Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Jen on October 19, 2013 at 5:04pm

Hi Maddy,

This may be too much to ask but does the ex-wig maker have a site with pictures of her work?  I am interested in seeing her partial pieces.

Regards,

Jen.

Comment by Celia on October 19, 2013 at 3:38am

There is a comment from T on the top of this page on the discussion initiated by Katy M about Some questions from another newcomer......... hope this helps.

Comment by Celia on October 19, 2013 at 3:33am

To contact Tiffanyaa - go into the list of members at the top of this page - click on to View All and you will find T on page 3.

Comment by Maddy, California, U.S. on October 18, 2013 at 6:19pm

Jen, Yes, I always have that problem! I wish I knew where to look.

Comment by Jen on October 18, 2013 at 6:14pm

There is a message from Tiffanyaa but I cannot find it.  Does anyone else have this problem?

Comment by Celia on October 16, 2013 at 10:38am

Welcome to the 101st person to log on to this site, but I'm not sure who you are ! I hope you find the contributions here helpful. Best wishes !

Comment by Annie on October 16, 2013 at 10:19am

Very wise advise, Alice. Thank you. I'm sure that it would be much healthier emotionally if I could just take a break from thinking about ways to manage my ffa.

Comment by PamW San Diego, CA, USA on October 15, 2013 at 9:32pm
Karen, when I started Plaquenil (generic) I itched like a crazy person, especially my hands and feet. I told my dermatologist right away and she said that it was a side effect of the drug and that I should try to work through it to see if it subsided. She really didn't want me to stop taking the drug. She suggested an antihistamine such as Zyrtec during the day and Benadryl at night. Perhaps that would help your rash. Costco sells a generic Zyrtec that is very inexpensive compared to the brand name.
Comment by Alice on October 15, 2013 at 8:16pm

Anne,a very wise Chinese physician gave me some good advice years ago, but it took me a long time to understand what he was saying. When I complained that I didn't understand why I wasn't getting any better when I was trying so hard, he responded, "Perhaps you should try softer." It works for me!

Comment by Annie on October 15, 2013 at 4:04pm

Alice, thanks for the yoga nudge. You must have read my mind. I was just thinking I need to get back to yoga. I have a couple DVDs that are so relaxing I sometimes fall asleep at the end, but I usually choose a fat-burning workout instead. I think slowing down is exactly what I need. My life has been so busy lately that I go until I crash instead of taking time to relax. I don't think I'll get control of this ghastly disease until I start nurturing myself.

 

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