Comment

Comment by Judy on January 13, 2013 at 8:58pm

And mine had the white flakes before I was diagnosed. I was putting baby oil on it. My redness was along the forehead and temple at the hairline, tiny red bumps. Now it is white. From the sound of these posts it seems the clobesol helps or eliminates the irritation.

Comment by PamW San Diego, CA, USA on January 13, 2013 at 1:58pm

Crazy disease.

Comment by Debs on January 13, 2013 at 1:11pm

Hi Pam, I don't have any white flakes. My scalp doesn't feel any different than before I had FFA. I have the dermovate lotion, I am not using it simply because I have not got any reddness or visible iritation. My hair however is continuing to receed.

Comment by KarenGinny - Iowa, US on January 13, 2013 at 12:29pm

PamW - I thought I would comment on the red scalp issues, My scalp has times when it's relatively normal but right now in winter it is really dry and flaky and a little itchy - like dandruff. The front bare parts of my scalp are white and not irritated - only irritation is on the part with hair. When my hair loss first started 1 1/2 years ago it was more irritated and very itchy - that's when I first saw my dermatologist and was prescribed the Clobetasol. I haven't used that in a while and usually use T-gel shampoo to control the itchiness and flaking. I'm not on any other meds since my doc didn't recommend anything as most of my hair loss was already done. If it gets worse I will go back to the clobetasol.

Comment by PamW San Diego, CA, USA on January 13, 2013 at 11:37am

When I first went to the doctor, she took a boat load of tests. Everything checked out, but I am scheduled to go back this week and I am going to ask. Was the redness on your bald areas? my redness is in the center part of my scalp. Bald areas are white. Also, does anyone have white flakes?

Comment by Judy on January 13, 2013 at 12:24am

I have been using it every 2-3 days on all the "bare" areas but that is a question I need to ask her by email. Forgot at appointment. Originally she said to use every day or every other day - that was when it was so red.
Pam, have you had your blood checked? She sent me for 2 tests that my regular doctor hasn't done. Also she was questioning that my protein level was low and iron near low mark. Both are important to be near to normal.

Comment by PamW San Diego, CA, USA on January 13, 2013 at 12:04am

I only use it when my scalp is itchy or inflamed. how often do you use it?

Comment by Judy on January 13, 2013 at 12:03am

Thanks Pam. I always go to the site through email and wasn't sure of the website. I am happy about the interest she showed.
Yours (and others symptoms certainly seems to be mysterious the way they change. How long are you supposed to give Actos a trial? Don't give up if you still have some time left - there are always "ups and downs" for most things. But still, I wonder why yours can change so much. How often are you using the Clobosel?

Comment by PamW San Diego, CA, USA on January 12, 2013 at 10:44pm

There is nothing better than hope! I had a whole week of a peaceful scalp and it is acting up again today - redness is back. I think you should tell her about alopeciaworld.com and to look for the frontal fibrosing alopecia group. I am thinking that Actos really isn't helping, so I am not sure how long to stay on it.

Comment by Judy on January 12, 2013 at 10:27pm

She also said sometimes it is possible for hair to return in some degree. Sorry I can't be more specific because I got a quite confused about that. I was so surprised as I thought it was impossible for hair to grow back with FAA.
One thing very intesting at the appointment was: first appointment she took photos of the hairline and it looked AWFUL!!!! Lots of red bumps and inflamation. So different compared to this time - 2 months later

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