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Comment by Sas Holland on March 4, 2015 at 8:40am

Thanks Kat, I will certainly have a good look into that option!

Comment by Kat on March 3, 2015 at 5:39pm

Hi Sallylwess & Sas, I have seen your comments that you were looking for curly hair that isn't black or dark. I found this link for a swim-hat-thingy and thought that maybe you could use that hair and get it made into a topper? http://hatswithhair.com/Order-Hybrid-Curl-Samples.aspx

Comment by Sas Holland on March 3, 2015 at 12:43pm

wow  Sallylwess, your story really touched me!

what a lovely idea of donating your daughters beautiful curls and how sad that it wasn't possible. I have 2 daughters and a son myself and I cannot imagine how it must feel losing one of your children. I think you are very brave woman and you look beautiful in your profile picture.

What a pity your other daughter doesn't want to cut her hair for you. If it where the other way around you probably do it for her immediately, that's how mother love works.

My hair does not grow very fast, I've tried very often to let it grow, but always stopped halfway through. I wish you all the luck in finding a better store with the best service for another topper,

thanks for sharing!

Comment by sallylwess on March 2, 2015 at 8:46pm

Sas Holland, If I still had my hair like I did even two years ago, I would have seriously investigated having some of it cut off and made into a topper.  I had no idea about how much I would lose in a short amount of time, nor did I investigate the idea of toppers or wigs.  If you have the hair, see if you can have a topper made.  It will be an excellent decision.  I keep telling my daughter that I will pay her top dollar for her hair because it is so much like mine was.  Also, I do know that you need a lot of hair to make a wig, not sure about a topper.  When another daughter died five years ago, before I knew I had FFA, she had such beautiful curly hair, I asked if we could cut her hair and donate it.  I was told by the mortuary that they have to have at least five inches.  She had recently cut her hair, just before her death, to a shorter bob, not super short, but evidently too short to be enough for a wig.  

Comment by sallylwess on March 2, 2015 at 8:40pm

Thank you Sad in chicago, and Sas Holland.  I agree with you about the topper.  I bought the first thing I tried on even as I knew I had misgivings.  I was just so grateful to have hair I was emotional and crying.  Never buy a wig or topper if those emotions overshadow the realities of the way the topper really works for you.  I have gone back and said it wasn't working for me and pretty much dismissed.  I was basically told I just didn't work with it right.  I think they only are interested in selling what they have on hand at this particular shop.  

Comment by Sad in chicago on March 2, 2015 at 2:39pm

sallywess - yes the topper (if real hair) can be styled; I "set" mine with velcro rollers to add height and volume (just the way I used to with my real hair).  The wig shop should find a topper that matches your own hair, color, texture, and style.  And, then they should shape it and style it to blend with yours.  I would bring it back and ask for either a refund, or someone there to fix, or do a better job of providing you with service.

Comment by Sas Holland on March 2, 2015 at 5:51am

Sallylwess, I have the same problem that I have curly hair and cannot find toppers that are curly (other than black curly hair). That's why I don't have one yet. I can still go without one, no-one notices, but I have  a harder time nowadays making my fringe look good. I never have had straight hair in my life, so I do not want to straighten it  to match  a straight topper. I am now thinking of letting maybe my own hair grow long so that it can be made into a topper/fringe. But I have no idea if there is a company who would do that.

Comment by Brenda, IL US on March 1, 2015 at 9:34pm

Sad in Chicago I'm 260 miles south of J. Krause. I will check this out. Thank you!

Comment by Jen on March 1, 2015 at 9:20pm

I wonder if you can put the topper in rollers so they would curl. I saw a video on youtube where someone was thinning a wig by pulling out some of the hair.  I know it is scary after spending so much for it.

Comment by sallylwess on March 1, 2015 at 8:41pm

I have been reading about those of you with toppers.  I bought one in July, and I must say I have not been all that happy with it because the clips are not in the right place and I have a hard time blending it with my hair.  It is made of human hair.  It was expensive - $500.  I have not felt I have gotten good customer service from the shop because when I went back to talk about the clips, I was just told that they are where they need to be.  Do you have any advice on dealing with wig shops?  This one was supposed to be the most reputable one in Denver.  

I have a hard time blending my hair with the topper because my hair is curly and the wig topper is not.  This means I have to straighten my hair.  Also, the hair underneath that hangs below the topper is fine and not as full as the topper.  I do get complements on the topper.  No one seems to believe it is not my real hair.  Maybe I am expecting too much.  

What is your experience with wearing a topper?

I have lost about two inches of hair in the front bang area and along the sides.  The eyebrows are totally gone.  I no longer can go out without a hat or wig or the topper. I have two wigs, but I'd like the topper to work better than it does.  

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