Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Paula uk on February 27, 2014 at 11:14am
Hi All,
No,I was not born by C-section nor have I taken a lot of antibiotics in childhood or as an adult. I have taken more medication in the last 18 months than I had up to the age of 48 !
P x
Comment by Rita - Canada on February 27, 2014 at 10:09am

I too, have not been born by C section nor have had any digestive issues to date.

Comment by MJ on February 27, 2014 at 9:25am
I would like to find out if any one is attending the CARF conference. I wonder if there is a way to submit questions even if we are not attending.
Comment by Debs on February 27, 2014 at 7:36am
Hi ladies thank you for answering my question.

I was also given antiobiotics as an infant for pneomonia so this would gave added to the problem and I have read about leaky gut. Clearly when we take part in research the derms need to go back to our infancy to get the whole picture.
Comment by Celia on February 27, 2014 at 7:30am

I would probably endorse the anti-biotic theory. Oddly enough, some of us have been prescribed these in the cocktail of drugs we are taking. I am beginning to wonder whether the 'cocktail' probably exacerbates the condition, although I understand some of us feel the condition is better since being on the drugs.  The question which the derms cannot answer, of course, is whether the drugs have helped or whether the condition would have improved anyway.  What a conundrum ! x

Comment by MJ on February 27, 2014 at 7:08am
Debs, I wasn't born by C Section either, but what you are talking about sounds alot like leaky gut syndrome,which is an over abundance of bad bacteria. I started reading about it when I was first diagnosed, as I have had gastrointestinal issues for years. Probably from a lifetime of eating wrong. I believe overuse of antibiotics can cause the condition as well.
MJ
Comment by Jules UK on February 27, 2014 at 5:51am
Hi Debs, I wasn't born by C section but my daughter was and she suffers from numerous allergies. I'd never made that connection.
Liz, is your hair still growing back? I do hope so! X
Comment by Celia on February 27, 2014 at 5:50am

Hi Liz - are you joining us on the 22nd. Celia

Comment by Liz on February 27, 2014 at 5:28am

Hi Debs. I wasn't born by C Section and neither was my mum x

Comment by Debs on February 27, 2014 at 5:23am
Dysbiosis in gut caused by being born by C section. I just saw a discussion on TV where a doctor spoke about dysbiosis (this means your bacteria in your gut has the wrong type of bacteria and is harmful ) when you are born by C section, which I was back in 1963, you do t receive your mothers healthy gut bacteria during birth and this lasts a lifetime and is proven to cause obesity, Crohns etc.. Your immune system is affected. It just wonder his many of us with FFA were born by C section ?? This might just be a coincidence but since I was born by C section I wanted to ask the rest of you ladies.
 

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