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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023
Discussion Forum
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Comment Wall
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Comment by Debs on June 5, 2014 at 3:56am
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ALOPECIA CONFERENCE IN LONDON 12 SEPT
www.alopeciaonline.org.uk
Tickets £15
The charity Alopecia UK is holding this event. There are guest speakers and retailers of hair loss solutions; hair systems, wigs etc..
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Comment by jess on June 4, 2014 at 10:30am
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Pam, I sent you a message about your hairpieces. I am very curious about them...
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Claire, thank you so much for offering to complete a survey! If you send me a friend request, I can give you my email address. I need replies by tomorrow evening though, so if that's a bit of a push, you will still be able to take part in the real survey when it goes live. Not sure how soon that will be.
sorry to be slow replying - I was out last evening at a live screening of the Matisse exhibition from Tate Modern. Such a good idea, these live cinema screenings. But I want to go to the real thing now!
Julie x
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Last comment was to be
Hi Rita
not Hi Kijijji. My fingers are faster than my brain. lol.
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Hi Kijijji,
I saw a place in St Catherine's on Kijijji. They custom make partials according to their advertisements. When I called, they were trying to sell the whole wig.
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Yes I called a place who advertises heavily on the radio for wigs called Gabi's and when I described my problem and that I just need a hairpiece that would cover that area, they merely pointed out that they have lots of wigs. Perhaps the person who answered was unaware if they have such.
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Hi C,
Jules and Pam are in England and I live in Canada. I am looking to find someone who can do what they described but so far everyone is trying to make me buy a wig which is not necessary at this point. I still have quite a lot of good hair.
Jen
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Comment by Classical Anne in NC mountains on June 3, 2014 at 1:06pm
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Something led me to investigate the Women's Hair Loss Project website. It seems to be geared more toward AA and forms of alopecia that strike younger women. But I want to encourage everyone to watch the video on the upper left of the home page, within the blog "Grace & Beauty Defined". It's a beautiful, emotional, and inspiring video. http://www.womenshairlossproject.com/
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Hi Jules,
I would be very happy to help if you still need bodies.
All the best
Claire
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Comment by Celia on June 3, 2014 at 4:55am
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Jen - you may have read that several ladies have had hairpieces fitted that remain in place for a short period of time, throughout all activities. Certainly Jules and Pam have had this done in the UK - not sure where you are but it's worth researching. Good luck ! x
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