Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Annie on January 16, 2014 at 4:46pm

Thanks, MJ. 

Comment by MJ on January 16, 2014 at 4:44pm
Annie, Yes. She said I can use color over all but the frontal area affected by ffa. She said highlights are ok in the ffa area because they are wrapped in foil and do not get on the scalp.
MJ
Comment by Annie on January 16, 2014 at 10:34am

MJ, I have a question regarding your doctor's advice about coloring hair.  Does she recommend using foil highlights with no additional color in the areas affected by ffa?  My hairdresser does a weave with foil highlights, then uses a color over my entire head followed by a toner at the end to make the highlights appear more natural. 

Comment by Rita - Canada on January 13, 2014 at 8:20pm

Debs, I may be wrong but I believe you are using Tumeric essential oil and Rogaine 5% foam and if so, which do you apply first? 

Comment by jess on January 13, 2014 at 5:05pm
Has anyone ever experienced regrowth in areas where they have lost hair? Regrowth that has remained?
Comment by Liz on January 13, 2014 at 3:29pm

Celia. Many of my friends have FFA but that doesn't mean that I want them reading my personal posts on this site. Also if our photographs are out there on the internet then we have no control over how they are used x

Comment by Celia on January 13, 2014 at 3:24pm

Liz, I have known for a long time how accessible the forum is. Initially I found it scary too and a very long time ago - I made comment on that.  I haven't told any people in the UK about my FFA.  If I do then it will be because I totally trust them not to make FFA the way I am defined.  But I do think that when people/friends are told what the problem is - there is no going back.  If you've shared your problem with friends, then you've done so because you trust them.  Nobody is just going to randomly research FFA and find you/us.  x

Comment by Liz on January 13, 2014 at 3:07pm

Celia. I appreciate that if this group were private nobody would be able to find it. This group is a great place for information and support and therefore is invaluable. It was just a bit scary that when I searched FFA on google posts and pictures from this group appeared in the search. Perhaps we could use this forum alongside our one on Facebook. Posts on the Facebook page can only be seen by members of the group and members have to be invited in order to join.

xx

Comment by MJ on January 13, 2014 at 7:15am
If you check out Dr. Weil's website, you will see a Q & A on a new treatment for hair loss. It describes the research being done to inject stem cells into the head to grow new hair follicles. This is what my doctor told me about. It describes the process if you are interested in knowing more about it. You don't have to join to read the Q & A library on the site.
Comment by Celia on January 13, 2014 at 4:39am

Hi Liz - I share your concern about the FFA group being easily accessible and for that reason I haven't told anyone I know that I communicate on this forum.  Unfortunately if the group could be made private, that would preclude new members finding us.

I hope you're getting on OK. x

 

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