Comment

Comment by 2Dachshunds on February 12, 2019 at 10:56am

Good to know about the sale with Ananda, that is the brand I have been using the oil and the salve but now just put salve on hairline.

So I have white or silver discs where each hair follicle comes out. Then around that is redish skin patches.  My derm says that is the disease, want to check with yall because I dont have little red bumps.  So now my hair on forehead is falling out faster I think, my cowlick that I used to fight with forever is getting smaller and

smaller.  Sigh, so sad, I dont want all my hair to fall out : (

Comment by Minter on February 12, 2019 at 8:19am

I've been giving the nasal spray a try on my "forehead" hairline where I have very tiny red dots at the base of the hairs (it has been a very half hearted try though, as I keep forgetting to do it ) :-/  

But- I did try it a couple of times on my forearm/hand when it was super itchy , just spritzed some on and rubbed it in and it definitely made a difference in the itchiness level- so it is worth a shot, at least for the itchiness/irritation and the cost/side effect level is way lower then some of these drugs I would think.

I just ordered some CBD (hemp) oil also, the brand is Ananda Hemp they've got a deal going for 20% off until the 15th so that gave me the incentive to give the oil a try.  

I've been using their CBD salve/ointment on my achy hands and achy neck which also helps immensely with the itching/irritation and very much with the arthritis/middle aged hands pain and now I want to try the oil internally and maybe dab a bit on the hairline and see what happens.  

Halfbakedwho, good to have you on this side of the world!  Enjoy your time in FLA, I hope you can grin and bear it with Mom!  (I have one similar too, sighhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh)

Comment by Anonymous on February 11, 2019 at 7:46pm

Hello,

Has anyone ever tried cortisone shots during an outbreak?

 

Comment by illustr8r on February 11, 2019 at 6:11pm

@HBW I haven’t tried the NasalSpray on my scalp yet. I will try it at some point. It’s is an interesting treatment to consider and less harmful I’d think than taking the immune suppressing drugs they like to prescribe. The lady who posted that hasn’t reported back yet on how it’s working. 

Enjoy your stay in the states! :)

Comment by Halfbakedwho on February 11, 2019 at 5:41pm

I am in the States right now. Is it true, Illust8r, that I should get nasal spray? 

My mom has noticed the baldness - before she kept telling me over the phone that it couldn’t be as bad as I thought, etc. Now she tells me to pull my hair back off my face, then she says « oh no you can’t - it looks weird - what are all those veins there too? » So I can’t pull my hair back and wearing it pushed forward looks a bit odd - I am in « I don’t know how to wear my hair » territory now. It’s still not noticeable per se, but I can’t wear my hair in a way that would be flattering either (which would be pulled off my face a bit). 

OK I am in major jet-lag modee since it’s 5h30 PM States-side and 11h30PM my side -so if I am a bit rambly be nice : )

Please send me your ideas of over-the-counter things that help you that I could find here. 

Mary - I have doxycycline that I constantly forget to take. I really only use topical treatments. I am just so wary of putting powerful meds in my system on a consistent basis. I am on an antidepressant that I will need to take forever, and that is plenty. I am sorry you went through so much illness - but I would prioritize my bladder over my hair (as one would, as you probably will too). Take good care. 

Comment by Kandy15 on February 10, 2019 at 3:01pm

Hello all,

Has anyone tried  treatments to purify and detoxify their scalp and hair funnels by eliminating impurities and sebum that block the vital development of their hair?  I went to a hair restoration salon yesterday for a consultation about bonded hair and the owner recommended that I try this detox treatment first.  She seems to think that it could help me keep what I have for another 5 years or so.  I just sent her my "journey" of dealing with LPP and FFA for the last 3 years along with questions.  She works under a trichologist and will forward my email to her for review.  The salon owner has been doing hair restoration for 25 years, but she was not familiar  with the terms LPP or FAA but was familiar with cicatricial alopecias.

Comment by Plf on February 8, 2019 at 5:18pm

Thanks Lu, haven't got to derm yet, busily dealing with r/O bcc'sfrom my face, too much sun exposure as a kid..and now all the scary talk about not using sunscreen!!  Hairline seems to have stabilised but then again.may be just deniel.  Has anyone in Australia found a good sunscreen with minimal chemicals?

Comment by Lu on February 7, 2019 at 4:38am

Hi Plf,

Nope, they didn’t push anything .. even when I asked if I should be using any special product.

How did your dermatologist appointment go?

Comment by Plf on February 6, 2019 at 6:14pm

Thanks Elizabeth W, now if only Australia would follow suit!

Comment by Toby on February 6, 2019 at 6:07pm

Great news Elizabeth. So glad to see Key West stepping up to the plate to get oxybenzone and octinoxare out of sunscreen we put on our bodies. Now if only the rest of Florida will do likewise.

Florida resident!

• ‹ Previous
• 1
• …
• 39
• 40
• 41
• 42
• 43
• …
• 507
• Next ›
• Page