Comment

Comment by Alice on January 24, 2014 at 8:34am

Jean, Do you know hat your doc meant about your scalp being "clear" before trying minoxidil, aka Regaine?  Think mst of us have the red, bumpy scalp that is indicative of FFA. I just started using the 2% recc by 2 derms, to see how I tolerate it. I'm starting it only on the sides, where the hair is thinnest but with no any obvious signs of inflammation. Has anyone else with an irritated scalp tried minoxidil?

Comment by MJ on January 23, 2014 at 6:31pm

Thanks Jean. I am going to look into it further.
MJ

Comment by Jean on January 23, 2014 at 5:02pm

MJ

The acupuncture is to help regulate my autoimmune system and improve my gut.  The Chinese practitioner said it would be a long process but I'd rather see him than subject my body to drugs which will probably do nothing for the FFA and may further weaken my dodgy immune system!

Jean

Comment by MJ on January 23, 2014 at 4:42pm

Jean, i have been thinking about trying acupuncture as well, but have not checked into it yet. Is it supposed to help with reducing inflammation in the body in general, or is it targeting something specific?
MJ

Comment by Jean on January 23, 2014 at 2:22pm

Saw my derm yesterday - my hairline hasn't receded any further but my hair has definitely thinned.  I asked about Regaine and she thought it might help but only if my scalp was clear, because it may irritate the redness.  She wanted to put me on steroids or long-term antibiotics but unless I have some assurance of a positive result, I'm not inclined to use powerful drugs in the HOPE they will slow down progression of the FFA.  Unfortunately, the derm couldn't give me this assurance.  I'm sticking with the acupuncture and sensible diet to improve my autoimmune system.,,,,,,,,, 

Comment by Meadow on January 23, 2014 at 3:59am

Hi, I have just been give L-Tyrosine to take for 3 months - it is an amino acid I believe, has anyone tried this?

Comment by Rita - Canada on January 19, 2014 at 8:34pm

http://www.carfintl.org/_docs/newsletters/CARF_Newsletter15_Nov2013...

This website has a great deal of questions & answers for alopecia.

Comment by Rita - Canada on January 19, 2014 at 1:18pm

Hello Ann, I was on doxycycline 100mg per day for several mths. Also the clobetasol on scalp which she left it to me as to how often I applied. (Acutally got acne eventually from this lotion).  Then Derm said you can't be on doxy forever so she weaned me off by taking 100 mg ev. other day for a few mths and then my hair shedding seemed to lessen and only when I wash my hair do I lose more hair..  Derm said she'd leave a prescription on hold for doxy & if it should become worse again, back on for a good 3 mths then see her again. She said she normally works with 3 mth sessions of doxy after the first bout.  i never had a problem with the antibiotic but I did faithfully take a strong probiotic daily to avoid same.

Comment by Ann on January 19, 2014 at 12:44pm

Hello,  I know there has been many comments regarding various drugs that are taken for LPP/FFA.  I have been taking 200 mg of hydroxychloroquine for a few months.  My derm wanted to increase it to the therapeutic dose, 400 mg/day.  My GP was concerned because I have only one kidney.  My derm then recommended doxycycline, but I'm concerned about taking an antibiotic long term.   Has anyone come across this "complication" to taking meds?   I don't know what to do. 

Comment by Celia on January 19, 2014 at 7:40am

Liz - I never realised you have friends with FFA.  I hope that you all support each other well - I presume they are local to you ?   I guess when any new sufferers google the problem - the first face they see on this forum is MINE ! The reason being that I set up this group, thanks to Alopecia World.  There is no way that I know of to change it.  However my stance has always been to tell nobody what my problem is.  So - whilst friends may notice my hair is different - my plan is to start with thin wigs to match - eventually - and then - who knows. I think we have all learnt a lot from each other here and that must surely outweigh the downside that others may take a peek - BUT - only if you tell them.  Your friends with FFA will surely wish to join this forum and take advantage of the amount of knowledge here.  I am about to start with a new dermatologist.  He won't have the magic potion - but I hope to start over. x

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