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Comment by Alice on January 11, 2015 at 9:01am

I agree with MJ that Elidel has helped my brows, but not my hairline. I use it once a day. Rogaine has thickened my hair so I can better hide the hairloss on the sides. I use the 5% liquid at night. Still searching for relief from bumpy, red, itchy, sore scap.

Comment by Polly UK on January 11, 2015 at 7:53am

Also C, Lymecycline (I think it's called)- which I believe you took about the same time as me last year - cleared the folliculitis which my Dermatologist said is the reason he prescribed it for me.

Comment by Polly UK on January 11, 2015 at 7:45am

Hi C, Hydroxychloroquine definitely stopped my FFA in it's tracks. Took about 6 months before I really noticed the difference. My Dermatologist agrees that it has worked for me and like me was sorry when I started getting the dark pigmentation on my neck and face. Fortunately the pigmentation has faded now I'm taking one tablet instead of two and my FFA is still stable. Antihistamines also helped to ease the burning and irritation. My Dermatologist said he wouldn't prescribe Cellcept for me as it's a 'hard drug'!

Comment by MJ on January 11, 2015 at 7:34am

C, I can definitely attribute eyebrow growth to Elidel. However I don't see any results in my hairline from it. Wish I had an answer to the question...would love to be free from the drugs and topicals if they really are not doing anything! MJ

Comment by Celia on January 11, 2015 at 5:49am

Is there anyone out there who has found any improvement in FFA that can be attributed to medication ? Thanks !

Comment by Sas Holland on January 8, 2015 at 5:44am

Hi Will be healed: I am not sure about coffe, but I know caffeine is forbidden at first during elemination period, I am not sure afterwards. I never drink coffee, because I don't like it, so I didn't read the part about taht very well.

and Liz, that is indeed amazing, I saw the pictures! the only bad thing is that you have to go to London every 8 weeks or so. I can't find anything like that here in the Netherlands

Comment by Liz on January 7, 2015 at 12:35pm

She had it done in London by a lady called Lucinda Ellery. If you have a look at her website you can see some people's before and after pictures and some of them seem to have a similar type hairloss to ours.The lady I spoke to today said that it has changed her life. The real hair get pulled through the lace system along with real hair hair extensions ( I guess depending on what you want). The system gets put in place and then every so often you have it altered as your own hair grows. The lady I met today also swims in the sea every week and it doesn't damage the hair or the system. The hair is matched with her own hair so it all blends in along with some highlighted bits. The system is firmly in place. She also does yoga and nobody would know even when she bends over and her hair hangs down. Truly amazing!

Comment by claire on January 7, 2015 at 12:26pm

Where did she get it done Liz would be very interested to have the details. Happy New Year to all, claire.

Comment by Sad in chicago on January 7, 2015 at 12:20pm

What is an intralace system?  Does real hair get pulled through the lace so it all blends better?  Sorry.  I have not dealt with anything but clip in toppers so far.  Thank you.

Comment by Liz on January 7, 2015 at 11:54am

I'm very excited. A lady who I have known for some months told me that she has an intralace hair system. She has the most beautiful natural looking hair. I had even spent several hours looking at her lovely hair during a class we had taken together, and I would never have known that the hair wasn't hers. She explained to me how it's done, showed me the lace system close up, let me have a feel for her head....Blinkin marvellous! I'm going to save my pennies and have it done :)

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