Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Claire Julia on March 29, 2017 at 6:59am
Hi Liz thanks for that. I have just ordered the shampoo from all beauty.com shampoo 8.05.
I thought thT seemed reasonable.
Are you using all the products they recommend?
Comment by Liz on March 29, 2017 at 6:33am
Hi Claire. I buy the shampoo and conditioner online as it's much much cheaper. The solvent and glue I still buy from Lucinda as it lasts ages. I also use a few other bits that I find helpful. Message me if you like xx
Comment by Claire Julia on March 26, 2017 at 12:11pm
I have had the interlace now for 6 weeks and I am getting used to it. However I still struggle every time i wash my hair. For the ladies who have the system where do you buy the shampoo and solvent from to remove the glue? Is it a reasonable price at Lucindas?
Comment by Classical Anne in NC mountains on March 18, 2017 at 3:39pm

Anne, I'm sorry you continue to have thyroid issues, beyond the norm.  If you have not used the Latisse in several months, have you seen any loss of lashes?  How far gone were yours when you began?  Mine were about 75% missing, about 8 to 10 short, thin, nearly colorless lashes.  I am thrilled that they are now naturally dark and curled [like my hair, what's left of it].  What style are you now wearing your hair that disguises the loss?  I've recently cut mine very short, which works fine at home and most errands.  But I never go to church, out to dinner, etc. without one of my wigs.

Comment by Anne Louise on March 17, 2017 at 10:23pm

Anne I miss you too in a virtual way I guess! :-) I like those applicators you linked to rather than the Latisse brushes. I haven't been using Latisse for several months, was last fall after panicking thinking my lashes were thinning and falling out. I just get tired of the maintenance! I'm a low maintenance gal (or just lazy I suppose) and have a hard enough time washing my face at night let alone all the creams and applications I've tried the past few years. I just had to change my thyroid meds and was very hypo for about 6 weeks...it was awful and I also noticed more shedding. I'm back to normal thyroid wise now and am hoping my hairloss will slow down. I can still disguise it for now but not sure how much longer.

 

Comment by Classical Anne in NC mountains on March 17, 2017 at 5:11pm
Comment by Classical Anne in NC mountains on March 17, 2017 at 5:10pm

Anne Louise, I'm so glad you're still on here.  Strange to miss someone you've never met, but I HAVE missed you!  My vial did not come with a brush or any means of dispensing, other than squeeze, as it was designed for glaucoma drops IN the eye.  So I finally found a sort of micro Q-tip which has worked well.  I don't even really squeeze the vial, just turn it over and let a tiny drop out onto the tiny swab -- more than enough to 'paint' along the lash line, just like an eyeliner.  And it has also left a nicely faint eyeliner/eye shadow effect as a bonus.  But the goal and happy result is finally having eyelashes again.  Thanks for your response.  I'm glad I can cut back to 2 or 3 a week, so I can afford to continue.

Comment by Dyners on March 17, 2017 at 3:49pm
That sounds encouraging! The pictures online look good. I feel it could make such a difference if it turned out well. Thx MnM.
Comment by MnM on March 17, 2017 at 3:39pm
Hi Dyners,I had microblading done on my brows. They were very sparse and I had to draw them on every day. The woman I went to used both a soft tap and brush stroke technique. They turned great,they healed on the same schedule as someone without FFA and I love them! Such a confidence boost!
Comment by Dyners on March 17, 2017 at 3:27pm
Hi All! Just wondering if anyone has tried microblading for eyebrows? Wondering if it will just cause more inflammation or has results which would be worth it? Currently using Wunderbrow every day as at least it stays on until I wash it off at night with rest of my makeup.
 

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