Classical Anne in NC mountains
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  • Rutherfordton, NC
  • United States

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Classical Anne in NC mountains's Discussions

FFA -- newcomers dilemma

Started this discussion. Last reply by Joking Jo Apr 14, 2017. 5 Replies

I think I used to be intelligent. But with so many discussions and so much personal research, I've been very slow to catch on to the whole business of naming this disease. Today at last I think I get…Continue

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I am a retired teacher, high school French & Spanish. For several years led an amateur Baroque Recorder trio. Have 8 autoimmune disorders, and too many other chronic issues, for which I am on more than a dozen daily prescriptions, some in multiple doses. But although my pharmacist has proof to the contrary, MUSIC has always been my drug of choice.

Diagnosed with FFA [Frontal Fibrosing Alopecia] in Aug. 2013, after losing 80% of my eyebrows and noticing odd, red, itchy, follicles around the edges of my face. Have been getting steroid injections, every 6 weeks, since diagnosis. Lost close to an inch of hairline at forehead, more at temples. But blessed/cursed with a low hairline at birth, and thick, wild, curly hair to begin with. So it has remained relatively easy to hide receding hairline. Currently happy to officially call myself 'highbrow" and able to cover my loss with mini-scarves and wide headbands, the collection of which brings bits of delight: retail therapy!
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 4:37pm on January 30, 2015, Tomy Pereira said…

Hi, thanks for accept me :) I also have alopecia universalis, if you want to talk a little with me about it, I am with open arms.

At 2:54pm on July 9, 2014, jennyl said…

Hi Anne-I am in the Clemson area (actually Seneca)--probably not far from you at all. Lived in Charlotte for 6 years during the 90s.

At 3:40pm on May 26, 2014, Alice said…

Yep. You got it. Low on the tech curve.  Started using it decades ago on dial Prodigy ISP and it sort of stuck. I do tend to enjoy low tech activities, like gardening, sewing, knitting and quilting. Wish I were musically inclined but all I can do is listen. 

I've only met 1 other person with FFA, Susanne from this site. She may not follow it any more, though. We've both been to see Dr. McMichaels at Bowman Gray in W-S. She's a continuing patient.  I have a local derm and saw her for a consult. She's yojnger than I am but I think we're about the same place hairwise.

At 4:52pm on May 11, 2014, Mary said…
Thank you for your kind accepting words. Family are supportive to a point. Coping reasonably well at the moment. Work colleagues have not noticed hair loss ,but to me it seems very noticeable.
At 9:54am on May 6, 2014, Suzanne Capella said…

Thanks for your kind comments Anne.  When I speak to my consultant I will mention these steroid injections, and see what he says.  Bust day today at work, no time to chat just lovely to know you are there!!!

At 12:08am on May 5, 2014, LeslieAnn Butler said…

Anne, Thanks for the comment on my book! I'm so glad it is helpful to you.


At 10:08pm on May 4, 2014, Camie said…
Hi Anne, Thanks for friending me! I just wanted to add--the tattooing was not a walk in the park!! But I guess no pain, no gain?
At 12:35am on March 21, 2014, LeslieAnn Butler said…

Hello and welcome, Anne!
How are you today?
Leslie Ann



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