Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Donna on July 3, 2019 at 1:47am

I have noticed that at the end of each summer for the past 3 years I’ve had ffa I have a significant amount more hair loss in August & September.  I now believe it it because of the use of sunscreens. So this summer I am not applying sunscreens with the bad ingredients oxybenzone or octinoxate. But now after I substituted zinc oxide & titanium  oxide I’m reading these are bad too.    Ughhhhh

Comment by Plf on July 2, 2019 at 7:55pm

Hola all, well the sunscreen theory would certainly fit with why I have lost hair on my arms and legs as well!  But quite a problem as I also have had skin cancers removed from my face and body so need sun protection in Australia

Comment by Kandy15 on July 2, 2019 at 4:25pm

Hello Lovely Ladies,

I have been ordering my facial cleanser, day cream, night cream, body lotions, etc. from a website called Be Green.  Once I became aware of the EWG app I started looking up safe products and everything from Be Green is rated #1 on the EWG. I am pleased with all of the products that I use.   

Comment by Toby on July 2, 2019 at 3:09pm

I want to find a new bar soap for my face and body that does not have titanium dioxide. I have very dry skin even in the summer.  Does anyone have a bar soap that they like that is not drying?

thanks everyone. great posts!

Comment by 2Dachshunds on July 2, 2019 at 12:34pm

I've eaten a LOT of m&ms in my day, geez. 

I looked up ingredients in ondansetron and naratriptan which I use for migraines, they both haveTitanium dioxide.

@Afraid, what are CACI facials?

I've checked all my body soaps and lotions, now on to food ingredients!

Comment by Toby on July 2, 2019 at 12:28pm

Titanium dioxide is in Oil of Olay bar soap and Shea Moisture bar soap.

Comment by Afraid on July 2, 2019 at 12:05pm

Ps CACI facials helping skin!  I’d highly recommend x

Comment by Afraid on July 2, 2019 at 12:03pm

Lovely to see everyone is still around & read your comments.  Of course it would be even better if this condition disappeared completely and we could just chat about life in general...one day maybe?!? 

Thinking of you all xx 

my hair loss at sides marches on at a seemingly fast pace... acupuncture and head tapping (?) I’ll try anything (!!) helping my sanity and some re-growth on top? Or is it my imagination? 

Comment by Bloomingdalekid on July 2, 2019 at 11:04am

Wait for it.... M&M’s were among the highest candy containing TD.... I guess it’s all the food coloring!  I just found out that the Estée Lauder Moisturizer and Georgia Armani makeup that I use also contains TD!  All I can say is “wow”..... wouldn’t it be mind blowing if that was actually a contributor to this horrible disease?  Yikes!  I wonder if it’s topical or systemic absorption of these make up products  that could be the culprit?  Anybody read any research on that?  I mean, our skin is the largest organ of our bodies and it absorbs this stuff that eventually gets into the bloodstream, I would assume.  

Wow, lots of activity on this subject over the past few days!

Comment by PamW San Diego, CA, USA on July 2, 2019 at 10:54am

Check detergents too.  

 

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