Comment

Comment by Jules UK on April 25, 2014 at 8:56am

Celia, I had no luck with getting a prescription because Dr Harries would issue it. It then needs to be redeemed with Salford Trust's own wig supplier. Seems very bureaucratic and not in the patient's best interest.

Comment by Celia on April 25, 2014 at 8:44am

Jen - I have had 3 rounds of steroid injections.  Could not notice any benefit - but 1 year on I am left with a concave ridge across my (current !) hairline and vertical veins showing across my forehead from the hairline each about an inch or so - not very pretty !  I would never have them again.

Jules - so glad you are getting your hairpieces organised - look forward to hearing that it all goes well.  Were you able to get the NHS contribution towards them ? If you did - how did you do it ?

Liz - that's great that you have found something to offset the awful feelings that surround this condition.  Well done ! I haven't got there yet.  I have asked Dr Harries if he can recommend a derm a bit closer to home and so I'm waiting for his response.

Debs - my appt with Belinda is June 26th at 1pm.  She is fully booked until then !

Comment by Jen on April 24, 2014 at 1:06pm

The information provided is really helpful to me. I am very grateful. It is important that I find a solution so that I can move forward confidently without having to worry about the wind or any other adverse condition. The steroid injections do not help and I am afraid of any medication.  I hope that others on this site find this useful.  Thanks to both you and Pam. 

Comment by Jules UK on April 24, 2014 at 12:18pm

Well, Pam keeps hers on all the time in between hair appts, so about 6 weeks.  Sounds wonderful!  I hope she doesn't mind me talking about her like this! :)

Comment by Jen on April 24, 2014 at 11:19am

Thank you Jules,

Wonderful feed back.  I suppose you can shower with them for a few days.

Comment by Jules UK on April 24, 2014 at 11:09am

Hi Jen, the hairpieces I've ordered are fixed with wig tape but it's similar to a wound dressing apparently, allowing the skin to breathe so the hairpiece can stay in place for prolonged periods.

Comment by Jen on April 24, 2014 at 11:08am

Liz,

I just checked the Trendco site and saw Vesta. Is this the one you use?  It looks like it would do the job.  I will see if I can get something like that here. thanks so much.

Comment by Jen on April 24, 2014 at 11:01am

Hi MJ, It is a relief that I do not suffer from the symptoms but at the same time I cannot tell when I need to see the doctor.

Liz, Are the clips hard on your hairline?   Does your piece look like bangs or some other types. I live in Canada and will go to the hairpiece shops here. I purchased some fake bangs at the mall but they did not match so I believe that I need something better.

Comment by MJ on April 23, 2014 at 4:19pm

Jen, inam like you as I have no symptoms either. I am very thankful for that, however it is impossible for me to tell if I am active or not. I was wondering how the front hair pieces work foe someone with fine hair...seems like clips would be hard to hide.
MJ

Comment by Liz on April 23, 2014 at 4:01pm

Jen. I have a hair piece which I bought from Trendco for about £50. It clips in and covers where my hair has gone. I love it! I can forget I have it in. It blends in with my hair. My son said to his friend last week 'Look at my mums new wig' and his friend said 'what wig'. It does exactly what I need it to do. x

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