Comment

Comment by Celia on May 31, 2014 at 11:53am

Jules - I have completed this but have no idea how to send it on - or to whom. 

Comment by Jules UK on May 31, 2014 at 10:38am

Hi, can I just check with C, Sammi, Caro and Pam please, whether they had a message from me? I've asked you all whether you'd mind piloting our hairloss steering group survey. Please would you check your messages? Thanks so much...x

Comment by MJ on May 31, 2014 at 8:04am

Hi all, Has anyone had minor surgery without a flare up of FFA? i somehow managed to jam my big toe nail back into the nail bed. It was initially swollen ans painful but subsided. Went to foot doc amd she said probably need to have nail removed, but is ok just watching it. Well, with actvity, it is sore again. I am nervous about any even fairly minor procedure reactivating FFA.
If the goal is to avoid inflammatory response from surgery, then leaving it as is, with a sort of chronic inflammation is probably not a good option either. Any insights? MJ

Comment by Jean on May 30, 2014 at 5:20pm

Hi everyone

Reading comments from fellow sufferers has kept me sane!  We've just returned from Italy and I've been bitten to pieces by mozzies (no hair on arms or legs).  I had to get antibiotics when I got home because I seem to have a reduced capacity to fight infection.  The FFA is very slowly advancing but I'm determined that it won't take over my life.  The information on 'part wigs' has been particularly welcome so thanks to you all for your helpful and positive comments.

Love Jean

Comment by Jen on May 30, 2014 at 5:05pm

Cekia,

Thank you for creating this forum for us to use. It is much better to have contact with FFA sufferers and share coping skills. Thanks everyone for your input.

Comment by Celia on May 30, 2014 at 4:46pm

Ladies, we are approaching 2 years now of communicating on this site............................. June 2012 it began.

I believe we have all learnt from each other and have given and received wonderful support.

It would be great to hear from friends who haven't spoken for a while here.  Perhaps you have moved on somehow - that's good.

Best wishes to all.

Comment by Celia on May 30, 2014 at 12:06pm

Must have been a blip.  All that talk of Avodart !!  I lost all prompts to look at posts for a while too.  I go to an old message to get back in - strange.

Comment by Classical Anne in NC mountains on May 30, 2014 at 11:30am

Thanks, Jen.  Came thru alright.

Comment by Jen S. on May 30, 2014 at 10:51am

Test post - hi y'all -- just seeing if the post goes through.  No need to reply. 

Comment by Classical Anne in NC mountains on May 29, 2014 at 3:39pm

Hi All.  Not sure what happened, but my link to this discussion has not pulled up ANY posts since last Saturday.  Can't believe all you ladies have been silent that long!  Any idea how to rescue presumed lost posts?

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