. She had suggested I try the DPCP as I have regrowth happening all over the back of my head and my client was saying the the DPCP would help with getting hair back on the sides of my head. I'm tentative to any treatment as I had a ton of needles injected into my head when my alopecia hit and that resulted in headaches and a skin rash. Maybe one day I'll try again...

Comment by Jennifer Krahn on September 28, 2013 at 9:05am

Hi all,
I will be in Ottawa and Toronto for Freedom Wig consultations. If you or someone you know is interested in a Freedom Wig and would like a fitting or free consultation please get in touch.
www.imageevolutionhair.ca
Happy Fall!
Jenn

Comment by michelle on September 27, 2013 at 9:26pm

Ignore that. Have your doc refer you.

Comment by michelle on September 27, 2013 at 10:18am

Sunnybrook is the only hospital in Ontario. You have to go once a week for the treatment. The success rate is higher for those with patches as opposed to those with AU...which I have. Good luck!

Comment by michelle on September 27, 2013 at 9:57am

Hi Lily and wisel....I followed up after my GP referred me to Dr. Lomoga and saw him pretty much right away.

Lily I wish you luck with Sunnybrook....As I said I stopped after 4 months..had the same experience as you. I have had no spontaneous regrowth...

On the bright side I am now living my life bald....I haven't had to shave anywhere in over a year;-)

Comment by Jen on September 26, 2013 at 8:08pm

Hi,
I live in Toronto and have been diagnosed with FFA since 2012. I suspect that I had it for a few years prior. I barely have any eyebrows and have list 1 to 1.5 inches of hairline all around my head. Since my hair is extremely curly, I have been pulling it forward and hiding the effects. My derm last saw me said "you really have a problem here". I do not think that he can help much except to do injections which he says will thin the skin. I am not sure if I should stop fighting it. just accept, it and move on with my life. I have no itching or any indication that my hair is falling out but after a shower, I have bald spots. I am looking for advice on hairpiece ideas to cover forehead and temples at this time.
Thanks, Jen.
Jen.

Comment by Lily on September 26, 2013 at 2:25pm

Hey michelle! I saw Dr. Lomoga today. he is refering me to Sunnybrook for the DPCP treatment. i did it four years ago for four months and i had no results. The itch on my scalp drove me nuts! I'm going to try again to see if I have any different reaction. My aplopcia is almost totalis. I just have a few hairs on my head and they are all white without pigment. I look really kind of freaky. Thanks for the name of the dermotologist I really appreciate it.

 

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