Comment

Comment by Celia on March 31, 2014 at 3:52pm

Hi Debs - I have thought for a while that the trigger for FFA is not the same for everybody otherwise it would have been very easy to spot.  The same is the case for other auto-immune diseases - rheumatoid arthritis isn't triggered by a specific set of circumstances for example.   Do you recall when we were reading that it was felt that this disease was generally seen in  post-menopausal women............not the case.   However I also think that the idea of identifying a common factor might be a possibility.  I agree that a couple of 'questionnaires/surveys' have been blunt  instruments  to be able to pinpoint anything worthwhile in terms of finding the cause. I am still off all meds apart from clobetasol. It's 5 weeks now since I saw a new derm - no results from blood tests that were to take a week - the thought was that there may be a reason for this that could be found from blood tests.....tried calling, cannot get through........

Comment by Debs on March 31, 2014 at 2:38pm

Hi Annie, we really need the researchers to take complete medical and lifestyle history from us starting with our mothers health and eating habits and medication they took before we were born. If they start at our conception and work forwards something might pop up and be a commonality. I have completed a survey but it was too general really.

Comment by Annie on March 31, 2014 at 1:32pm

Hi all, it sounds like several of us have had infections that have resulted in a course of antibiotics.  I've always thought maybe my severe ear infection might have triggered the ffa, but now I'm questioning the antibiotics.  Antibiotics have been widely used for more than 70 years, and ffa is a relatively new disease.  Is it possible that another drug in combination with the antibiotics plays a role? 

Comment by Meme on March 30, 2014 at 12:50pm

Hi all

Like Claire I had several courses of antibiotics for urinary track and kidney infections. Thanks for the advice on Ultimate Flora, will give it a go, nothing to lose.

Comment by Debs on March 30, 2014 at 12:49pm

ULTIMATE FLORA, CRITICAL CARE PROBIOTIC. 50 billion live cultures per capsule. Keep in fridge. Online in UK approx £18, you can find it on eBay and other sites.

Comment by Rita - Canada on March 30, 2014 at 8:38am

Yes C., Deb is taking the very one I found that fits my naturpaths recommendations.

Comment by Debs on March 30, 2014 at 5:27am

ULTIMATE FLORA, CRITICAL CARE EXTRA STRENGTH PROBIOTIC. 50 billion live cultures per capsule. Dairy and gluten free. Online in UK about £18

Comment by claire on March 30, 2014 at 4:59am

Yes I have also taken antibiotics for re-occurring urinary track infections. When I have also had an allergy flare up it has always been after a virus or infection.

Interesting.

Comment by Celia on March 30, 2014 at 3:55am

Rita - what is it called ?  Anybody else recommend one ?

Comment by Rita - Canada on March 29, 2014 at 11:25pm

I do not have an antibiotic history and shunned them for most of my life but tried a course of doxyclycine for my FFA re my derm and I honestly am not sure if it helped though the shedding seemed to cease for the most part. Through the time i took the med, i always took an probiotic. My naturpath said to take a quality brand which is refrigerated and contains multiple strains and the more,the better. I have recently decided to take 1 per day regardless of whether i am on this med.

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