www.alopeciaworld.com
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Comment
yes i also have ridges on my thumbs.. not too bad but they are there. and been for maybe close to 10 yrs. i think they have improved over the past couple of years with supplements etc. like biotin, collagen peptides by vital protein. hoping they help my hair loss more than my nails! although my loss is slowed to i believe normal since i removed gluten, dairy and sugar although i do have either of these at times, very imfrequently but we all have to have sugar...please & thank you
DW, I also have had a ridge in my thumbnail for at least the last ten years, I hate it as my nail is always tearing really low at the ridge and it hurts :-(
Nina Jones, lucky you on going off to Corfu and having a hairdresser daughter! Enjoy!
Yes, I have indentations in a couple of nails, that began before the hair loss became noticeable - hence why I get them done each week to make them look pretty. Love your attitude too Minter (and the name) - I'm off to Corfu tomorrow and yesterday I was in that salon getting my hair all glammed up - highlights etc - and I take real care of it now (fortunately my daughter is a hairdresser so I get the top end stuff all for free!!!) and I reckon it looks better than it's ever done, like you said. It's long and bouncy and I can still flick it back. Funny, I never really noticed my arms or legs until recently, when I started reading this forum, and like everyone else it seems, hairs there are minimal (still, saves me on the leg waxing, so every cloud has its silver lining).
Right on Nina Jones! Love your attitude & strength and it sounds like you have yourself a fabulous life!
Yes and yes I agree completely, creativity is key for dealing with FFA- I have my powders and potions that I use every morning to deal with my hair and then that is that, I go on with my day as there is no way I am going to let my crappy hair beat me down. I had bad hair days when I had more hair and I will still have bad hair days with less hair- but actually now that this has happened I am paying more attention to my hair and taking better care of it then ever before, so ironically, it looks better now then it ever did.
I keep reading about stress being a trigger and I had no stress, no specific stressful event, this just happened over time- one day I noticed I had no hair on my arms and then I noticed I had no hair in front of my ears. I don't really have any autoimmune issues that I am aware of, never really used sunscreen a lot, took fairly good care of myself, never to extreme in anything- as my doctor once said to me, I was boringly normal!
The only thing I can point to as to the cause of for me is my mother. She didn't start losing hair until her late 60's but it started for me at around 50. So that is really the only thing that I have to "blame" for my FFA as I don't have any of the other triggers that I read about here. Again, the mystery of FFA, why, how, what causes it!
Hiya - it does seem also that a lot of us are cursed with autoimmune nonsense- mine is an underactive thyroid gland and that was picked up when I was in my early 40s because of hair loss, not because I was gaining weight as I have always been quite ocd about putting on weight. Thankfully, then, once I started the thyroxine tabs my hair was once again thick and glossy. I was actually in India on a 6 month sabbatical with my husband having a whale of a time in 2010, when this wretched condition was first spotted, not in the least bit stressed (although stress is always a factor, whatever the situation, at times). I was having highlights put in my hair by two beautiful Goan girls and they started making comments in their own language about something they were seeing in my hair - I thought it must be nits, or lice (wish it was - easily rectifiable) but no, it was minute bald bits all along the side of my hair line. I tried everything while I was out there, over the counter stuff, but then I got the devastating news when I was back home that it was permanent hair loss, AND progressive...
Seems a lot of us, from what I'm reading below, have spent time really caring about how we look, I'm 62 but my war paint goes on every morning, I love clothes, I look after my weight, eat healthy, have had facial CASI's for about 18 years, get my nails done every week, travel all over the world and off the beaten track, have a very demanding but fulfilling job, kids, grandkids, a great hubby, and am determined this bastard condition will not get the better of me...especially as I am a recovering alcoholic on top of everything else and haven't had a drink or anything else for more than 26 years - no fags, nothing. Jeeze, I live a healthy life!!!
I bet you if we all met up, we'd all agree we are a fabulous looking bunch. Creativity is the key. Yes, I made a bit of a cockup with my second lot of tattoos that were supposed to look like hair but were nothing like, but after the initial weeping and wailing from me, I'm doing something about it and the laser treatment is working slowly but surely and I'm already planning on getting more done at the end of it. We got to keep smiling girls, and share our stuff, and try out ideas...there really are worst things to have out there, even though it doesn't feel like that at times when we have one of those truly bad hair days, but onwards and upwards, as they say x
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2025 Created by Alopecia World.
Powered by
You need to be a member of Frontal Fibrosing Alopecia to add comments!