Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Jean on May 30, 2014 at 5:20pm

Hi everyone

Reading comments from fellow sufferers has kept me sane!  We've just returned from Italy and I've been bitten to pieces by mozzies (no hair on arms or legs).  I had to get antibiotics when I got home because I seem to have a reduced capacity to fight infection.  The FFA is very slowly advancing but I'm determined that it won't take over my life.  The information on 'part wigs' has been particularly welcome so thanks to you all for your helpful and positive comments.

Love Jean

Comment by Jen on May 30, 2014 at 5:05pm

Cekia,

Thank you for creating this forum for us to use. It is much better to have contact with FFA sufferers and share coping skills. Thanks everyone for your input.

Comment by Celia on May 30, 2014 at 4:46pm

Ladies, we are approaching 2 years now of communicating on this site............................. June 2012 it began.

I believe we have all learnt from each other and have given and received wonderful support.

It would be great to hear from friends who haven't spoken for a while here.  Perhaps you have moved on somehow - that's good.

Best wishes to all.

Comment by Celia on May 30, 2014 at 12:06pm

Must have been a blip.  All that talk of Avodart !!  I lost all prompts to look at posts for a while too.  I go to an old message to get back in - strange.

Comment by Classical Anne in NC mountains on May 30, 2014 at 11:30am

Thanks, Jen.  Came thru alright.

Comment by Jen S. on May 30, 2014 at 10:51am

Test post - hi y'all -- just seeing if the post goes through.  No need to reply. 

Comment by Classical Anne in NC mountains on May 29, 2014 at 3:39pm

Hi All.  Not sure what happened, but my link to this discussion has not pulled up ANY posts since last Saturday.  Can't believe all you ladies have been silent that long!  Any idea how to rescue presumed lost posts?

Comment by Liz on May 25, 2014 at 6:28am

Hi. I had 3 friend requests this morning 2 of whom had written their email addresses for me to email some pictures to. Unfortunately as soon as I had accepted the friend requests the email addresses disappeared :o( Please could those who want pictures message me their email address again.

MJ, if you request me as a friend and then message me privately the message stays private. 

Thanks xx

Comment by silversurfer on May 25, 2014 at 6:02am
Liz I. Would love to see your pics especially of the clip on before and after . I am about to get a wig as I am now not going out unless I can wear a hat as I am so self conscious about my Hairloss sandra
Comment by Classical Anne in NC mountains on May 24, 2014 at 8:26pm

Wow, Jules!  I never imagined you could keep it on that long!  Very encouraging!

Liz, I will leave a message on your profile page, if you really don't mind sending me pics.  You are so kind to offer.  And I am so glad to know just how happy you are with all your new hair!  Thanks!

Anne

 

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