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Alopecia Ontario

Searching for fellow Ontarians with Alopecia. I have been dealing with alopecia for the last 20 years, and I'm finally done dealing with it alone. Is there anyone out there?

Members: 51
Latest Activity: Aug 25, 2018

Discussion Forum

Frontal Fibrosing Alopecia

Started by Rita - Canada. Last reply by Jade Hawkins Jan 2, 2014. 2 Replies

Hello, recently joined this group which appears to have all types of Alopecia. I wondered if anyone has been helped with this affliction. I had been diagnosed at Sunnybrook in the fall of 2012 and…Continue

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Comment by CJ- Christine from Ottawa Canada on September 11, 2012 at 5:18pm

HI all,
I'm 52 - but I FEEL young. Can I join? I'm single, losing my hair to scarring alopecia and am struggling with it - really struggling. I'm from Ottawa. I'd love to connect with more alopecians and get to a place of acceptance.
Ironically , I'm involved with the Canadian Skin Patient Alliance - have been for years for other skin stuff, and now have another skin disease - namely Frontal fibrosing alopecia.
do any of you get together? Go to the CANAAF sessions in toronto?
Do you feel like you've got access to excellent dermatologists who really know alot about your disease?
thanks, Christine

Comment by Jade Hawkins on September 11, 2012 at 9:23am
Hey Amanda, Youve came to the right place! I believe Laura, Courtney and Ray are currently from the T.O region! hope that helps
Comment by Amanda on September 10, 2012 at 9:12pm
Hello everyone! I am hoping to connect with people in southern Ontario/Toronto. Hope I am not too old for the "young adult" category! :)
Comment by kelli morrison on June 22, 2012 at 11:45pm

Jade ur picture of u is beautiful i wish i could look at myself and say that i have had alopechia for four years it started to happen after i had my second child she is almost 5 now and doesnt remember ever seeing me with hair i hope one day it grows back , i always forget to come on this site thank u for commenting back i really appreciate it i jus wish i could meet someone in sudbury ontario with the same condition .

Comment by Jade Hawkins on May 1, 2012 at 10:11pm

Hey Laura! Great to have you, new member?

Comment by Laura M on May 1, 2012 at 12:55pm

Hey from Toronto!! :)

Comment by Jade Hawkins on January 20, 2012 at 10:58am

Hey Courtney, Raymond, and Kelli!! Sorry for the late reply.. Aloepecia world is a great website, but as you can see Im not a frequent user.
Courtney- Welcome! no, unfortunaetly Im not from niagra, Im in Ottawa, but our new friend Ray is in T.O I believe..?

Ray- this picture I took in my home, and is the first picture I took of myself without a wig. Pretty big moment in time for me (posting it on the web and all) as far as facebook goes...well Im not exactly in favor for the way facebook has obsorbed so many people, but I do believe facebook has another good community of alopecia members. Keep that in mind!

Kelli- from what it sounds like you and I have dealt with our emotions very similarly, shutting everyone out, the desire to 'fit in', living with the paranoia of everyone staring you down. Some people deal with alopecia very easily. And then unfortuneatly there is people like me whom have taken nearly 20 years to accept it. Accepting who you are and what you look like isnt something that happens over night, it takes alot of work, alot of heartache. You didnt say how long you've had alopecia, but I have a feeling its only been a few years?

You should read my blog; This is me by Jade hawkins
Thanks for joining guys!

Comment by kelli morrison on November 30, 2011 at 6:03pm

Hi im kelli i live in sudbury ontario , i deal with my alopechia alone as well i lost all my hair eyebrows n eyelashes right after i had my second child 3 yrs ago i havent been able to meet people in this town with alopechia i wish i would because it would be nice to talk to someone with kinda the same problem .. alopechia changes u the way u feel n look i stopped talking to all my old friends because i was afraid to tell them what was going on ..if u ever want someone to talk too . i can listen

Comment by Raymond on November 30, 2011 at 4:01pm

Hello. I'm from Toronto. Yes I'm a Leaf fan. Glad I can make this group to 10 even though there has only been one post in the past year. Hoping my addition can initiate some activity. I do not have a Facebook account so this is my social media exposure.

Jade, nice pic. Where was that taken?

Comment by Courtney on March 7, 2011 at 9:49am
Hello fellow Ontarians!
Anyone in or around the Niagara Region?
 

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