Comment

Comment by Alice on March 7, 2013 at 3:56pm

Thanks for re-posting the TED talks link, Susanne. When the speaker was talking about bald women in the movies, I immediately thought of the film "Grey Gardens", in which Drew Barrymore plays a woman w/ alopecia who a relative of Jackie Kennedy and wears turbans.
I don't have a favorite site for scarves, Debs, but have picked up some lovely vintage silk ones at second-hand shops. I've also been buying patterns for hats and headwraps, since I make most of my own clothes. Did I mention that I a bit of a cheapskate?

Comment by Simone NJ USA on March 7, 2013 at 3:28pm

Hi Everyone:

Debs..you look like someone from the roaring 20's!!! Nice look!!! Is this one of the hairpieces you recommended?

Comment by Kath UK on March 7, 2013 at 12:44pm

Debs - you look really great in the curly wig. I'm sending for a Henri Margu fringe thanks to your reccomendation. Hope it is as successful as your one.

Comment by Jules UK on March 7, 2013 at 11:51am

Debs, you look absolutely fantastic! You're sounding so confident and positive. Curls suit you!
Susanne, I have been careful about eating sensibly and thought I was actually eating better..... But just have that anaemic feeling. And I really miss baking. I've been gluten free for about a month and paleo for 2 weeks and it hasn't made a difference yet. I don't think I have the staying power if it's not helping...
Thanks for the link to TED. I missed it before.

Comment by Susanne on March 7, 2013 at 9:22am

Jules - Debs had posted this some time ago. I'll repost it here. http://www.youtube.com/watch?v=lrJom48KQA4
It surprises me a bit to hear that you're so tired from the paleo diet. I have found that if I follow it an eat right, I have plenty of energy, but I've also found it to be so restrictive that now I'm just leaning toward it rather than following it strictly. I've been eating some rice and having some wine. I've come to the conclusion that fanatical obsession with these things just isn't realistic for someone like me. Since I started eating gluten-free a couple of months ago I've seen less inflammation - with occasional flare-ups, but I have no illusions that my diet is going to bring this thing down.

Comment by Debs on March 7, 2013 at 9:03am

IMG_1095.JPGOMG just got the first of my 2 Henry Margu wigs, only ordered a couple of days ago, very good service and the website gives us VAT relief. My page band wig should be here in a couple of days. At least I am having a bit of fun from this condition.IMG_1096.JPG

Comment by Jules UK on March 7, 2013 at 4:35am

Susanne, how is your paleo diet going? I feel so tired, I think I'll have to abandon it. Pretty sure I'm eating well and have found some great websites with recipes.I'll give it until the weekend. Ther's no change to my FFA. By the way, what was the TED talk you mentioned? X

Comment by Susanne on March 6, 2013 at 7:55pm

Debs, thank you so much for sharing the TED talk. Pretty amazing.

Comment by Debs on March 6, 2013 at 10:30am

Alice I think it is a great idea to use scarves and hats to be comfortable especially if you are experiencing itching. I have some scraves too so I am not always in a wig. Went to the gym earlier, I wear a wide headband that does me very nicely. I don't fancy working out in a wig but some people do manage it I know. If you have a favourite place to get your scarves do let us know, it is nice to have a recommendation. XXX

Comment by Alice on March 6, 2013 at 9:19am

Debs, I've seen lots of women of African descent with hairlines similar to FFA. When I asked my derm about them, she said they were likely "traction alopecia", from pulling the hair back too tightly. I'm certainly not brave enough to wear a bun or ponytail, but the 2 things I've always wanted to avoid were wigs and dentures. Fortunately, my teeth are sound and I haven't lost enough hair [yet] to consider a wig. I like to think I will be able to get away with scarves and hats but that remains to be seen. As itchy as my scalp is, I think a wig would drive me crazy.

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