Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by 2Dachshunds on July 2, 2019 at 10:52am

looks like we have some work to do telling companies to quit using TD!

i found Weleda salt toothpaste and Dr. Bronners toothpaste at Whole Foods. The salt one works well and it’s salty but I like it! Both were less expensive at store than online.

i read labels at store & looks like Advil liquigels do not have TD so I’ll see if they have a migraine version.

wondering if the prescription migraine meds have TD!

Comment by Lu on July 1, 2019 at 8:47pm

Just found a fun fact re TD ... I knew they use it in food to whiten / brighten it but it’s use is inder review as the International Agency for Research on Cancer (IARC) classifies titanium dioxide as a Group 2B carcinogen, which means it's "possibly carcinogenic to humans”.

Comment by 2Dachshunds on July 1, 2019 at 11:13am

Naproxen generic brand has titanium dioxide, got it at Costco. 

there is salt toothpaste by Weleda which doesn’t have titanium dioxide. I see it on amazon but not sure I can get at local

health store...

Comment by Toby on July 1, 2019 at 10:36am

Titanium dioxide is in my eye brow pencil, cream blush, lip balm and lipstick and tinted moisturizer. And I thought I had changed to chemically safe brands.

Comment by Toby on July 1, 2019 at 10:28am

Thanks 2Dashunds, I use Sensodyne and see it has titanium dioxide. Crest Pro Health toothpaste also has titanium dioxide. Not sure what to do about toothpaste. 

Comment by 2Dachshunds on July 1, 2019 at 10:01am

I’m checking ingredients, my toothpastes have titanium dioxide. Colgate sensitive & sensodyne. I know I rinse it out but maybe this is the source!

Comment by KarenD on July 1, 2019 at 9:30am

So confused with what to use and not to use!  My dermatologist asked me last month what type of lip sunscreen I use and I showed him and he told me it was not effective and told me specifically to look for something with titanium dioxide in it like Coola.  Which I went out and bought and have been using!  Ugh!

Comment by Minter on July 1, 2019 at 7:56am

illustr8r, I bet you look awesome with your pixie and yes exactly what I was trying to say- intentional!!! My hair looks definitely looks like it supposed to be this way instead of the way it was before when I was constantly fussing with it, I am really happy with this look and I feel miles more confident.  

I am now off to the medicine cabinet to look over all my vitamins and supplements and lotions and potions for titanium dioxide :-/

Comment by Toby on July 1, 2019 at 7:54am

OMG, titanium dioxide is in Centrum Silver multi-vitamin and SlowFe Slow Release Iron Supplement. Thank you so much for letting us know this,

Comment by Toby on July 1, 2019 at 7:35am

Wow, I never would have thought of titanium dioxide in supplements. I will look at my vitamins and iron supplements right away. 

Thank you so much!

 

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