Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Rita - Canada on January 24, 2014 at 1:42pm

Alice,  Selsum blue claims it's for Itchy Dry Scalp w/ 6 moisturizers and conditioners.  I have the same fine and flyaway hair and very dry but then I color it- don't want to be grey.  What a challenge.

Comment by Annie on January 24, 2014 at 1:35pm

MJ, I use the Rogaine foam in the mornings and my Betamethasone topical steroid in the evenings.  I wash my hair every other day and apply the foam to my scalp after shampooing and before drying my hair.  The mornings I don't wash my hair I apply it before styling my hair.  It seems to me that the foam makes my hair more flyaway and dull than usual.  I've been thinking about trying the liquid.

I have also been dealing with acne since I've started using the topical steroids.  I'm on my third topical, and all three have caused breakouts.  My doctor prescribed Amoxicillin antibiotic last week to hopefully clear up the acne.  I don't know which is worse, the breakouts or the hair loss.  Who knows, perhaps the pimples distract from my thinning bangs.  I have to admit that I wonder if I shouldn't buy a nice wig, have clear skin, and and give up on trying to save my hair.  The pain & redness is much improved with the medications, but I continue to lose hair after ten months of various treatments. 

Comment by Alice on January 24, 2014 at 1:08pm

Rita, I found that tea tree oil shampoo and conditioner helped the itching and irritation, but it was too drying to use all the time. Others have suggested Headand Shoulders classic formula but I haven't tried it because I thought it might be drykng . My hair is very fine and flyaway, so doesn't need drying out.

Comment by Alice on January 24, 2014 at 1:02pm

I've only tried 2 applications of the 2% minoxidil liquid, using the dropper thar came in the package. Both times, it dripped down my face, despite holding my head to the side. I really don't want to grow a beard. What's the best way to use this stuff?

Comment by Rita - Canada on January 24, 2014 at 12:55pm

Has anyone used a shampoo for itchy dry scalp such as Selsun blue or others with any success?  I know it's not intended for our FFA issues but thinking of trying it to stop the itching since I have put a hold on the clobetasol with its acne producing issues.

Comment by MJ on January 24, 2014 at 12:40pm
Thanks Maddy. Do you shampoo your hair in the morning? I only like to shampoo my hair every other day or so. I decided to do my applications in the morning rather than bedtime, figuring they wouldn't get washed out on the mornings I shampoo. That is why I am trying to use both the clobetosol and rogaine in a way so as not to have a bad hair dsy. The nurse made it sound like the foam was easy to apply right from the applicator onto the roots. I will jave to keep experimenting. Do you use it on your eyebrows as well and have you noticed an improvement? MJ
Comment by Maddy, California, U.S. on January 24, 2014 at 11:47am

Hi MJ, I apply Rogaine 5% every night before bed (I applied it twice a day for the first three months though). I usually fill up the cap and then use my fingers to apply it to part lines all along my frontal scalp area, including both temples. I think it is thickening my existing hair (I've been using it for about six months now), which helps to cover thinning areas. I hope that helps. Maddy

Comment by MJ on January 24, 2014 at 11:21am
Can someone using the Rogaine 5 percent foam tell me how you apply it? I originally started last week on the liquid, and although I found it easy to apply to the scalp, it dripped alot. I just tried the foam, but according to the directions for men they use their hands to rub it into their scalp. I tried to apply it directly onto my scalp at part lines but often got too much foam out with a press. I style dry my hair, then put on the clobetosol liquid,then apply the rogaine after that has dried. Should i be liberally rubbing the foam into my scalp with my hands? I want to make sure Imam putting enough on to be beneficial without overdoing it. Also, I use a qtip to apply to my eyebrows. Any suggestions would be greatly appreciated. MJ
Comment by Rita - Canada on January 24, 2014 at 10:33am

Jean/Alice. This is exactly the dilemma I find myself in. I used Clobetasol for many months with no issues. Then I developed what my derm called, acne from Clobetasol. I have just purchased Rogaine 5% at the urging of my derm to try it and wasn't sure when to start with this bumpy & itchy irritated scalp situation.  I don't see the derm now for another 6 months which I find way too long since there's always a question which needs answering. It may be that even the derm wouldn't know how to answer to this problem.

Comment by Alice on January 24, 2014 at 8:34am

Jean, Do you know hat your doc meant about your scalp being "clear" before trying minoxidil, aka Regaine?  Think mst of us have the red, bumpy scalp that is indicative of FFA. I just started using the 2% recc by 2 derms, to see how I tolerate it. I'm starting it only on the sides, where the hair is thinnest but with no any obvious signs of inflammation. Has anyone else with an irritated scalp tried minoxidil?

 

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