Comment

Comment by Lynn555 on April 12, 2018 at 11:27pm

I also take zyrtec, well, called Reactine in Canada, plus Clobetasol when I get the itchiness. Sometimes even benadryl as well. I haven't been offically diagnoised yet. I see a dermatologist in Aug. The weird thing is that I thought with this disease you don't tan where the scars are. But I have tanned and don-'t see any scarring, plus I see lots of minature hairs. I feel like could I have a receding hairline like a man? Weird. Soooo confusing. It seems like a long time to wait to see the dermatologist...I guess all I can do is do what I'm doing because there isn't a cure. I'm also trying to get my iron up as I'm anemic. I wish I had answers for you .. and I. Take care. I'm so sorry you are going through this. 

Comment by illustr8r on April 12, 2018 at 10:23pm

@HBW I don’t have any answers and I’m sorry that you are going through a bad flare right now. This condition just sucks and it doubly disheartening when you are having a calm period which lulls you into a false sense of security-then blam-your head feels and looks like it’s on fire.

My last flare was helped by fixing my B12 deficiency, castor oil and Clobetasol. People on the LPP site take Zyrtec for itching. I have used that and it helps. Itchiness hits me st night for some reason. Take care HBW!!! I hope you feel better soon.

@PBSunshine I’ve heard of it but haven’t tried it. One person on another Alopecia forum had success with it but they didn’t have FFA, if I remember correctly. :(

Comment by PBsunshine1 on April 12, 2018 at 9:59pm

Has anyone tried stem cell to treat FFA?

Comment by Halfbakedwho on April 12, 2018 at 4:34pm

Jeez it’s a bit scary tonight - I have a LOT of inflammation right where I don’t want it - right at the top of my hairline over what used to be called my « forehead ». Now there is less and less definition between what is « head » and « forehead » so I don’t know what to call anything anymore. No more sideburns, so that is also now just scalp, or « ex-sideburn ». 

In any case I’ve never seen my scalp this unhappy. No I am not more or less stressed than I always am (and understand that to mean I am always « more or less stressed »). I have been applying Clobestasal (I can never spell that) twice a day. More acutally, though I probably shouldn’t. I take my tetracycline. 

I am going to call the Dr. tomorrow... but I don’t know what he can do. 

Please share your experience of dealing with bad flare-ups, and how you handled it? Do you call your Dr? Do they change your treatment? Is there anything else I could do to calm this down? It’s obvious that the patch that’s inflamed is on its way to falling out - but if there’s something to do (that doesn’t require weird diets, or too-scary meds) please tell me. Should I consider injections? 

It feels like a G-D emergency... and my doctors are extremely unavailable : (

Thanks for listening to me vent. : ((

Comment by AnnieMay on April 11, 2018 at 4:55pm

Hi Christi- I stopped using it as well. I feel like it made my heart race too? and my scalp itched more. I haven't noticed any increased shedding. I feel like every time I use the topical steroid my scalp seems so sensitive and irritated and I thought it was supposed to help with that. I'm very sensitive to medications so it could just be me or the disease or ??. . .No one knows. . . 

Comment by Beez on April 11, 2018 at 4:02pm

Christi I used it for 8 months and had to stop because my scalp became inflamed and scaly. Didn’t notice any increase in hair shedding from November til late March. I don’t know if the increased hair shedding now is from not using minoxidil or if it’s just the cycle of the disease (waxing and waning no matter what meds are used or not). 

Comment by Christi Q. on April 11, 2018 at 2:14pm

My hair doctor just asked me to quit using my Rogaine/Minoxidil for 2 weeks because I have been having dizzy spells lately and all blood work/eye doctor/nuerologist have ruled out anything else that could be causing it. I'm terrified to go two whole weeks without my Rogaine! They don't think it will cause a shed in that amount of time. Anyone else had to quit ....and what was your experience?

Comment by Plf on April 9, 2018 at 5:34pm

Thanks Minter, it's going to be a very special day, a lovely celebrating... certainly puts things into perspective..thanks again to all for the ongoing support

Comment by Minter on April 9, 2018 at 8:15am

@Plf, good luck and congratulations on your daughter's wedding!

Comment by Minter on April 9, 2018 at 8:14am

Oh that is not a good side effect with minoxidil! I never heard about the heart rate & with my new found skill with getting every side effect that would happen to me :-/ from what else I am reading, probably best to not start it at this point of my FFA life- 

• ‹ Previous
• 1
• …
• 83
• 84
• 85
• 86
• 87
• …
• 507
• Next ›
• Page