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Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
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Thanks, MJ.
MJ, I have a question regarding your doctor's advice about coloring hair. Does she recommend using foil highlights with no additional color in the areas affected by ffa? My hairdresser does a weave with foil highlights, then uses a color over my entire head followed by a toner at the end to make the highlights appear more natural.
Debs, I may be wrong but I believe you are using Tumeric essential oil and Rogaine 5% foam and if so, which do you apply first?
Celia. Many of my friends have FFA but that doesn't mean that I want them reading my personal posts on this site. Also if our photographs are out there on the internet then we have no control over how they are used x
Liz, I have known for a long time how accessible the forum is. Initially I found it scary too and a very long time ago - I made comment on that. I haven't told any people in the UK about my FFA. If I do then it will be because I totally trust them not to make FFA the way I am defined. But I do think that when people/friends are told what the problem is - there is no going back. If you've shared your problem with friends, then you've done so because you trust them. Nobody is just going to randomly research FFA and find you/us. x
Celia. I appreciate that if this group were private nobody would be able to find it. This group is a great place for information and support and therefore is invaluable. It was just a bit scary that when I searched FFA on google posts and pictures from this group appeared in the search. Perhaps we could use this forum alongside our one on Facebook. Posts on the Facebook page can only be seen by members of the group and members have to be invited in order to join.
xx
Hi Liz - I share your concern about the FFA group being easily accessible and for that reason I haven't told anyone I know that I communicate on this forum. Unfortunately if the group could be made private, that would preclude new members finding us.
I hope you're getting on OK. x
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