Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Jen S. on May 30, 2014 at 10:51am

Test post - hi y'all -- just seeing if the post goes through.  No need to reply. 

Comment by Classical Anne in NC mountains on May 29, 2014 at 3:39pm

Hi All.  Not sure what happened, but my link to this discussion has not pulled up ANY posts since last Saturday.  Can't believe all you ladies have been silent that long!  Any idea how to rescue presumed lost posts?

Comment by Liz on May 25, 2014 at 6:28am

Hi. I had 3 friend requests this morning 2 of whom had written their email addresses for me to email some pictures to. Unfortunately as soon as I had accepted the friend requests the email addresses disappeared :o( Please could those who want pictures message me their email address again.

MJ, if you request me as a friend and then message me privately the message stays private. 

Thanks xx

Comment by silversurfer on May 25, 2014 at 6:02am
Liz I. Would love to see your pics especially of the clip on before and after . I am about to get a wig as I am now not going out unless I can wear a hat as I am so self conscious about my Hairloss sandra
Comment by Classical Anne in NC mountains on May 24, 2014 at 8:26pm

Wow, Jules!  I never imagined you could keep it on that long!  Very encouraging!

Liz, I will leave a message on your profile page, if you really don't mind sending me pics.  You are so kind to offer.  And I am so glad to know just how happy you are with all your new hair!  Thanks!

Anne

Comment by MJ on May 24, 2014 at 7:16pm
Liz, i am interested in seeing pics. It is so good to hear that you are happy. It gives me comfort to know there are options down the road. If I put my email address in this post, will it be out on google as well? Is there a way to privately message you with it? MJ
Comment by Liz on May 24, 2014 at 6:30pm

Hi ladies. I have a clip on fringe, half wig and full wig. I am happy to send  before and after pictures to anyone who is interested in how they work, what they cover and how they look. I love my clip on hairpiece. For me it has changed my life and would recommend it. I no longer post pictures on here because once posted they show up in any google image search but I'm happy to email to anyone who is interested ;o) 

Comment by Jules UK on May 24, 2014 at 5:39pm
Hi Classical Anne (I love your name!). I felt exactly as you do about removing hair pieces / wigs at night. This is why I'm particularly grateful to Pam for finding Rob. My new hair is brilliant through sleep, washing and drying. I really am unaware that I'm wearing anything false. I just rub in a leave in hair serum before blow drying. I haven't yet removed it - I'll do that when my hairdresser next calls in June. But Rob said that the skin underneath should not look dry or wrinkled. Then I'll re-attach them with wig tape. The hairpieces stick to my smooth bald bits but as yet, I can cover them with my own hair so any small gaps don't matter. I hope you can sort out something similar. X
Comment by Classical Anne in NC mountains on May 24, 2014 at 10:50am

Questions about WIGS - I've been following the discussions and have 2 questions. I have not yet begun even looking for a wig, but these 2 thoughts pop up every time I think about it.

What is meant when anyone says 'it will last 6 months' [or whatever timing].  What exactly happens that tells you it's the end of that piece's useful life?

And something I've not  heard anyone mention: what does your head/hair look like when you remove it at night [your hair, not your head!].  Are you embarrassed to face your husband or partner?  I think from the very beginning my sadness was not so much for me and my hair as it was for my sweet husband, to wake up with an old balding lady.  He is very supportive, and would deny that it bothered him at all.  But  I think, of course he would at least inwardly wince.

Right now, my hair loss is not visibly significant, so I don't need a hairpiece.  But the texture of my hair has changed to the point that I'd probably look better in a wig than anything I'm able to do with my hair.

Comment by Marian on May 23, 2014 at 8:32pm
Rita
Yikes just checked. There goes my back up plan. We may have to go to England.
 

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