Comment

Comment by Celia on February 12, 2014 at 7:08am

Good morning ladies.  Re . getting together - I wonder if the week beginning 17th -  22nd March inclusive might be good ?  If you could let me know which of these days you are free, then I hope that there will be one day that suits all.  I will then e mail my location with directions if you don't have sat nav.  Looking forward to a calm Spring day........Celia

Comment by claire on February 12, 2014 at 3:29am

Count me in as well.

Claire.

Comment by Celia on February 11, 2014 at 3:07pm

Hi Meme - definitely not forward at all !  Anticipate trying to agree a date in March that will suit everybody. 

Comment by Meme on February 11, 2014 at 1:44pm

Thank you ladies for your reassurance, I am speaking to the doctor on Thursday,  and I agree £345.00 sounds good to me. If you ladies do arrange a meeting I would very much appreciate an invitation, if that isn’t being to forward.  

Your support is very much appreciated. Meme

Comment by claire on February 10, 2014 at 1:38pm

Hi All,

So good to read these comments. I also have had an email today from Dr Criztos and quite excited to have a chat with him.

Would also be good to have a get together at some point. £345.00 for a hair piece to restore confidence sounds like a bargain.Claire.

Comment by Meme on February 10, 2014 at 12:52pm

I have just received an email from Dr Tziotzios ( the doctor from Guys hospital)asking if he could ring me to discuss medical history. I just wanted to check with you ladies that this is all genuine. I know it sounds silly on my behalf but you hear about so many people trying to get information over the telephone.

Comment by Meme on February 10, 2014 at 12:45pm

Thank you Pam and C for your very kind welcome. I would be interested in meeting up with you all. I am also very interested to hear more about your hairpiece. I have thought about wigs but ¾ of my hair is still fine and it seems silly to shave it off. You have certainly given me lots to think about. thankyou

Comment by Pam on February 10, 2014 at 9:08am

My hair piece cost £345 - quite a lot, as it was fine textured and wavy real European human hair, and custom made - so more expensive than an acrilyic wig, but less expensive than some human hair wigs. Every day I am grateful to whoever grew that lovely hair which I am now styling and wearing!!

Comment by PamW San Diego, CA, USA on February 10, 2014 at 7:43am

Hi, Pam.  If you don't mind, could you comment about the cost of your custom hair piece vs. a wig?  Thank you - don't mean to be too personal . . . .

Also, is there anyone planning on attending the CARF Patient Conference in Chicago, IL this April?

Comment by Pam on February 10, 2014 at 7:03am

Welcome to the group Claire and Meme! We are all in the same boat, and it is good to share feelings and experiences with others. My FFA has been ongoing for about 10 years, and I have tried all sorts of drugs, topical lotions and diets. I have now had a custom made hairpiece fitted, and my eyebrows tattooed,  which seems to be the answer for me at the moment, as at least my looks have been restored, which gives me so much more confidence in going out and meeting people. I will have to accept certain limitations (such as easy underwater diving and snorkelling!), but being able to just go out and walk on a windy day without worrying is a great bonus!!

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