Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Meme on February 12, 2014 at 12:20pm

Hi

I would only be able to make a weekend. I am ok for 22nd or the 23rd. I live in Suffolk but my son lives in Gloucestershire and we try to visit him regularly, so I could combine the two, leaving husband with son.

Meme

Comment by Jules UK on February 12, 2014 at 12:20pm
I could do Sat 22nd but not Sunday. Also OK for Mon and Tues following week. I've made an appt to see Pam's hairdresser on 14th March. X
Comment by Pam on February 12, 2014 at 11:57am

I am OK for all of that week commencing March 17th including the Saturday 22nd March.

Comment by claire on February 12, 2014 at 11:48am

Hi,

I can do Saturday 22nd March for lunch but need to be back in Kent about 5ish for a dinner party. Alternatively I can do Sunday 23 or Wednesday 26th.

I hope we can sort out an agreeable date.

Claire

Claire.

Comment by Celia on February 12, 2014 at 11:10am

Have had a reply from Caro who can only make the Sat - 22nd March, but she would be OK for the following week.  She is keen to see Pam as we all are with the amazing new hairdo.  May I suggest Sun 23rd - Thursday 27th inclusive, unless you can all do the Saturday 22nd - that would be great.  We didn't see you last time, Paula and I know weekdays are difficult for you, so perhaps a weekend might suit you better.  I am about 4 miles off the M40 for those of you who didn't know.

Comment by Celia on February 12, 2014 at 7:08am

Good morning ladies.  Re . getting together - I wonder if the week beginning 17th -  22nd March inclusive might be good ?  If you could let me know which of these days you are free, then I hope that there will be one day that suits all.  I will then e mail my location with directions if you don't have sat nav.  Looking forward to a calm Spring day........Celia

Comment by claire on February 12, 2014 at 3:29am

Count me in as well.

Claire.

Comment by Celia on February 11, 2014 at 3:07pm

Hi Meme - definitely not forward at all !  Anticipate trying to agree a date in March that will suit everybody. 

Comment by Meme on February 11, 2014 at 1:44pm

Thank you ladies for your reassurance, I am speaking to the doctor on Thursday,  and I agree £345.00 sounds good to me. If you ladies do arrange a meeting I would very much appreciate an invitation, if that isn’t being to forward.  

Your support is very much appreciated. Meme

Comment by claire on February 10, 2014 at 1:38pm

Hi All,

So good to read these comments. I also have had an email today from Dr Criztos and quite excited to have a chat with him.

Would also be good to have a get together at some point. £345.00 for a hair piece to restore confidence sounds like a bargain.Claire.

 

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