Comment

Comment by Maddy, California, U.S. on July 15, 2013 at 3:37am

Judy, Yes!! I have the extreme sweating around my hairline a lot! I also have wondered if this was somehow connected to the FFA. I also get hot flashes, but the worst of it is on my face, and especially my forehead. Hot weather also brings mine on, but other things seem to trigger it too. I am currently away on vacation, but wanted to chime in on this particular issue. I think it IS somehow connected.

Comment by Debs on July 15, 2013 at 2:53am

Rita, you don't remove your own eyebrow hair to have them tattooed. People have their eyebrows tattooed that don't suffer with hair loss simply as a beauty treatment. You tattoo over your eyebrow hair. I had my eyelashes enhanced a couple of weeks ago - this is a very fine tattoo in the lash line. I am a huge baby and can't stand anyoone going near my eyes - however you look to the corner of the room so you don't see the practioners hand coming towards your eye and they are out of your line of sight.

I can't stress this enough - please ladies if you are losing eyebrow and eyelashes get semi-permenant makeup (tattoos) I know it is pricey but once it is done it is a huge relief and one less thing to stress you out with this condition. There is no need to struggle with our eyebrows/eyelashes when this beauty treatment available. You go back approx 18 months just to get the colour topped up. This is not as much money as the initial treatment. FFA is not a cheap condition and the bottom line is we have to pay out quite a bit of money to normalise our appearances. I am delighted with my eyebrows and eyelashes. It really does wonders for my confidence and self esteem. XXXXX

Comment by Rita - Canada on July 14, 2013 at 11:39pm

Hello Donna, I am in Ontario. It is definitely a daily chore to fill in my sparse eyebrows and will consider tattooing when I feel ready or perhaps fed up. When you say give up your eyebrows, do you mean when they tattoo, the brow hairs you had will be removed.? I would really love to have the eyeliner but I have a real issue with even an annual eye exam, probably couldn't do it unless I'm drugged & one must keep their eyes open so doesn't sound too promising for me.

Comment by Judy on July 14, 2013 at 9:51pm

Terry, I am another with the extreme sweating, only on the face, mostly forehead, appears unexpectably and mostly in the hot weather - alot like "hot flashes" which I am many years past. Several years ago my doctor thought it was a hormonal imbalance and gave me premarin (didn't help).
When I was diagnosed with FFA I thought that maybe this forehead
sweating was the cause???
Anyone else have this???

Comment by PamW San Diego, CA, USA on July 14, 2013 at 9:13pm

Donna, how long have you had FFA?

Comment by Donna on July 14, 2013 at 8:50pm

Hi Rita. I am in Saskatchewan, Canada. Where are you? I have had my eyebrows tatooted for 7 or 8 years now. I would not delibertly give up real eyebrows for this but when you have no eyebrows left it is a great solution. This year when I was getting my eyebrows touched up I got permanent eyeliner and I love it. I have very sparse lashes left so it gives my eyes some definition and I don't think it looks weird and so time saving when doing makeup. Main thing is to be sure the person doing it is very experienced abd has a good reputation.

Comment by PamW San Diego, CA, USA on July 14, 2013 at 8:28pm

Itchiness is definitely part of FFA and LPP. I think it is because of the inflammation, which is destroying the follicle. I have been taking a vit d supplement for many years now.

Comment by April on July 14, 2013 at 8:23pm

Hi everyone: ) just wanted to add that I just had my vitamin d levels checked and I was also very low, have started a supplement. Also, I have not experienced the sweating, but I do have itching all over my entire head, forehead and sides of my face. Does anyone else have this? Is it related to FFA? My doctor doesn't think it is related but I'm not so sure.

Comment by Liz on July 14, 2013 at 7:20am

Hi everyone. Hope you are all enjoying the sunshine :o) I have just had the most fabulous week in Cornwall. Whilst I was a way my mum had a diagnosis of FFA by a dermatologist where she lives. Her dermatologist said it was the first case of FFA that she had ever seen. Anyway, I'm guessing that confirms a hereditory link, or that mum and me passed under a toxic cloud some years back. Hope you all have a fab rest of your weekend xx

Comment by Annie on July 13, 2013 at 10:07am

Terry, I had some sweating while my body was adjusting to the topical steroids the doctor prescribed for my scalp. This is normal and just lasted about a month for me.

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