Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Pascal on March 17, 2018 at 2:54pm

Anonymous NAC and L-Tyrosine are to be taken with vitamin D3 (according to IAT). Unfortunately I don't know for how long neither how much of vitamin D3 exactly should be taken, but I'll give it a try.

Comment by Pascal on March 17, 2018 at 2:50pm

In my research about this disease I came across an interesting fact; other than viruses which can trigger Lichen (hpv and herpes virus), it seems that allergy or sensitivity to metal dental and other implants or fillers can be a big risk factor for autoimmune diseases. I do have one dental implant and am considering to remove it but before that I will make the Melisa metal sensitivity test. 

Comment by Pascal on March 17, 2018 at 2:44pm

Annie May I have rosacea for 10 years now; before a year and a half I wasn't that red any more; but then my perimenopause started and I developed Hashimoto and FFA. 

Comment by AnnieMay on March 17, 2018 at 12:07pm

I'm curious how many of you have rosacea as well? I had issues with it years ago but it seems to have reared it's ugly head again. Or is it from FFA? My skin feels hot, around my eyes are red and itch and my forehead feels so tight. And my scalp is red and feels hot not just a long the hairline but all over. Feeling SO frustrated by all of this.

Comment by CurlyK on March 17, 2018 at 8:44am

I had posted a while back about losing eyelashes. I have been using Rapid Lash which I got from Walgreens drugstore. It, thankfully, has worked. My lashes have grown really long. They are not full and lush but they have definitely grown back to the point where I can put mascara on them and look decent. 

I have had my eyebrows tattooed on. I use a pencil on top of them to darken them a bit but overall I’ve been happy with them. 

Comment by Minter on March 17, 2018 at 8:28am

Donna, do it! Microblading was the best thing I've done for myself- even before this all started I had pale blonde, not great brows and every. single. day. it was powder, pencil, repeat, check throughout the day to make sure my brows were still "there" then I discovered tinting for brows but still had to powder & pencil to fill them in and they just looked fake and made up and not good at all. 

It took me a good few months to finally do it after I first started thinking about getting my brows done, but after going to my first consultation with my (awesome)! technician I felt much more confident about it and am thrilled I did it! Yes, the first week or so is awful because of the healing, but once that is done it is totally worth it-   If you decide to do it, look up your local technicians and check them all out, go to a few consultations and see who you feel comfortable with :-) 

Comment by CarolJ on March 16, 2018 at 11:11pm

Hi Pascal, just read your post from 3/2 and your wondering about underlying infections. I believe there are. Have you heard of leaky gut? or the Medical Medium? Google both. Very interesting info. I have gone through treating leaky gut/candida among other things with diet and it has helped tremendously. My hair loss has not progressed in the last 2 years. Besides the hair loss, I had rosacea and LLP around my lips and those are completely gone.

Comment by illustr8r on March 16, 2018 at 8:20pm

Got my eyes checked today and my eye doctor knows all about my FFA and how it affects my eyelashes and brows. She said that Latisse is developing a treatment for eyebrow loss (probably stronger than the one for lashes) and also for hair loss on the scalp. Whether that will help us or not is unknown but I’m excited about the brow formula. I brush Latisse across my brows after I do my lashes and they have filled in a bit, boosting the look of my microbladed brows.

@Donna, go get your brows done! Do research and find someone with happy customers and lotsa before/after pics. Im so happy that I did. :)

Comment by Anonymous on March 16, 2018 at 8:13pm

Donna, I had my eyebrows micro bladed last fall. It's nice to have something there. Is it perfect? No. That's why I didn't want permanent tattooing. It fades between one and three years. No one else seems to notice the shape is a little off and there's some variation in how the color took. The follow-up app't hurt more than the first app't. I'll do it again, but I'll draw in my shape, and see if there is someone else who I might like better. 

Comment by Donna on March 16, 2018 at 7:26pm

Has anyone had their eyebrows micro bladed?  I’m getting closer & closer to doing it. Just  nervous. I have almost no eyebrows at all. But hear nothing but good about it,

 

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