Comment

Comment by Halfbakedwho on December 10, 2017 at 12:03pm

am having a recurrence - there are times when my hair falls out faster than others. I just went to the specialist in Paris 10 days ago, and she changed my treatment a bit. This has not prevented my hair from decided to come out more quickly RIGHT AFTER HAVING SEEN HER. Grrr. Am going to call tomorrow just to let her know. She said the next step is the injections, but maybe I need them sooner rather than later. I am esp. worried about the patches appearing on the top of my head... along with a sort of pimple that inflamed then the hair fell out - and there's some itching. All while taking the Clobestasol and minoxidil. I am thinking that I will visit the hair (wig) place soon even though I'm not ready for it - just for reassurance. Have learned it's the lichen planopilaris but not auto-immune, which is good I suppose. Have not lost eyelashes/eyebrows (knock wood). Thank you guys for listening. 

HBW

Comment by illustr8r on December 3, 2017 at 11:47am

Hi Sammy-I have ridged thumbnails and index fingers. I take Biotin 3 times a week (1000 mg) and my nails are strong and don’t split. I bought s 3 sided nail file at Walgreens. One side is “smooth ridges” next is “smooth nail” and the other is”shine nail”. It does a good job of making the ridges less obvious.

Comment by sammi on December 3, 2017 at 11:20am

Help! Does anyone have problems with their nails mine are splitting vertically and my nails are now all ridged. The ridges don't bother me but the splitting is painful any suggestions? I suppose it's all connected to autoimmune disease Ffa

Comment by Isabel on November 30, 2017 at 4:52pm

@Airam-FFA hi! I'm also a firm believer in that there is a relation between FFA's onset and stress, from personal experience. This includes both other cases of FFA in my family.

Comment by YummyMummy on November 23, 2017 at 10:51am

Thank you Annie May for your lovely thanksgiving message. I hope you enjoy a wonderful day with your family and sending you warm wishes from over the pond.

Comment by Donna on November 23, 2017 at 3:15am

Thank you Annie May. I’m glad to have found this site also. Happy Thanksgiving to all.

Comment by AnnieMay on November 22, 2017 at 10:52pm

Hi all- As I prepare for Thanksgiving tomorrow with my family I think about all of youcourageous ladies here on this site from all over the world. We all have so many different stories to tell as we try to work through this disease everyday. On this forum we share those very personal stories with each other and I am so thankful for that. Happy Thanksgiving from Oregon!

Comment by Airam-FFA on November 21, 2017 at 1:40pm

Hi yummymummy

I have also seen Dr Fenton and have a different treatment. I don’t live in London so only managed to get a referral to see David Fenton after several requests to my own GP and Dermatologist. My treatment now has to go via my own dermatologist.

I am eagerly awaiting the results of the research, as like many on here, I took part in the research study. I was told that there might be a link to onset of FFA from stress ...

I am not sure about the two year burn out! - If that is the case then we wouldn’t still be suffering for four plus years in my case; and many are much longer.

It is good that you have found a treatment that is stopping the progression of your FFA.

xOx

Comment by maggie on November 21, 2017 at 7:01am

Thank you Yummy Mummy.  I have been on birth control pills and hormone replacement almost all my life, (I'm 69). I am suspicious of 

 that having something to do with my FFA. I wonder how many of us with FAA have similar histories. 

Comment by YummyMummy on November 21, 2017 at 3:29am

Donna, yes, Dr Fenton told me that the average time from onset to complete burn-out is about 2 years. I don't know Premarin cream but have just looked it up and it seems to contain female hormones so, yes, in theory that could have been the trigger for you. Dr Fenton believes (but he is still conducting his research) that there is a genetic link too which is then triggered by a hormone change. Do any of your family have autoimmune disorders? My maternal family do. Another thing I read was around high factor sun cream. Weirdly, lots of sun creams can affect hormones and one study found that ladies with FFA tend to use more 'lotions and potions'. Certainly, I used sun cream on my face every day for years so I have often wondered about this. I haven't asked my doctor about it and they haven't done enough study to prove anything but it is an interesting thought. I now use a sun cream called 'Kiss My Face' which has completely natural ingredients.

Kristen, so pleased that you are happy with your micro-blading. Good for you for getting it done and making yourself feel better. I currently use a very good eye pencil but am considering micro-blading too. I was about 34 when this all started for me too. See my comment above to Donna about sun-cream. Do you use sun cream frequently or any lotion with SPF in it?

• ‹ Previous
• 1
• …
• 125
• 126
• 127
• 128
• 129
• …
• 507
• Next ›
• Page