Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by Debs on March 31, 2014 at 2:38pm
Hi Annie, we really need the researchers to take complete medical and lifestyle history from us starting with our mothers health and eating habits and medication they took before we were born. If they start at our conception and work forwards something might pop up and be a commonality. I have completed a survey but it was too general really.
Comment by Annie on March 31, 2014 at 1:32pm

Hi all, it sounds like several of us have had infections that have resulted in a course of antibiotics.  I've always thought maybe my severe ear infection might have triggered the ffa, but now I'm questioning the antibiotics.  Antibiotics have been widely used for more than 70 years, and ffa is a relatively new disease.  Is it possible that another drug in combination with the antibiotics plays a role? 

Comment by Meme on March 30, 2014 at 12:50pm

Hi all

Like Claire I had several courses of antibiotics for urinary track and kidney infections. Thanks for the advice on Ultimate Flora, will give it a go, nothing to lose.

Comment by Debs on March 30, 2014 at 12:49pm
ULTIMATE FLORA, CRITICAL CARE PROBIOTIC. 50 billion live cultures per capsule. Keep in fridge. Online in UK approx £18, you can find it on eBay and other sites.
Comment by Rita - Canada on March 30, 2014 at 8:38am
Yes C., Deb is taking the very one I found that fits my naturpaths recommendations.
Comment by Debs on March 30, 2014 at 5:27am
ULTIMATE FLORA, CRITICAL CARE EXTRA STRENGTH PROBIOTIC. 50 billion live cultures per capsule. Dairy and gluten free. Online in UK about £18
Comment by claire on March 30, 2014 at 4:59am

Yes I have also taken antibiotics for re-occurring urinary track infections. When I have also had an allergy flare up it has always been after a virus or infection.

Interesting.

Comment by Celia on March 30, 2014 at 3:55am

Rita - what is it called ?  Anybody else recommend one ?

Comment by Rita - Canada on March 29, 2014 at 11:25pm
I do not have an antibiotic history and shunned them for most of my life but tried a course of doxyclycine for my FFA re my derm and I honestly am not sure if it helped though the shedding seemed to cease for the most part. Through the time i took the med, i always took an probiotic. My naturpath said to take a quality brand which is refrigerated and contains multiple strains and the more,the better. I have recently decided to take 1 per day regardless of whether i am on this med.
Comment by Anne Louise on March 29, 2014 at 8:47pm
I have been reading a lot the past few days since my conference and it seems to me out gut is the cause of our problems but also can be the solution. So much of our immunity comes from our gut. Antibiotics wipe out the good bacteria that are essential in maintaining a healthy digestive tract. When it becomes too permeable, bad stuff can get into the bloodstream...the result of a leaky gut. I don't know enough about probiotics to recommend a brand or amount yet, but I'm sure someone out there does. I am fascinated by all of this and will continue to study and share. So far everyone that has responded to this thread has been on antibiotics in the time leading up to their FFA diagnosis. Are there any of you ladies that do not have an antibiotic history?
 

Members (602)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2025   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service