Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: on Thursday

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by anettemandell on Thursday. 9 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Judy on November 21, 2012 at 3:14pm

Happy Thanksgiving from me also. Even though we all have this crummy condition there are so many things to be thankful for so I am forgetting FAA tomorrow except being thankful for this group and realizing there are other women having similiar feelings.
I too am interested in the nutrition question.

Comment by KarenGinny - Iowa, US on November 21, 2012 at 11:32am

Jules, I would like to hear about the effects of diet and other supplements as well. Although I don't know if it would help me regain hair, if it would make my existing hair stronger that would be good. Happy Thanksgiving to everyone from the US! I am thankful that I found this group and that we all have a place we can come and talk about this condition with others who understand. Have a good day!

Comment by PamW San Diego, CA, USA on November 21, 2012 at 10:00am
celia, I have a question for Dr. haries. Dr. vera Price, who has done much of the research here in the US says that Actos can work for FFA. can you ask him about it. She says that is the only drug which has shown to stop the hair loss. The other drugs just control the itching, burning, etc.

by the way, the white flaking is not the cream. It is our scalp reacting to the inflammation. it is called scaling.

I know, it is not a holiday for you, but tomorrow is Thanksgiving in the US. So, I want to wish us all a Happy Thanksgiving. And to my friends in the UK, thanks!

Celia, also dont be upset after the tatooing. Your brows will be really, really dark. it is a shock after not having any for a while. Just be patient, they will fade. I just had a touch up last Saturday because they were so light.
Comment by Jules UK on November 21, 2012 at 9:39am

Bold - but hairy.... sounds good to me!

Comment by Jules UK on November 21, 2012 at 8:45am

Hi everyone. Celia, I hope Dr Harries is worth the trip. I've booked a travelodge for the night before my appt with him because it's quite early. The danger is that we pin too much hope on him. I'd be interested to know what he thinks about hair products - for styling or colouring. Should we avoid them or can he recommend any? Also, is there anything - such as supplements or particular foods - that might either aggravate the condition and be avoided, or help hair growth and be included in our diet? I'm just desparate to be doing something, anything! I'd dye my hair green if it helped!

Comment by Judy on November 18, 2012 at 11:45pm

True....... Recently, before I knew I had FAA, I visited my family and forgot my eye makeup --- my grandchildren were fascinated!! My grandson kept telling people "Look! my grandma doesn't have eyebrows!!"

Comment by Lace on November 18, 2012 at 11:14pm

What would be worse is if you only put one on!

Comment by Judy on November 18, 2012 at 10:06pm

No, it really doesn't itch, only occasionally. I guess I am lucky. Thanks for the tip on Good Person. Are you happy with them (tatoos)?
Yesterday I bought a chubby eyebrow pencil from Clinque - I think I can learn to do it but what a PAIN!! (especially when I go out, forgetting that I didn't put it on!!!!)

Comment by PamW San Diego, CA, USA on November 18, 2012 at 9:58pm
judy, I went to. Good person for eyebrows. She is in Poway.
Comment by PamW San Diego, CA, USA on November 18, 2012 at 9:56pm
It is good that the redness is gone. Does your head itch or burn like mine?
 

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