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Comment by Figarosmom on December 2, 2011 at 9:13am

Thank you Susan for you kind words. I know exactly how those ashamed, insecure, depressed people feel because I am one of them. :) I am hanging on the edge so to speak. The last few days I have been especially down again and I don't know why. Anyway. What do you think causes the groups to fail. Do you see any pattern?

Comment by Susan Innes on November 30, 2011 at 7:24pm

Thank you to all who are joining this site. Josh, congratulations on the your fundraiser. Hopefully there will be others in this area to help if you decide to try something again. Sherry, I'm sorry to hear about this new hair loss; unfortunately, I don't think the Milwaukee group is still having meetings. It had gone from adults to parents with affected children (hoping for more success but still succumbed to low interest). I've participated in Milwaukee groups in the past that have also failed in their efforts. (I can only tell you that there are probably thousands in the southern part of the state with alopecia or related hair loss but this type of condition often makes people feel ashamed, insecure, and depressed so it's hard to locate those who have been diagnosed with it. Sometimes the Dermatology nurses will have people contact me.)

Comment by Figarosmom on November 30, 2011 at 1:57pm

Okay I think need to post back since I didn't say all that much compared to you Josh. ROFL! I live in Waukesha and was "diagnosed" the day after Labor Day this year. I use that term loosely because I have 2 different diagnosis but that is typical with my hair loss. Women go through this all the time with dermatologists and AGA/TE. I have visited the NAAF web site and I thought I saw support groups in Miwaukee. Am I wrong? I just don't know if someone like me can join. My logis is hair loss is hair loss. The emotions are the same and that's much of what a support group is about. I am also a big advocate of awareness and fund raising. Since my diagnosis I am shocked and appauled at the ignorance out there. I had some understanding of hair loss before I was diagnosed, but seems even doctors know little. Anyway... I am looking forward to visiting Kiah's Alopecia page. Both your daughters have beautiful names. BTW mine is Sherry.

Comment by Josh and Kiah on November 30, 2011 at 1:27pm

I agree. I'll start by saying I live in Milwaukee with my two daughters Kaycee and Kiah. Kiah has had AU for about 5 years now. This past summer we went to our 4th NAAF conference and it was the best one yet. Thank you Susan for getting this group going. I wish I would have thought to start a group on this site earlier. Ever since Kiah was diagnosed with AU we as a family have been out trying to raise awareness and funds as much as possible. This past summer we put on an event that raised over $10,000 for NAAF! While this was great we were only able to get one other family in WI to be involved. Like you Susan we had hoped that we would be able to pull people together to build a local Alopecia community. I think this is a great first step to making that finally happen. I would invite you all to check out Kiah's Alopecia page that has a lot of pictures and videos from the various alopecia events and news stories we have been lucky enough to be a part of. It's another way for us all to stay connected and informed about one another is doing. Here is the link. www.facebook.com/KiahLAlopecia

Comment by Figarosmom on November 30, 2011 at 1:13pm

Hello everyone. New to this site and am glad to see the beginning of a Wisconsin group. I have AGA as an FYI. Thanks Susan for creating the group. Let's not be shy and get some conversation going. Get to know each other.

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