Comment

Comment by Sad in chicago on July 13, 2015 at 4:00pm

Does anyone know if hair restoration (transplant process) actually works for Alopecia or even more to the point, FFA?  The skin and scalp where my hair loss are is smooth as can be....no follicles left, no apparent scarring, etc.  I found someone who thinks it might work and can do a "test" run, but it seems to me there would be someone somewhere who already had a "test" and can offer support and be a resource.  thoughts?

Comment by Lo on July 13, 2015 at 3:18pm

Blondie - I was wondering if the hair loss is still stable.  I see your post from May of this year that said it had stopped... and was hoping that was still the case.  I'm also interested in your short pixie cut... and if that style still allows you to conceal the loss.  Many thanks... hope all is well.  If you can provide an update, I'd love to hear!

Comment by LittleSadEyes on July 10, 2015 at 7:05am

Not having a good day at all. I have so much shedding from the spironolactone and i have just recommenced treatment using minoxidil 5% and i know that a massive massive shed is imminent. I haven't got any hair to lose. I will literally go bald. I feel really really deflated and hopeless. I just want it to end.

Comment by Anne Louise on July 8, 2015 at 3:27pm

LittleSadEyes I am sorry for your suffering.  Your anguish is palpable, and something I'm sure most of us can relate to.  But you are so young!  I wonder if you may be the youngest documented case.  With your estrogen levels and hormonal problems, in my opinion there must be a link between hormones and FFA.

Thanks for posting those articles.  The first one referred to FFA as a varient of AA, soemthing I have never read before.  AA is not scarring and the hair can grow back.  That was not a medical journal, so perhaps there is some misinformation.  However my derm seems to think there is an AA component to this since we lose body hair too.  My understanding has been that FFA is a variation of LPP, as the biopsy results show elevated lymphocytes (a type of white blood cell).

At the last CARF meeting I went to back in January, two women were talking about laser therapy.  They bought their own machine and split the cost; they seemed to be having some success, but it was too soon to tell.  I was dealing with other stuff at the time and didn't have a chance to speak to them afterwards, but perhaps this is something some here can pursue.

Comment by LittleSadEyes on July 8, 2015 at 2:03am

Donna, i am happy to be a guinea pig haha. I still have relatively recent hairloss so perhaps i am a good candidate. Bit expensive though!

Comment by Donna on July 8, 2015 at 1:05am

Thanks for posting those articles LittleSadEyes.  Very interesting.  I think laser treatment maybe helpful in some cases if the treatment occurs early enough - prior to the scarring.  Has anyone tried it?

Comment by Donna on July 8, 2015 at 1:00am

Comment by LittleSadEyes on July 7, 2015 at 11:40pm

Here's another http://archderm.jamanetwork.com/Mobile/article.aspx?articleid=1105344

You might want to save yourself some reading and scroll straight down to "comments"

Comment by LittleSadEyes on July 7, 2015 at 11:34pm

I don't know how much credibility there is in this; but I thought you all night be interested to read about this lady treating her ffa with laser. http://www.miamiherald.com/living/article1967147.html

Tell me what you think!

Comment by Sad in chicago on July 7, 2015 at 4:28pm

Bonnie Barsky is my primary derm

• ‹ Previous
• 1
• …
• 220
• 221
• 222
• 223
• 224
• …
• 507
• Next ›
• Page