Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Debs on March 12, 2014 at 2:58pm
Jules thank you for representing us at the conference. X
Comment by Caro UK on March 12, 2014 at 1:55pm
Good luck for tonight Jules. You'll be fine! Let us know how it goes xx
Comment by Jules UK on March 12, 2014 at 1:10pm
Thanks C! I'm a little apprehensive; there was a lot of paperwork to read through, but it's well summarised on the Alopeciaonline UK website. There will be an online survey for us all to complete, in due course. Incidentally, there's a survey and opportunity for face to face interviews on www.survey.bris.ac.uk/nottingham/alopecia. It's a research study into everyday psychosocial experiences of alopecia sufferers, run by the University of Nottingham.
C, I'm also looking forward to our get-together. If you'd like a contribution to the table, let me know! X
Comment by Celia on March 12, 2014 at 12:47pm

Jules - I hope your Wed evening conference goes well.  Well done for doing that.

I am so looking forward to seeing some of you on the 22nd.  If there are any ladies who find they can now be free to join us on that day, please let me know. x

Comment by Caro UK on March 12, 2014 at 6:10am

I went to Cathy Brown for my eyebrows - she has an aesthetic beauty clinic in Mitchells Sutton Coldfield, West Midlands. She is a semi-permanent makeup and medical tattoo artist.  She trained with Nouveau Contour and is now one of their training team and teaches medical tatooing when she is not treating clients. Cathy is absolutely brilliant, great at putting people at their ease and really skilled. I'd thoroughly recommend her for anyone that lives in or around the West Midlands. www.cathy-brown.com

Comment by Debs on March 12, 2014 at 5:33am
Hi Jean, I go to Belinda Hayle too. She did my brows and my eyelash enhancement too. I am delighted with her work. I went to Belinda a year ago and am still happy with the effect. I am going back soon for a top up to my brows. I can thoroughly recommend Belinda. Her salon is in Chertsey, Surrey. www.belindahayle.com
Comment by Jean on March 12, 2014 at 5:24am

I had my (non-existent) eyebrows tattooed by Belinda Hayle last year.  Although expensive, it was the best thing I ever did!  I'm so much more confident and it's great that I can swim, do a gym workout, dance etc. without fear of loosing part of my eyebrows.  With absolutely nothing until the lovely Belinda worked her magic, my brows often looked like Morse Code, where perspiration removed patches of eyebrow pencil!!!  Although my brows are now a little lighter, I hope to get another few months out of them before I go for a top-up.  Might even go for the eye liner as well next time. 

Comment by Pam on March 12, 2014 at 3:03am

I had my eyebrows tattoed in December just before Christmas, and they are a bit too severe, rather too hard, dark, arched and straight and angled, and I think it makes me look a bit like a Angry Bird!! I now spend my time being far more aware of various different eyebrow shapes than before I had them done, but its too late!

I wish that I had been to someone like Caro, who had spent more time showing me different eyebrow shapes beforehand. Now that I have had them done I am stuck with them - at least until they fade.

However, on the positive side, it is great to have eyebrows that just stay there, and don`t wash off, and they probably look better than my own attempts at pencilling them in.

Also, I have just come back from a cycling holiday in Vietnam where it was very hot and sticky, and it was great to be able to wear a cycling helmet in those conditions, and swim, and not worry about my eyebrows disappearing! (Very pleased to say that my new hairpiece survived well too!! It was quite a test!).

Comment by Caro UK on March 11, 2014 at 7:06pm

Anne, I've lost most of my eyebrow hair and had my eyebrows tattooed last year by a cosmetic/medical tattoo artist. I had a consultation beforehand where the proceedure was explained to me, I was able to see photographs of different eyebrow shapes and we discussed what "look" I wanted to achieve. I'm thrilled with the results! Yes, it was expensive but definitely worth it. My new brows look really natural and it's great to be able to get up in the morning without having to mess about pencilling them in. I've had my brows "topped up" once since I originally had them done. Local anaesthetic cream was applied before the proceedure and I hardly felt a thing. It's important to keep the treated area clean and dry for a few days afterwards and I was given ointment to apply to reduce any inflammation but I had no problems at all. As C says, you need to use sunscreen on them and they gradually fade over time but then you just go to get a "top up".

Comment by Jules UK on March 10, 2014 at 3:48pm
I will be participating in a telephone conference on Wed evening for the Hairloss PSP (Priority Setting Partnership). The first meeting will be on May 1st. There's more info on the Alopecia UK website under Getting Involved. There will be a survey for anyone interested (ie. all of us!) to complete, in due course. Will keep you posted. X
 

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