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Comment by Sas Holland on January 8, 2015 at 5:44am

Hi Will be healed: I am not sure about coffe, but I know caffeine is forbidden at first during elemination period, I am not sure afterwards. I never drink coffee, because I don't like it, so I didn't read the part about taht very well.

and Liz, that is indeed amazing, I saw the pictures! the only bad thing is that you have to go to London every 8 weeks or so. I can't find anything like that here in the Netherlands

Comment by Liz on January 7, 2015 at 12:35pm

She had it done in London by a lady called Lucinda Ellery. If you have a look at her website you can see some people's before and after pictures and some of them seem to have a similar type hairloss to ours.The lady I spoke to today said that it has changed her life. The real hair get pulled through the lace system along with real hair hair extensions ( I guess depending on what you want). The system gets put in place and then every so often you have it altered as your own hair grows. The lady I met today also swims in the sea every week and it doesn't damage the hair or the system. The hair is matched with her own hair so it all blends in along with some highlighted bits. The system is firmly in place. She also does yoga and nobody would know even when she bends over and her hair hangs down. Truly amazing!

Comment by claire on January 7, 2015 at 12:26pm

Where did she get it done Liz would be very interested to have the details. Happy New Year to all, claire.

Comment by Sad in chicago on January 7, 2015 at 12:20pm

What is an intralace system?  Does real hair get pulled through the lace so it all blends better?  Sorry.  I have not dealt with anything but clip in toppers so far.  Thank you.

Comment by Liz on January 7, 2015 at 11:54am

I'm very excited. A lady who I have known for some months told me that she has an intralace hair system. She has the most beautiful natural looking hair. I had even spent several hours looking at her lovely hair during a class we had taken together, and I would never have known that the hair wasn't hers. She explained to me how it's done, showed me the lace system close up, let me have a feel for her head....Blinkin marvellous! I'm going to save my pennies and have it done :)

Comment by Will Be Healed on January 6, 2015 at 3:46pm

Thanks for sharing the information on the autoimmune diet. Does it mention anything about coffee? I am not sure if it is bad or good for you when you have this condition. I have changed my diet to include most of what you have listed below, and drink coffee everyday, so I am wondering if I cut it out, which will be hard for me, will there be some positive reactions with the FFA.

Comment by Classical Anne in NC mountains on January 6, 2015 at 1:30pm

Thanks again for clarifying.  My genes [and possibly environment] are so bad in this area that I have no less than 8 autoimmune diseases, most of them for 15 - 20 years so far.  My diet is restricted by some of these and/or by the massive amount of medications I take for them.  Which is why I have refused any systemic meds for FFA, but also already feel limited enough in diet.  I am trying to 'clean up' parts of my diet, but I know better than to think I could stick to further restrictions for life.  But I do believe the leaky gut syndrome is at the root of our problems, and fully support anyone's aim to tackle it with diet.  In my case, it will just be more moderately modified.

Comment by Sas Holland on January 6, 2015 at 1:19pm

well yes Anne and Sad, I was confused too at first, you read so many different things about diets and health on the internet. But these books really made so much sense to me and ~I have read many testimonials from people with (other) autoimmune diseases who felt so much better and had less flares of no flares at all anymore, that I am willing to try this.

I look at my FFA more as an autoimmune disease now and not specifis as a hair disease.

The Autoimmune Protocol is based on that there are 3 things that contribute to autoimmune diseases:

1: bad luck with your genes

2:environmental issues like toxics around us

3-the food you eat, this can cause a leaky gut

You can not do anything about he first two, but we can  change our diet.

oh and the meat has to be range-fed by the way

After a while you can add some foods again like eggs and nuts for an instance , and wait and see whether you don't have  a reaction on those  but mostly it is indeed for ever.

I hope I can try this for at least some months and see how I feel then.

Comment by Sad in chicago on January 6, 2015 at 12:37pm

The diet is interesting, but meat is very inflammatory I thought, so I am confused about what is ok and what is not.  I think sticking to low carbs and no sugar and eating as clean as you can, which you are doing with the exception to the meat, is the way to go.  Good luck!

Comment by Classical Anne in NC mountains on January 6, 2015 at 12:30pm

Thanks, Sas, for the new info, and especially the reference studies.  Do let us know after a couple weeks just how hard it may be to stick to the diet.  And is it forever?!

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