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Comment by Sad in chicago on February 21, 2015 at 9:59am

Lo -- the wig maker should be able to work with you regarding the clips.  That is their job.  Some toppers have a smaller mesh/lace base than others, and the clips can be re configured as well.  Backcomb the hair it will adhere to.

Comment by Pam on February 21, 2015 at 5:02am

Celia - glad you are still around and keeping active, I thought you had gone quiet for a while and wondered if you were OK!  Hope we may catch up again in the spring. Pam x

Comment by Lynn on February 20, 2015 at 11:10am

I was just reading through all the recent posts. I was diagnosed in the fall of 2014, but had been losing lots of hair for probably a year or so before I had the biopsy. I actually used to have a widow's peak, but my hairline has changed so drastically and now just look like I have a high forehead. I am the mother of 4 busy kids, so although I had a feeling that something was going on with my hair, I didn't take the time to really notice. My hairdresser said I should have my thyroid checked. I did twice, and came back normal both times. My dr said I should try taking biotin, which I did but it didn't help with my hair loss. So I eventually found a dermatologist that specializes in hair loss and went to see her. Upon her initial examination, she said, "Oh, I think I know what this is"! The biopsy confirmed it. Since then, I have been getting injections in my scalp every 4-6 weeks and have been taking Plaquenil, as well as taking lots of supplements, and eating a diet for inflammation as suggested by Debs on this forum. I'm also using men's rogaine and using a cream on my eyebrows and Latisse on my eyelashes. I have to say that I have noticed a significant decrease in my hair loss since becoming proactive and sticking with the treatment. I do still lose slightly more hair than normal I think, but it isn't falling out in clumps or clogging up the shower drain any longer. I am growing new hair just along the edge of where the scarred band is above my ears and on my forehead. I believe this is due to using the rogaine daily. The red inflamed area seems to have calmed down a lot, and so has the itching, thank goodness! So far I am hopeful that what I am doing is helping. It is quite a change for me and has taken some getting used to, but I feel it's worth it since I am seeing progress. Only time will tell! I know everyone has different outcomes with treatment, so I don't really know if this is just a coincidence, or if Its just in a resting phase, or if the changes and treatment is really helping. It's such a mystery. I wish you all the best as you go through this. It's such a difficult reality to face everyday.
Best, Lynn

Comment by Lo on February 19, 2015 at 4:34pm

Hello, all.  I just purchased a topper, and pick it up on Saturday (she is trying to color the roots b/c I am very blonde, but have darker roots).  My problem is securing it.  My hair is pretty fine... and I struggle to have all of the clips stay in.  Any suggestions?  

Comment by Sad in chicago on February 19, 2015 at 4:32pm

Good Luck.  You will be happy with your decision.

Comment by Jen on February 19, 2015 at 4:31pm

Sad, I will be the mother of the groom this summer and I really need to look my best. I have to go to a wig shop and find a topper..

Comment by Sad in chicago on February 19, 2015 at 4:20pm

Jen.....not that expensive.  I think I spent more on products and dreams of making my hair grow back or be thicker for way too long.  The real hair piece is fairly expensive at about $800.  However, with great care and follow up, after one year it is still in great shape, and again, a reputable wig maker will follow up and help with care, replacing clips, fixing color, styling for big occasions, whatever.  The synthetic one is $195 and worth every penny for those times when I truly did not know what to do while on vacation or working out.  My real hair expense of coloring, cut and style haven't changed and, unfortunately, since I have chosen not to go gray yet, that is a big expense.  Always was. But if you can afford it, get back your self esteem and feel ok about the way you look -- why would you not do it.  You can always go without another indulgence to pay for this one! 

Comment by Liz on February 19, 2015 at 4:18pm

I used to lose loads of hair when I showered. I have pictures somewhere. I used to take pictures it was so bad! Now I probably lose the same amount I did before I had this condition, 10-15 a day. I'm hopeful that it will stay like this.

Comment by Sas Holland on February 19, 2015 at 4:15pm

Hi, Iwish I could say that I noticed my hair shedding, but I never have. I just noticed my eyebrows dissapear about 10 years ago and had them tattooed. I never felt itching or redness or pain or saw my hair fall out in the shower. I have always had a curly full fringe so I never really looked good at my hairline .I just began noticing that  my fringe wasn't "falling in the right place anymore" (sorry don;'t know how to describe that:) And that was about 8 konths ago and only last sept. I visited a derm who took a biopsy and gave the FFA diagnoses. It showed very little activity, but I cannot remember  how it feels when it is active. My guess is it was always very very slowly  active. I take photo's  myself every now and then to see whether it will progress.

Comment by Jen on February 19, 2015 at 4:07pm

Liz, I really hope so. I live in fear daily of the big shed. Two days ago I actually counted the hair that fell out from my whole head during a shower. 104!! That is not counting what slipped down the drain.

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