Frontal Fibrosing Alopecia Discussions (350)

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Hair, skin, nails vitamins.

Started using hair, skin, nails vitamins about a year ago. They seemed to help. Got light growth around my forehead and temples. Growth see…

Started by Anonymous

8 Mar 17, 2018
Reply by Marytee

Low Estrogen and Tamoxifen as Risk Factors

Hi All, I mentioned before that I get alerts when new research about FFA is published. I found this interesting, as when I was in my mid-2…

Started by Jess

14 Mar 17, 2018
Reply by Pascal

Treatment cycling back: intralesional steroids

I've been reading more about them, especially since my latest derm, whom I really like, says that she has had success with them for FFA suf…

Started by akb

19 Mar 7, 2018
Reply by Liz Lov

Custom Hairpieces - Temples

Hi Ladies. For those who have hair pieces, what do you have? No Lucinda Ellery in Chicago, so that's not an option, but I have gone to a fe…

Started by MnM

13 Feb 13, 2018
Reply by Maz

Essential oils

Hi Everyone! I saw some posts in the comments regarding essential oils, so I thought I would share my experience with EO's thus far:)  I wa…

Started by April

14 Feb 11, 2018
Reply by Plf

Acutane

After someone posted a study on the effectiveness of Acutane on FFA I spoke with my Derm who wrote me a script for it.  Is anyone using it…

Started by Marian

5 Feb 11, 2018
Reply by Plf

Low Dose Naltrexone

Anyone Know anything about this?  I've been investigating...

Started by DragonandFox

8 Feb 7, 2018
Reply by akb

Dr Jeff DONOVAN, Has anyone here been treated by him?

Have been reading Donovan Medical site recently. He specialises in hair loss disorders, in Canada. He seems to be one of the few dermatolog…

Started by Jules Australia

0 Feb 6, 2018

FFA sufferer@37yrs

I am new to this site. I've been suffering with FFA for 6yrs now. I'm 37 and right after the birth of my daughter I got FFA. Took me 2 yrs…

Started by Lexi

29 Feb 4, 2018
Reply by MnM

Cellcept

Hello! Has anybody gone the Cellcept route with treating their FFA?  My dermatologist has suggested that I start taking Cellcept and I am w…

Started by KarenD

3 Feb 4, 2018
Reply by Lara79

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