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Comment by Alice on February 14, 2015 at 9:29pm

Claire, I had 2 derms offer me dutasteride but decided not to take it. For those who do, I believe the current thinking is thatbonce a week is enough, rather than daily. So far as I know, I am the only one who has been using spearmint to lower testosterone levels. My hairloss has been minimal and I have had some wispy rrgrowth on the sides. I also use plaquenil, betamethasone diproprionate, elidel, and rogaine. 

Comment by claire on February 13, 2015 at 9:02am

Hi everyone. I have just had an appointment with Dr Paul Farrant in Brighton. He has prescribed Dutasteride. Has anyone used this drug or had any experience of it. I'm a bit worried as this is experimental treatment.

Comment by Jen on February 9, 2015 at 2:17pm

Me too Anne. No more ponytails or updo. I liked wearing my hair half up and half down. I always wore it off my forehead. That style suits my round oversize face the best. I do not look good in bangs.  Anyway, like I said before, I am scared of the big stuff not this annoyance. 

Comment by Annie on February 9, 2015 at 10:43am

Jen, my story is so similar to yours.  Several years ago I just couldn't get my hair to look as good as it used to.  I tried different haircuts, shampoos, root lifters, and hair spray, and nothing seemed to help.  I now think that that was the early stages of my ffa.  I'm desperately trying to hang on to as much of my hair as I can, but sometimes wonder if it won't be easier when it gets to the point where I can just pop a wig on in the morning and not spend time trying to make my hair look normal.  The one thing I miss the most about my pre ffa days is being able to tuck my hair behind my ears or make a pony tail on those bad hair days.

Comment by purplemainst on February 8, 2015 at 9:24am

Hi Jen,

Thank again for being there I as go through. I am going toward peace, slowly but I am hoping for true contentment with the situation.  And there is no way around that, have to go through it to get to it..  I so want to be that person who can put on a different look every day and go forward with joy.  

Comment by Jen on February 7, 2015 at 7:43pm

Purplemainst,

while we wait for the world to accept hair loss in women, we have to go on. I have found a lady on the internet who wears wigs and hair pieces. She is knockout dead gorgeous and her hair is fabulous. She is a great inspiration and shows how to wear the different pieces.

Comment by purplemainst on February 7, 2015 at 4:04pm

Hi Jenl,

Thanks for reaching out.  Had a moment where I could of spiraled down pretty low over this MESS, but I came here, let is out and picked myself up again and went out into the world.  My hair situation is BAD, no way to use anything but a wig or other covering.  I have had this issue for a long time, I just had no clue about FFA and things were very gradually and then only faced it when things were pretty progressed.  I just wish it was more socially acceptable for women to be balding.  Fragile today, but not giving in.  Thanks again for your messages. 

Comment by Jen on February 7, 2015 at 2:54pm

Norfolk,

I see many women with receding hairlines. I am not sure if they know about FFA or if just put it down to aging. I also see lots of women with fabulous hair. I now believe  that these are wigs. During a TV interview from Malaysia at the time of the second plane disappearance, I saw a woman being interviewed whose hairline was extremely far back bit she was confident and comfortable while she talked on the TV.

Comment by Jen on February 7, 2015 at 2:47pm

Hi Norfolk, Sometime in 2010, I lost the outer sides of my eyebrows. Then they grew back. In Dec 31, 2010, I was getting dressed to go out and I noticed that my hair was not looking normal but I ignored it since I was rushing. During 2010, my hairline was progressively looking different but I did not pay much attention. I was caregiving for my husband who was dying of cancer so there was not much time to worry about how I looked. Two months after he passed, I noticed the first round spot on my hairline. There was no way to miss this one. This happened in Nov 2011. I thought it would grow back because in the early 90's, I had alopecia spots which grew back in. However after waiting months, it stayed the same and I went to a derm who immediately diagnosed FFA and injected the hairline. Within a few days, I lost the whole hairline 1" to1.5". I was devastated.  I stopped all treatments myself since I did not think it was working and there were dents in my head. I am now thinning all over but I am lucky to have very curly coily hair that hides well.  My have lost about 75% of my eyebrows. I try to draw them back in carefully using pencil then powder and primer. It looks good unless someone's eyes are extremely sharp. I am counting on the fact that people in my age group (50's) do not see well anyway and young people do not spare a glance at me anyhow. lol. I was really upset at first but I do not worry so much about it. As long as I can figure out a remedy (eye pencil, eyeshadow, etc and possibly wigs or hairpieces) I do not spend time thinking. I am scared of the big stuff.

Comment by Norfolk Girl on February 7, 2015 at 1:34pm

Hi there Jen and Purplemainst. Do you know roughly how long you have had FFA? I was diagnosed in June 2012 but think I started losing my eyebrows in about 2008. Had lost about an inch of my hairline by the time I was diagnosed but it was having a 'rest'. It started again last summer but trying to slow it down with topical steroid cream prescribed by Dr Farrant.

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