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Started by NorthCarolinaMama. Last reply by lordiron 7 hours ago. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
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Hi Celia, I have 3 different brands of shampoo/conditioner for synthetic wigs. I am in no way an expert on this... I use the Jon Renau shampoo last time and their conditoner to stop static, I am happy with the result, I also have some Gisela Mayer that I have yet to try. I have purchased it from any online wig supplier - they all sell styling products. However, I have been advised by a wig salon that they use baby shampoo and fabric softener for all their wigs and it works just as well. The wig in my photo is Julia by Jon Renau, I bought it for a bit of fun from the wigtrendz website. Glad you had a fab holiday Robyn. I have only been skiing once and I am too much of a wimp to try it again.
Hi everyone I haven't been on for a while I've just come back from a skiing holiday in Les Arc in France. It was lovely not thinking about my hair all the time, only when I took my hat off!. I had more important issues to worry about, like how am I going to get down this slope without taking out all the other skiers on the mountain! it's only the second time I've been but I really enjoy it but I wish I was better at it!
Well there has been lots of conversation, Celia I'm so sorry about your sister in law I'm sure she will be fine she sounds a strong lady.Congratulations to Robyn on your new granddaughter you must be so proud! Debs, I love your new photo I can't believe that you are wearing a wig, you give us all confidence that if the time comes when we have to wear one we can look that natural too!
I was told that dying my hair will not make any difference now as the damage is done below the skin, but I have dyed my hair since I was 18 as I had my fist grey hairs when I was 16!
I have had hayfever since I was 23 and over the past few years I have suffer throughout the year with inflamed nasal passages and in the last couple of years I suffer from really itchy salivary glands which swell and I look like a hamster after I eat certain foods! So yes I am definately one who suffers from allergies!
Pam I poised this question about hair dye on a UK based alopecia website and I had ladies tell me they had never used chemicals on their hair and had FFA. Like you I have dyed my hair regularly over the years. My derm has asked me not to as he believes that the chemicals women use on their hair in modern times may well be a trigger for FFA. I have not dyed my hair since I first saw him last July - it has not made any difference. Since I am wearing wigs now I am not going to dye it in the future and am using sulphate free shampoos to try to be gentle on my scalp.
Sorry about your news Celia. Sounds like she's a very strong woman and a survivor, having gone through this before. Keep positive thoughts!!
I was wondering if there is anyone in this group that has never dyed their hair. I have for the past 20 years. I went to get my haircut yesterday and right away my hairdresser mentioned something was going on, she pointed out more hairloss on the side of my face on my hairline. So much for my Dr saying I looked better. Who do you go by - your Dr that is a hairloss specialist or the woman cutting your hair for the past 22 years every few weeks? My hairdresser is the one who encouraged me to keep looking for the correct diagnosis when I was first told I had Alpecia Aerta. She didn't believe it. She also feels I should stop dying my hair, but I am really gray for my age. Has anyone stopped dyeing their hair and noticed any improvements?
Celia, I am sorry to hear the bad news about your sister-in-law. The fact that she has a diagnosis and can begin treatment immediately is one positive I guess. I wish your family the very best in the coming months.
Hi ladies,
Thank you for the best wishes on our new granddaughter! I have been reading the discussion with interest and there are certainly a lot of theories about aspects of the condition which I think helps us to maybe recognise aspects of our own particular circumstances. Liz since I was young I have suffered from heyfever and in my 20's asthma(mild). In the last 10 years my asthma has been non-existent and in the last 2 years my heyfever has reduced so much I really don't think I get that anymore - it makes me wonder whether the Planquenil I have been taking for almost 2 years has anything to do with the heyfever disappearing - it could be a co-incidence of course (a positive side-effect from medication for a change would be good though!) I'm not sure about the shampoo theory as I have used all sorts over the years. I agree with others about the economic circumstances dictating whether women follow through with medical treatment - many of us I'm sure hesitated to get advice as we saw it as such a 'small thing' to worry about given other more serious diseases. I certainly felt that way when I saw my specialist, particularly after my GP (female) thought it might have been my hair straightener pulling my hair out....although she did give me a referral to the specialist "just in case I was concerned"! Needless to say I don't see that doctor anymore! I also agree that FFA has probably been around forever, but in generations before us women have accepted this as an older age condition. When I was much younger I do recall seeing ladies with what looked like a receeding hair-line which I suspect was FFA. It sounds to me like we are very resourceful women, particularly when it comes to grooming so it's great to hear what others are doing to minimise the appearance of our 'receeding tresses!' Thank you for all this great information. Robyn
Hi everyone. I took a deep breath and got my haircut today. It's the first time I've had it cut since my hairloss started to show more. A lovely student was cutting my hair who has one more haircut to do before her training is finished. She was very lovely about my hairloss and showed me ways to brush it to hide it better. One thing I found interesting was that she had never heard or been told during her training that there is such a thing as scarring hairloss. She was led to believe that in all forms of alopecia the can grow back. It's a shame that hairdressers who are training now seem unaware of this condition.
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