Comment

Comment by Anne Louise on April 27, 2014 at 5:20pm

I really need to vent. I've been feeling cursed with this FFA, now I know I am! If the canceled eyebrow tattooing two weeks ago was tough, today was even worse. I drove 45 min to a CARF support group meeting and there was no one there. I even showed the meeting info to the security guard to make sure it was the correct place and he said I was at the right place. I waited 45 min and finally decided to leave. I had email contact with the group coordinator a few weeks ago, so she knew I was planning to come. I sent her an email asking what happened and am still waiting for a reply. I'm glad you ladies are here 24/7... you never cancel on me! Thanks for listening.

Comment by Liz on April 27, 2014 at 4:17pm

Jen. Yes it's the Vesta hairpiece. My wig voucher covers £130.00 towards the cost of a wig, twice a year. If you get one of these, Income support, Tax credits, Job Seekers, ESA, Pension Credit or you have a partial or full help certificate you get the full £130.00. xx

Comment by Debs on April 26, 2014 at 9:13am

GPS are not used to doing wig prescriptions but they do have the authority !!! Mine had never done one before mine. Just advise them to contact the surgical appliances department of the NHS trust and they will sort it out. X

Comment by Jules UK on April 26, 2014 at 5:08am

Thanks for the info! I did try my GP who said they didn't issue these prescriptions and to contact my derm. I'll go back to them. X

Comment by Debs on April 25, 2014 at 5:02pm

NHS wig prescriptions are raised by any doctor ( GP or a derm) they must contact the surgical appliances dept of their NHS Trust, the surgical appliances staff then raise an order number, you are sent a letter, the letter gives you the order number and details of whatever wig shops they have a contract with. You book appointment and just tell them the order number for their accounts. How much you get depends on the NHS trust. I get £240 per annum but the prescription charge is £63.. I find buying I mine with VAT deducted is about the same price as using the NHS.

Comment by Celia on April 25, 2014 at 4:08pm

Thanks Pam for that info - I hope, Jules that you can obtain this and use it retrospectively. x

Comment by Pam on April 25, 2014 at 11:37am

I got an NHS prescription toward a wig/hairpiece from my local doctor. I can be used at named suppliers.

Comment by Celia on April 25, 2014 at 10:31am

Jules - I thought the GP initiated this at the request of the patient.  If Dr H gave this then the money would presumably come out if Salford's NHS budget whereas if your GP provides the paperwork then your local health authority would comply. Whatever is given can be spent against whatever you wish, I think it is like a voucher.   I thought so and I'm almost certain Pam was able to have this. Have you asked your GP.  I understand that as an alopecian (awful isn't it !) you have an entitlement to 'wig money'. x

Comment by Jules UK on April 25, 2014 at 8:56am

Celia, I had no luck with getting a prescription because Dr Harries would issue it. It then needs to be redeemed with Salford Trust's own wig supplier. Seems very bureaucratic and not in the patient's best interest.

Comment by Celia on April 25, 2014 at 8:44am

Jen - I have had 3 rounds of steroid injections.  Could not notice any benefit - but 1 year on I am left with a concave ridge across my (current !) hairline and vertical veins showing across my forehead from the hairline each about an inch or so - not very pretty !  I would never have them again.

Jules - so glad you are getting your hairpieces organised - look forward to hearing that it all goes well.  Were you able to get the NHS contribution towards them ? If you did - how did you do it ?

Liz - that's great that you have found something to offset the awful feelings that surround this condition.  Well done ! I haven't got there yet.  I have asked Dr Harries if he can recommend a derm a bit closer to home and so I'm waiting for his response.

Debs - my appt with Belinda is June 26th at 1pm.  She is fully booked until then !

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