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Comment by Kath UK on December 19, 2013 at 4:25pm

Just received my DNA sampling kit from Dr Tziotzios.  I thought it was an unexpected Christmas present until I opened it!   I'll send it away tomorrow and hope it doesn't get delayed because of the holiday coming up.  

Comment by Brenda, IL US on December 18, 2013 at 2:40pm

I dont think zyrtec causes any liver problems.  My 9 year old granddaughter was prescribed it.  My doctor prescribed it and he knows im on plaquenil.

Comment by Celia on December 18, 2013 at 1:43pm

I can't find anything referring to liver damage as a side effect of cetirizine - very young children are given this and also lymecycline.  I think probably any existing liver/kidney probs may be exacerbated by using these drugs.

Christmas soon ! Amazon have e mailed me to say the cetirizine is on it's way !

Comment by Annie on December 18, 2013 at 10:50am

Hi All,

Regarding antihistamines:  I have seasonal allergies and have taken a generic version of Claritin year-round for several years. I wondered if it might interfere with the plaquenil, so I stopped taking it mid August when my seasonal allergies lessened.  I experienced my worst flareup ever in early September.  I'm wondering if antihistamines in general may lessen the severity of ffa.  Has anyone's doctor said if it's okay to take Zyrtec & Plaquenil together since both list liver damage as a side effect?   

Comment by Debs on December 18, 2013 at 4:08am

Sam that is a very interesting idea about mercury.  I had my teeth filled at a young age (5 years) because I was prescribed tetracycline antiboitics to trea ifant peunomia this damages childrens growing teeth (not us now as adults), so I have been exposed to mercuy in fillings and I do eat lots of fish.  I wish the derms would give us all blood tests to see what our bodies are doing and test us for everything possible and see what we have in common and how we differ from the general population.

Comment by PamW San Diego, CA, USA on December 17, 2013 at 10:55pm

When I first got FFA, I noticed that doctors said that they may be able to control some of the discomfort but not stop the hair loss. I think taking Zyrtec is one of the ways that we can control some of the symptoms such as itching and burning.

When I got hives twice last summer, I tried to understand what was happening so I read a few things on the internet. I don't know if this is totally accurate, but here is my take on things. When our body is under attack from a foreign substance or toxin it creates histamine to fight the attack. The doctors think a toxic lipid is what is attacking our sebacious glands. The body fights the toxins by releasing histamine. We itch because of the increase in histamine. The histamine is increased in our body because of the toxin that is attacking the sebaceous gland. Taking an antihistamine stops the itch. I don't think it will stop the attack, it just numbs the discomfort.

When I got hives last summer, the doctor said that there were several types of antihistamines. She suggested Zyrtec because it doesn't make you as drowsy as the others. I think Claritin, Allegra and Zyrtec all have different ingredients. I was able to purchase generic Zyrtec at Costco much, much, much cheaper than the named brand of Zyrtec.

It does dry out my nasal passages, but if my head isn't itching and burning I don't think about the FFA as much.

Comment by Sam on December 17, 2013 at 10:06pm

I just took my first zyrtec - fingers crossed that you guys are on to something here! Also, has anybody had their heavy metal levels checked?  I just had mine tested and my mercury and lead are high.  My mercury is actually quite high (and I don't eat seafood or have any fillings) not sure if it could be from fish oil I am now taking but my holistic doctor seems it may just be from a lifetime of exposure.  Anyway, I read that mercury could lead to autoimmune issues so I would love to be able to get rid of it and get rid of this problem although once the FA is triggered, not sure if it will go away if the mercury is gone.  Just throwing this out there in case there in the event anyone had something similar and/or wanted to check their levels in case it is a potential cause.  Belated thanks to Debs!  I will send you an email as well.

Comment by Brenda, IL US on December 17, 2013 at 5:58pm

Alice, zyrtec has stopped the itching but it does cause my mouth to be dry.  I didnt have itching until a couple of months ago and it was driving me crazy.  I sip on water often to alleviate the dryness.  I take zyrtec, plaquenil, and doxycycline as prescribed by my dr.  I have to have my eyes checked twice a year while on plaquenil.  My eye dr gave me a chart to check my eyes each day but ive been on plaquenil so long that i forget to do it.  I was taking plaquenil for lupus a long time before i was diagnosed with FFA.  I have blood work done twice a year. 

Comment by Maddy, California, U.S. on December 17, 2013 at 5:52pm

I am wondering the exact same thing MJ! I have some Claritan sitting here on my desk! The study that everyone is referring to happened to study Zrytec...but that's all I know.

Comment by MJ on December 17, 2013 at 5:07pm

Thanks Maddy. Now I am wondering if the supply of Allegra I have from spring allergy season would be equivalent or if there is something specific to zyrtec...

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