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Comment by sallylwess on December 26, 2015 at 4:54pm

Yes, Jen 1.  The side swept bangs, which I have sense had cut into bangs, and the upper portion of the temple area are hairpiece.  The curls below in the front are mine.  The piece is not a topper.  A pattern was drawn on paper of the portion of my scalp without hair.  This was used to form the base where the hair was attached for the hair piece.  I experimented by cutting up old wigs before we made the final piece.  

Comment by Jen on December 26, 2015 at 3:06pm

Thanks Sally. I am looking at the photo (the front) and trying to figure out which is the piece and which is your own. Is it the side swept bangs and the upper portion of the temple area all the hair on the hairpiece?

Comment by sallylwess on December 26, 2015 at 2:56pm

Jen 1, thank you.  I attach it with sewn in clips on the sides near the top and a bit of two sided medical tape in the front.  I wear it during the day.  I style my hair as usual, attach the hair piece, blend it together, and I'm on my way.  

Comment by Jen on December 26, 2015 at 2:52pm

Hi Sally,

you look wonderful!  No one could ever guess. It came together seamlessly. Thank you for sharing this triumph with us.  Please tell me the process of attaching it, and how long do you wear it before removal. I love hearing (and seeing) stories of people who have figured out how to live with this awful condition. 

Comment by sallylwess on December 26, 2015 at 2:09pm

Dear FFA Friends,

I hope your Christmas was a great one.  One of the best things I did for myself this year was to have this custom hairpiece made.  It is designed to cover just the front portion of my forehead and the hair in the back covers the bald places I have developed at the crown.  It is handmade, synthetic hair with a lace front.  The hair strands were picked to match my own hair.  The side curls are my own hair. If you look at the back of the hair in the mirror, you can see my own hair in the back.  I love it!  Thanks to Jennifer at Strands for this.   http://www.strandsmedicalwigs.com

Comment by Wyobalance on December 21, 2015 at 8:49pm

I know of one woman that swears hair dye triggered her hair loss.  She also has a number of other allergies and sensitivities.  I don't know of anyone else that has said that they thought hair dye was related to their hair loss.  

Looked up hidrossiclorochine, apparently that is the same as Plaquenil which is used in the U.S.

Comment by Luisa on December 21, 2015 at 5:36pm

Hello everybody. This is my first comment on the site.
I was diag. in 2013 but probably started with eyebrown loss on 2012. After two years of steroid injuctions I am now under hidrossiclorochine and tracolimus. It seems help but does not stop hair loss.
I need your comments and experience on effects of salon air dye. It seems to me that it worsen the hitching....

Comment by SJC on December 16, 2015 at 9:26pm

Thanks for the replies about other alopecias in combination with FFA.  I continue to shed, but since a brief prednisone pulse and starting finesteride (1 month in), I'm seeing less shedding; I would also swear I seen new  growth (could it be?) at my temples and just above there at the frontal/side hairline.  I'm also using Cordran lotion on my entire head overnight with a shower cap every other day.  I may try minox on the off days, although my doc has never even mentioned trying it.  FFA is a chore!  If I see results and slow progression until burn out, it will be well worth the hassle.   Best to all fighting this fight.

Comment by Lauren on December 7, 2015 at 10:31pm

Wondering if anyone has sebhorreic dermatitis the or rosacea along with FFA. I've always had what derms said was sebhorreic derm. One bad area was around the inner corners of eyebrows where it will get flaky and red bumps. I have now noticed a bit of thinning here and am worried that I may have contributed to this by flaking the scaly skin off and squeezing the bumps. For anyone who has had eyebrow loss, how did yours start? Did it start in one particular area, one eyebrow in particular etc? And who has noticed an association with having seb derm or rosacea along with FAA?

Comment by Wyobalance on December 7, 2015 at 10:36am

I know of someone that has ffa and androgenic loss.  Her hair was thin most of her life.  Minoxidil has worked wonders for her thinning, though she continues to have the ffa loss.  It's amazing.  She has additional hair throughout her scalp, about an inch long now.  That worked for her (androgenic only).  May not work for everyone as we are all different.  

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